1. < Prostate Cancer

Share your test results (if you'd like)

Posted by northoftheborder @northoftheborder, May 28 5:25pm

I thought it might be helpful to have a thread dedicated to sharing routine test results, good or not-so-good. My intention is just to provide a place for sharing, support, and encouragement, not for debating tests and treatments

I'll start. I've been at stage 4b oligometastatic for over 2½ years, and last Friday I did my routine 12-week bloodwork. My PSA remains below 0.01 (undetectable), Orgovyx and Erleada are holding my testosterone at 0.2, and the other tests are in normal ranges, except for those related to iron, which are slightly low.

Overall, it was a banner day! 🎊 I always treat myself to a masala chai at the little Indian café across the street while I'm waiting for my results to pop.

Do you have any recent test results you'd like to share?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

robertmizek | @robertmizek | May 28 7:36pm

Got my first PSA test results after 30 days on Orgovyx and Zytiga. Undetectable! Off to a good start. 33 sessions of IMRT start next week.

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1 reply
northoftheborder | @northoftheborder | May 28 7:54pm
In reply to @robertmizek "Got my first PSA test results after 30 days on Orgovyx and Zytiga. Undetectable! Off to..." + (show)
@robertmizek

Got my first PSA test results after 30 days on Orgovyx and Zytiga. Undetectable! Off to a good start. 33 sessions of IMRT start next week.

Jump to this post

That's great. Congrats!

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stevecando54 | @stevecando54 | May 29 4:23am

I go for two scans next monday, get blood work and firmagon tuesday, will update with results. this is a good idea, thank you

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handera | @handera | May 29 5:29am

Good idea!

Last week I had blood drawn 15 minutes apart at two different labs (one for my urologist, one for my GP). Both had ordered PSA tests.

6.57 and 5.87…you can guess which one I liked the best 😉

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1 reply
bens1 | @bens1 | May 29 6:09am

I had my blood test last week. I had been treated with a narrow margin built in Mri Mridian linac machine. I was treated in 2023.
My PSA #'s were: 10/5/2022 3/31/2023 5/25/2023 9/12/2023 1/9/2024 4/11/2024 5/24/2024
10.29 4.61 2.99 1.4 1.5 0.94 0.73

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q95oldies | @q95oldies | May 29 10:22am

PSA tested a few weeks ago, .0004

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2 replies
jerryjohnson7101951 | @jerryjohnson7101951 | May 29 10:38am

Started on Lupron with nubeqa and started a 6 treatment every three weeks .just finished session .
Results are PSA is non detectable started at 7 . Have two spots of cancer on rib and back . Return to Mayo for petscan end of June .

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northoftheborder | @northoftheborder | May 29 5:13pm
In reply to @handera "Good idea! Last week I had blood drawn 15 minutes apart at two different labs (one..." + (show)
@handera

Good idea!

Last week I had blood drawn 15 minutes apart at two different labs (one for my urologist, one for my GP). Both had ordered PSA tests.

6.57 and 5.87…you can guess which one I liked the best 😉

Jump to this post

I had the same kind of natural experiment, except that my blood was drawn at the same time and sent to different labs (my hospital oncologist and family doctor had ordered the same test). I was surprised at how different they were. It's a good reminder not to get too upset at a single blood-test result.

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northoftheborder | @northoftheborder | May 29 5:14pm
In reply to @kujhawk1978 "Here's mine..." + (show)
@kujhawk1978

Here's mine...

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Great chart (and lots of data). I'm hoping mine looks something like that after 10 years. And it's great that the Orgovyx is working well on the right side as well, because I've just switched to it too.

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