Severe spinal stenosis

Posted by collierga @collierga, Jan 15, 2020

Hi there
I am new to this group. I am a 64 yr old female, in basically good health. Hip replacement 10/2018 with no complications.. Currently have no pain only bilateral finger numbness with minor lower left arm numbness. For the most part does not interfere with my daily living activities
Diagnosed with severe cervical stenosis via MRI in 8/2019,C-3-4 shows severe disc degeneration, moderate to severe bilateral formalin narrowing due to uncinate spurs/C4-5 same as 3-4 but with broad based disc bulge/5-7 C7-T-1 Degenerative anterolisthesisBroad based disc/osteophytic ridge causing severe central canal narrowing. i have gone to 2 different Neuro surgeons they both say complete opposite treatment plans. One says observe see him if symptoms get worse. The other doctor wants to do 2 surgeries, first through the front, #2 through the back to stabilize. I am leaning towards no surgery but am looking for someone to tell me they had this surgery and are happy t hey had it done. So far when i talk to people with back/neck issues they say they would never again go through surgery.
Thank you all in advance for you opinions..

@bustrbrwn22

@sunnyflower how can you not be scared to death? What happens if you don’t have this surgery?

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Well the 2 neurosurgeons I saw, could see a little bit of fluid around my spinal nerves so it's not urgent but there's a lot of uncertainty. I'm so high risk that no one wants to touch me. I did my homework and the doc I want is the director of neurosciences and cheif of neurosurgery. I figured he didn't get there by having malpractice suits afainst him. It is very scary but I know either way I'm in God's hands and He knows what He is doing. That calms me. If I don't have it, I could lose function of my legs. Thank you for your concern and questions. These can take years to close (stenos) to that point. I think it's just a matter of when. I'm dealing with so much other stuff now too. I see vascular surgeon for my right brachial artery stenosis (50%+ and rare) 10/12. I am concerned about that and how it got that way. I think the diagnostics and fix are both invasive and that means pain! Take good care, Sunnyflower @fde11.fde11 @baltopat86

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@bernese53

I had cervical spine surgery at the Mayo Clinic 11 months ago and I do not regret it. I had numbness and tingling in my left hand, shoulder pain, and was losing strength in my left hand. Most of my symptoms have resolved. PLEASE NOTE: many orthopedic surgeons operate on the spine not just neurosurgeons. My surgeon was Dr. Ahmad Nassr whose research focuses on the spine. Please do not limit yourself to neurosurgepns only.

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Agree. I had a great spine doc do my first 2 discectomies/laminectomies only 6 days apart. Guess I shouldn't have gotten up and cleaned the bathroom mirror! I was pain free and drugged so wasn't thinking. So glad mostvof your Sxs resolved bernese53

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@sunnyflower

Agree. I had a great spine doc do my first 2 discectomies/laminectomies only 6 days apart. Guess I shouldn't have gotten up and cleaned the bathroom mirror! I was pain free and drugged so wasn't thinking. So glad mostvof your Sxs resolved bernese53

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@sunnyflower are you serious, Sunny?

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@sunnyflower

Well the 2 neurosurgeons I saw, could see a little bit of fluid around my spinal nerves so it's not urgent but there's a lot of uncertainty. I'm so high risk that no one wants to touch me. I did my homework and the doc I want is the director of neurosciences and cheif of neurosurgery. I figured he didn't get there by having malpractice suits afainst him. It is very scary but I know either way I'm in God's hands and He knows what He is doing. That calms me. If I don't have it, I could lose function of my legs. Thank you for your concern and questions. These can take years to close (stenos) to that point. I think it's just a matter of when. I'm dealing with so much other stuff now too. I see vascular surgeon for my right brachial artery stenosis (50%+ and rare) 10/12. I am concerned about that and how it got that way. I think the diagnostics and fix are both invasive and that means pain! Take good care, Sunnyflower @fde11.fde11 @baltopat86

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@sunnyflower I am so sorry to hear all of this. I am hear if you ever need to type

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@bustrbrwn22

@sunnyflower are you serious, Sunny?

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Yes. It was unreal!! The MRI showed that there was bleeding at the sight of my first surgery on the inside so they knew I was in trouble and also some of the the remaining disc from the first surgery, which is gelatinous, had slipped out and was squashing my nerve. Two surgeries 6 days apart but they sure worked!

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@sunnyflower

Yes. It was unreal!! The MRI showed that there was bleeding at the sight of my first surgery on the inside so they knew I was in trouble and also some of the the remaining disc from the first surgery, which is gelatinous, had slipped out and was squashing my nerve. Two surgeries 6 days apart but they sure worked!

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So you weren’t following directions?! 😮 I always warned by back surgery patients that the ones I usually saw (too soon) again were one’s who didn’t take it easy. Of course I am sure many didn’t remember me at all, which is why written instructions are sent home!

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@bustrbrwn22

@sunnyflower I am so sorry to hear all of this. I am hear if you ever need to type

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Thank you Jen that is so sweet! Make no mistake, in my affliction I am still the most blessed person that I know! My heart swells with gratitude and no matter how bad it gets, I am acutely aware of my innumerable blessings! God has surely allotted me an extra Measure of Faith for which I am deeply humbled. Hope you're having some victory today. I care deeply, Sunny. 🤗🙏🌹♥️

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Hello wisco50, what was your profession? It was the pain meds. I wasn't making good judgment calls on them. Also to have relief from one and a half years of excruciating pain, I thought I was healed! Silly me! I paid such a dear price! Take care, Sunnyflower

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Sorry for the typos and misused grammar! I was too tired!

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@sunnyflower

Hello wisco50, what was your profession? It was the pain meds. I wasn't making good judgment calls on them. Also to have relief from one and a half years of excruciating pain, I thought I was healed! Silly me! I paid such a dear price! Take care, Sunnyflower

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I was a registered nurse, last 22 years in surgical recovery.

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I know it sounds scary, but I had a nine hour fusion on my back from T-10 to my pelvis. I feel much better. They were going through my front too, but decided they could just go through the back. I had the surgery at Mayo at Rochester, had an excellent surgeon. You neck will only get worse if you don't get the surgery. I'm glad I had mine. Hoping the best for you and prayers too.

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@sunnyflower

Yes. It was unreal!! The MRI showed that there was bleeding at the sight of my first surgery on the inside so they knew I was in trouble and also some of the the remaining disc from the first surgery, which is gelatinous, had slipped out and was squashing my nerve. Two surgeries 6 days apart but they sure worked!

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@sunnyflower Any surgery scares me but what you are describing is even scarier! Did it get rid of all the pain or just a percentage?

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