Small intestinal bacterial overgrowth (SIBO)

Posted by maryannegau @maryannegau, Oct 25, 2018

I’ve been battle SIBO for months now and have tried Rifaxin, Flagyl and antiviral meds. Also have tried Zithromax and am taking Atrantil (an herbal remedy). I can’t eat sugar or carbs or my stomach hurts quite alot. Any suggestions?

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@sita

Phoenix Mayo does accept straight Medicare, just not the advantage plans. Good luck!

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This is from their website: “For out of state residents, Mayo Clinic has chosen to be a nonparticipating facility in AZ and FL and does not accept assignment for Medicare Part B for out if state residents. This means that Mayo does not accept Medicare approved amounts as Payment in full.”

Their policy is obviously different for AZ and FL residents.

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@gtassithomas

I started getting sick 4 years ago at 53 years old. I started having diarrhea, dyspepsia, sour taste in my mouth and I had rapid wt loss of 30 pound over 3-4 mos. I was not trying but having so much diarrhea etc couldn't eat. Stress was moderate normal and I had taken antibiotic month or so before symptoms. I was diagnosed with peripheral neuropathy unknown cause the year before. No diabetics, no health problem except overwrite since kids born. Since this began my symptoms have worsened to include severe abdominal pain,
face flushing flush and heart pounding(usually with eating or diarrhea) and some reflux symptoms, I have also found that I have low Igg immunity. I have had full GI workup, Ct scan Mri etc. Only positive findings are 2 breath tests positive for sibo.
I have take xifaxin antibiotic 6 times over 4 years base on 2 tests and return of symptoms, I am wondering if I could have an underlying motility disorder as my esphogeal manometry showed hypercontractile esophagus ang gsstric empying stud showed rapid gastric emptying. Can/ would Mayo dr help me? I can't stay on antibiotics forever. Also in the past year I now have diverticulosis and a hiatal hernia eventhogh I am much thinner and hardly eat

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Right, in September of 2018 I was seen and had to pay 15% over what Medicare paid. It was less than $200 for two specialists appointments.

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@gtassithomas

I started getting sick 4 years ago at 53 years old. I started having diarrhea, dyspepsia, sour taste in my mouth and I had rapid wt loss of 30 pound over 3-4 mos. I was not trying but having so much diarrhea etc couldn't eat. Stress was moderate normal and I had taken antibiotic month or so before symptoms. I was diagnosed with peripheral neuropathy unknown cause the year before. No diabetics, no health problem except overwrite since kids born. Since this began my symptoms have worsened to include severe abdominal pain,
face flushing flush and heart pounding(usually with eating or diarrhea) and some reflux symptoms, I have also found that I have low Igg immunity. I have had full GI workup, Ct scan Mri etc. Only positive findings are 2 breath tests positive for sibo.
I have take xifaxin antibiotic 6 times over 4 years base on 2 tests and return of symptoms, I am wondering if I could have an underlying motility disorder as my esphogeal manometry showed hypercontractile esophagus ang gsstric empying stud showed rapid gastric emptying. Can/ would Mayo dr help me? I can't stay on antibiotics forever. Also in the past year I now have diverticulosis and a hiatal hernia eventhogh I am much thinner and hardly eat

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That is certainly reasonable! I assume that you are not an AZ resident? I guess the real consideration would be how much $$ would be involved if there ended up to be numerous costly tests and procedures. Thanks!

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@jackiem95

That is certainly reasonable! I assume that you are not an AZ resident? I guess the real consideration would be how much $$ would be involved if there ended up to be numerous costly tests and procedures. Thanks!

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Yes, I am not an Arizona resident. I had many blood tests run and really don’t remember any extra costs, so if there were some, they must have been minimal. I was concerned about that as well.

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@gtassithomas

I started getting sick 4 years ago at 53 years old. I started having diarrhea, dyspepsia, sour taste in my mouth and I had rapid wt loss of 30 pound over 3-4 mos. I was not trying but having so much diarrhea etc couldn't eat. Stress was moderate normal and I had taken antibiotic month or so before symptoms. I was diagnosed with peripheral neuropathy unknown cause the year before. No diabetics, no health problem except overwrite since kids born. Since this began my symptoms have worsened to include severe abdominal pain,
face flushing flush and heart pounding(usually with eating or diarrhea) and some reflux symptoms, I have also found that I have low Igg immunity. I have had full GI workup, Ct scan Mri etc. Only positive findings are 2 breath tests positive for sibo.
I have take xifaxin antibiotic 6 times over 4 years base on 2 tests and return of symptoms, I am wondering if I could have an underlying motility disorder as my esphogeal manometry showed hypercontractile esophagus ang gsstric empying stud showed rapid gastric emptying. Can/ would Mayo dr help me? I can't stay on antibiotics forever. Also in the past year I now have diverticulosis and a hiatal hernia eventhogh I am much thinner and hardly eat

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I called the Phoenix clinic today. Basically, they told me that because of the high demand for care in certain specialties (e.g gastroenterology) they are now not accepting anyone at all on a government health care program—that is anyone on Medicare (even with supplementary insurance) or Medicaid. So I guess that ends my quest for care at Mayo.

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@gtassithomas

I started getting sick 4 years ago at 53 years old. I started having diarrhea, dyspepsia, sour taste in my mouth and I had rapid wt loss of 30 pound over 3-4 mos. I was not trying but having so much diarrhea etc couldn't eat. Stress was moderate normal and I had taken antibiotic month or so before symptoms. I was diagnosed with peripheral neuropathy unknown cause the year before. No diabetics, no health problem except overwrite since kids born. Since this began my symptoms have worsened to include severe abdominal pain,
face flushing flush and heart pounding(usually with eating or diarrhea) and some reflux symptoms, I have also found that I have low Igg immunity. I have had full GI workup, Ct scan Mri etc. Only positive findings are 2 breath tests positive for sibo.
I have take xifaxin antibiotic 6 times over 4 years base on 2 tests and return of symptoms, I am wondering if I could have an underlying motility disorder as my esphogeal manometry showed hypercontractile esophagus ang gsstric empying stud showed rapid gastric emptying. Can/ would Mayo dr help me? I can't stay on antibiotics forever. Also in the past year I now have diverticulosis and a hiatal hernia eventhogh I am much thinner and hardly eat

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Wow, I am sorry to hear that!

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@thull

Yes, in Phoenix. I don't know anything about out of state insurance stuff. I am glad that my insurance was in network. I feel very lucky to have gotten in, especially with my current situation. Although that came as a result of going to the ER and having to be admitted. Surgeons came to me, and even though the main one I saw is a general surgeon, he is working under a colo rectal Surgeon who also saw me and was in the operating room. My last 3 surgeries this past year were at a different hospital and just a general surgeon, not a specialist. While I really liked this surgeon, I just felt better going forward to being treated by somebody who specializes in the bowel.

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Hi @thull
Just thinking about you and wondering how you are feeling these days. I hope your recovery is still going well.

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@hopeful33250

Hi @thull
Just thinking about you and wondering how you are feeling these days. I hope your recovery is still going well.

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I am feeling pretty good, trying to work some(I am a realtor). I have been able to get out and show some houses etc. I have my follow up appointment with the surgeon 1/31. Everything seems to be going ok except my appetite is still not that great so keeping weight on is a challenge. The solid food seems to be hanging around in my stomach for quite a while and making me feel full. I wonder if being on liquids for so long made it go into shock or something!

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@thull

I am feeling pretty good, trying to work some(I am a realtor). I have been able to get out and show some houses etc. I have my follow up appointment with the surgeon 1/31. Everything seems to be going ok except my appetite is still not that great so keeping weight on is a challenge. The solid food seems to be hanging around in my stomach for quite a while and making me feel full. I wonder if being on liquids for so long made it go into shock or something!

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@thull I understand.

I've had three surgeries of the upper digestive tract and I still feel full very easily and solid food does stay around for a while.
I hope your surgeon provides you with some good information at your next appointment!

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@gtassithomas

I started getting sick 4 years ago at 53 years old. I started having diarrhea, dyspepsia, sour taste in my mouth and I had rapid wt loss of 30 pound over 3-4 mos. I was not trying but having so much diarrhea etc couldn't eat. Stress was moderate normal and I had taken antibiotic month or so before symptoms. I was diagnosed with peripheral neuropathy unknown cause the year before. No diabetics, no health problem except overwrite since kids born. Since this began my symptoms have worsened to include severe abdominal pain,
face flushing flush and heart pounding(usually with eating or diarrhea) and some reflux symptoms, I have also found that I have low Igg immunity. I have had full GI workup, Ct scan Mri etc. Only positive findings are 2 breath tests positive for sibo.
I have take xifaxin antibiotic 6 times over 4 years base on 2 tests and return of symptoms, I am wondering if I could have an underlying motility disorder as my esphogeal manometry showed hypercontractile esophagus ang gsstric empying stud showed rapid gastric emptying. Can/ would Mayo dr help me? I can't stay on antibiotics forever. Also in the past year I now have diverticulosis and a hiatal hernia eventhogh I am much thinner and hardly eat

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Hi @gtassithomas,

If you would like to make an appointment at Mayo Clinic, you can call one of our appointment offices. You can also request an appointment online. The contact information for Minnesota, Arizona and Florida can be found here: http://www.mayoclinic.org/appointments
Appointment coordinators will ask questions to help direct you to the best specialist.

Might I suggest you also call Mayo Clinic's Patient Account Services at 800-660-4582
For further information check out this resource about billing and insurance from Mayo Clinic: https://www.mayoclinic.org/patient-visitor-guide/billing-insurance

I also encourage you to view this discussion, https://connect.mayoclinic.org/discussion/xifaxan/ where @astaingegerdm @kltchrmn @contentandwell @drpepper @guthealth have shared their insights about Xifaxan.

REPLY

I started getting sick 4 years ago at 53 years old. I started having diarrhea, dyspepsia, sour taste in my mouth and I had rapid wt loss of 30 pound over 3-4 mos. I was not trying but having so much diarrhea etc couldn't eat. Stress was moderate normal and I had taken antibiotic month or so before symptoms. I was diagnosed with peripheral neuropathy unknown cause the year before. No diabetics, no health problem except overwrite since kids born. Since this began my symptoms have worsened to include severe abdominal pain,
face flushing flush and heart pounding(usually with eating or diarrhea) and some reflux symptoms, I have also found that I have low Igg immunity. I have had full GI workup, Ct scan Mri etc. Only positive findings are 2 breath tests positive for sibo.
I have take xifaxin antibiotic 6 times over 4 years base on 2 tests and return of symptoms, I am wondering if I could have an underlying motility disorder as my esphogeal manometry showed hypercontractile esophagus ang gsstric empying stud showed rapid gastric emptying. Can/ would Mayo dr help me? I can't stay on antibiotics forever. Also in the past year I now have diverticulosis and a hiatal hernia eventhogh I am much thinner and hardly eat

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@drpepper

Update: picked up script for Rifaxam ($700 for 30 pills 200mg). Decided to read a bit more before starting the antibiotic. On Atrantil website read that one should not take probiotics while trying to treat SIBO. My ileocecal valve was removed during a sm bowel resection in '99. Started having belching in 2015. Reflecting on my past medical history it was about that time I started probiotics that I started having belching problems. I started (dr recommend) more serious probiotics and belching got worse. Doctor after doctor and suggestion after suggestion e.g. – remove gall bladder, stop cpap use, repair hiatal hernia, and on and on… The site (Atrantil) said taking probiotics was like adding fire to fire. So I delayed the antibiotic treatment and stopped all probiotics. Within 2 days my insane belching was diminished by over 50 % and at this point close to 75 %. I have the Rifaxam on standby but right now I am feeling better than I have in years!..

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So maybe your problem was more reflux than SIBO? I had a massive bowel obstruction and had an emergency right hemicolectomy 2 1/2 years ago which includes removal of 18" of my colon cecum, illeocecal valve, appendix . I developed chronic SIBO and have not been able to get off Xifaxan for any length of time so I am on it daily. I also take Align daily. My dr told me to take a trial off Align and my intestines were a wreck after 4 days. Went back on it and within a few days was fine. Go figure! I think a lot is trial and error.

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