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Share your treatment for Dysautonomia

Posted by lakedog100yards @lakedog100yards, Apr 12 9:04am

In 2016 after 2 days of testing at the University of Kansas Hospital I was diagnosed with Dysautonomia. I was prescribed Venlafaxine and Pyridostigmine. It did bring relieve. However, in the past year these meds have not been very effective. Two months ago I started decreasing my normal dosage and completely stopped these 2 meds. I can’t tell that my symptoms have changed by not taking these 2 meds. It would be of interest if anyone out there might have experienced some of these medical challenges I have described.

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lakedog100yards | @lakedog100yards | Apr 13 1:29pm
In reply to @dlydailyhope "@lakedog100yards What were your symptoms in 2015 before being diagnosed with dysautonomia? What are your current..." + (show)
@dlydailyhope

@lakedog100yards
What were your symptoms in 2015 before being diagnosed with dysautonomia?

What are your current symptoms? What recent testing or treatments have you received?

Have you seen a neurologist for small fiber neuropathy bloodwork and skin punch biopsy of thigh/ankle?

1. https://my.clevelandclinic.org/health/diseases/6004-dysautonomia
2. https://thedysautonomiaproject.org/dysautonomia/
3. https://www.healthline.com/health/types-of-dysautonomia
4. https://www.healthline.com/health/dysautonomia-symptoms
5. https://www.medicalnewstoday.com/articles/76785
6. https://www.osmosis.org/answers/dysautonomia
7. https://resources.healthgrades.com/right-care/brain-and-nerves/dysautonomia

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Hi, Actually in 2014 I tested positive for Rocky Mountain Spotted Tick Fever and Tularemia. Treatment was Doxycycline. However, months had past and I continued to feel terrible. Symptoms included numbness, dizziness, total fatigue sleeping and vision issues to include both high and low blood pressure. I kept on schedule with working out and staying in shape. I’ve never felt this bad and confused about my health. The Neurologist in my area were not helpful at all. I continued to have cardiology testing. Infectious Disease doctors thought I could have had Lyme Disease but symptoms only showed up after nerve damage had already occurred. Most Neurologist in Northwest Arkansas believed it was impossible to get Lyme Disease in our area. This theory was proved to be very wrong by CDC. A small chest Aorta Auyerism showed up in Cardiology testing. Also, my optic nerves in both right and left eye had incredible damage . The damage to the right optic nerve was equal to trauma in a bad accident. If you want me to continue with my situation I can maybe tomorrow. Thanks.

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