Severe Stenosis in Lumbar Region

Posted by eviggiano @eviggiano, Jan 31, 2023

I have an upcoming tele-med appointment with Mayo, Medical and Surgical teams. I am stressing over the recovery: how much pain to expect, and over what period of time; can I sit; can I sit on a plane to go home to NJ; what can i expect at home; do I need a cane; a walker; is there a special pillow to allow me to sleep; will I have to take opiods; other pain meds. I am so nervous. I have been told I do not need a spinal fusion (thank God); Please help with specifics. TIA.

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Profile picture for vikkitennis @vikkitennis

Thank you for your acknowledgment and support. The time lapse since the spinal fusion of L5-S1 has been almost ten years. I am wondering when the rods will wear down. After the spinal cord stimulator was placed in last year, which has been successful, the neurosurgeon who placed it in, is very communicative and responsive when I contact him. He referred me to a scoliosis neuro at the Barrow in Phoenix, and he ordered imaging. Thank goodness he ordered a CT Scan and not a MRI, as with the SCS, it is a vey laborious process when in the "tunnel". I lightly freaked out the last time, as it was to be two 30 minute sessions, and I could only handle one session. I am looking forward to seeing the specialist next month, and go from there. My curiosity and interest is what the curvature is. I am extremely active, just turned 69, and cannot think of being on the sidelines.

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I am extremely claustrophobic but, with the help of a 10mg valium, I recently easily spent an hour in the MRI (with the helmet on, no less). Ask your doctor for help when confronting the "tunnel."

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Profile picture for jimmurray @jimmurray

I am extremely claustrophobic but, with the help of a 10mg valium, I recently easily spent an hour in the MRI (with the helmet on, no less). Ask your doctor for help when confronting the "tunnel."

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thank you, and I appreciate your reply. The neurosurgeon who performed the SCS, ordered a CT Scan along with X-rays. He understands how laborious the MRI was for me, and if a MRI is called upon, I will take your advice.

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Profile picture for jimmurray @jimmurray

I am extremely claustrophobic but, with the help of a 10mg valium, I recently easily spent an hour in the MRI (with the helmet on, no less). Ask your doctor for help when confronting the "tunnel."

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Why not the open mri?

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Profile picture for rainerhans @rainerhans

I am in the same situation, just got my diagnosis and start this journey as well.
I would like to follow and hear advices,
Thank you.

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I am scheduled for lamanectomy and fusion.
Have read too many terrible post op nightmares !!
Decided to postpone surgery and investigating MILD! This stands for minimally invasive lumbar decompression. The orthopod that recommended this told me it’s maybe 50% effective but a quick and easy half step that is worth a try and Medicare covers it. I will likely try this. Check the web for MILD, pain management usually offers this. I don’t have high hopes but I see great upside and minimal downside.
Good luck and keep active doing anything that doesn’t aggravate or hurt.
Tony 78

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Profile picture for tony1946 @tony1946

Why not the open mri?

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When you are getting an MRI of your head/neck, you are wearing a coil (helmet) and your head is inside the machine, anyway. Both reasons for claustrophobia - even with the open mri.

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Profile picture for jimmurray @jimmurray

When you are getting an MRI of your head/neck, you are wearing a coil (helmet) and your head is inside the machine, anyway. Both reasons for claustrophobia - even with the open mri.

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Yes it’s been years but the cage is bad,
Also claustrophobic .
Took the pills to relax fell asleep and woke up in a panic in the cage. Won’t do that again.

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Profile picture for tony1946 @tony1946

Yes it’s been years but the cage is bad,
Also claustrophobic .
Took the pills to relax fell asleep and woke up in a panic in the cage. Won’t do that again.

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Good plan - unfortunate outcome!

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Profile picture for draw @draw

In the near future, I’m supposed to have surgery to correct my severe spinal stenosis + have lumbar spinal fusion on my L3 & L4 and my L4 & L5. Currently taking Gabapentin 3X daily. Has anyone had this surgery & how was your recovery experience? Thank you for any encouragement, advice, information, etc. you can offer.

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" hello "draw": Had L3-4 and L4-5 spinal fusion like your upcoming one. Pain before was really awful and this surgery was really needed and helpful! After surgery: I was in upper long body support (velcro closure in front) for 3 months with some good bed rest. Made a pillow-padded 45 degree diagonal upright board for resting in bed after good night's sleep. And slept pretty well (!) at night, on my back (supine) laying on a frozen-gel-pain-pack, wrapped in towel, out it under me, next to the back surgery spot - wow! , it really helped, cool off pain and I could sleep! The next 3 months I up got up more and moved about home, and signed up for PhysTherapy with the spine specialist. That helped and got me ready to recover faster and then even carefully drive my car. Be sure to use your protective body brace -- you don't want to chance any car bumps or falls or anything that might hurt you or slow you down while recovering. Then at 6 months "post" recovery, it was really good to realize you made it! Best of luck !

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Profile picture for draw @draw

Thank you for your response. After reading other people’s responses, I’m looking into getting a second opinion, just to be safe. However, your last sentence is what my current doctor said I’d need to do after surgery ~~ he said, “you’ll need to walk like crazy!” Makes sense.

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Had my three laminectomies and two disc replacements May 9th. I started to walk "like mad" feel good doing and afterwards as well. Have been on Tylenol for lower back achiness. Sleep exceptionally well especially on my back. Rented ($160/mo) electrical hospital bed. Very helpful in various positions to sleep, to rest, and to read. I bought some 8" offroad walker wheels and skids. Live in rural area. These make walking around ar fast pace easy. Feel great after walking.
My surgery and recovery is amazing.

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Profile picture for victorkach @victorkach

Had my three laminectomies and two disc replacements May 9th. I started to walk "like mad" feel good doing and afterwards as well. Have been on Tylenol for lower back achiness. Sleep exceptionally well especially on my back. Rented ($160/mo) electrical hospital bed. Very helpful in various positions to sleep, to rest, and to read. I bought some 8" offroad walker wheels and skids. Live in rural area. These make walking around ar fast pace easy. Feel great after walking.
My surgery and recovery is amazing.

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Thank you!
I can take Tylenol but no opioids . What did you have for pain?
Tony

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