severe nerve pain in feet. EMG was normal. Is not neuropathy

Posted by nancyc777 @nancyc777, Sep 4 1:53pm

I have burning, tingling, electrical pain in both feet. This started in 2017, but it was mild, and was only in the evening. Then gradually, the pain started earlier in the day, and it increased in intensity. It now gets up to a “10” every day, and starts as soon as I get out of bed in the morning. The more I am on my feet, the worse the pain gets.
Arteries and veins test normal. All lab work normal. Had fusion L4/L5 d/t severe stenosis, Lumbar, with no relief of pain in feet.
Cannot tolerate anything tight on feet. Cannot go food shopping or stand long enough to cook because of pain in feet. At the end of the day, it feels like there are tight bands around my ankles. I spend most of the day icing and elevating my feet. sometimes I put feet into cold water. Been to 3 local neurologists with no help. I have tried all of the meds for nerve pain with no success. The pain eventually goes away when in bed all night. Sometimes they get red/purple but vascular doc says all the blood vessel and heart tests were normal. Don't know what to do.

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You might be iron deficiency you might be lacking in your magnesium and your electrical lights and you might need to be you might be dehydrated. Like B12 or focal and iron deficiency

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You might have a a hernia disc and your lower back like in your L5 or your L6 cuz a lot of times if you have pain in your feet it could be coming from your back you probably have like a hernia disc or it could be from vitamin deficiency a chiropractor could help but it are physical therapy could help with it. To go to MRI on your lower back or get a full vitamin check of your iron and all your electrical lights like your vitamin d and your iron and your vocal iron in your B12 best of luck

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@crazykbl

You might have a a hernia disc and your lower back like in your L5 or your L6 cuz a lot of times if you have pain in your feet it could be coming from your back you probably have like a hernia disc or it could be from vitamin deficiency a chiropractor could help but it are physical therapy could help with it. To go to MRI on your lower back or get a full vitamin check of your iron and all your electrical lights like your vitamin d and your iron and your vocal iron in your B12 best of luck

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Thank you, I did have surgery on my back and had L4 L5 fused., Because of severe spinal stenosis. But that was a year ago and it did not help the pain in my feet at all. I had all my vitamins checked also, but I take magnesium anyway to try to calm the nerves down. I take vitamin D, even though my blood levels were OK. Thank you so much for trying.
Before surgery, I did PT with no relief whatsoever. Feel free to answer again if you come up with something else that I have not tried. Thank you so much

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@crazykbl

You might be iron deficiency you might be lacking in your magnesium and your electrical lights and you might need to be you might be dehydrated. Like B12 or focal and iron deficiency

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Everything you mentioned, I have had checked. Thank you so much for answering. It helps just knowing that people care.

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So sorry you are suffering like this. My understanding is the EMG test will be normal in the case of peripheral neuropathy that affects the small fibers. Wondering has your doctor mentioned Small Fiber Neuropathy as a possible cause of your pain?
As far as pain relief. Have you tried CBD/THC. I find helpful.

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@cc8

So sorry you are suffering like this. My understanding is the EMG test will be normal in the case of peripheral neuropathy that affects the small fibers. Wondering has your doctor mentioned Small Fiber Neuropathy as a possible cause of your pain?
As far as pain relief. Have you tried CBD/THC. I find helpful.

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Thank you for caring. Thank you for explaining that EMG does not show small Fiber nerve. My EMG was normal/negative. I cannot do the THC because of my other medicines, ….if that ever showed up in my urine test, they would Take the pain and sleep med. away even though it does so little.
Thank you so much

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I have a friend who needed ankle surgery and researched all the very best in the country - came up with Duke University. I know you had an L4-5 fusion not ankle surgery, but Duke may have some answers (this is just a shot in the dark, but maybe . . .)
This came up when I was searching:
https://physicians.dukehealth.org/articles/chronic-foot-ankle-pain-after-lumbar-decompression-surgery

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I think this was mentioned already, but small fiber neuropathy presents with a normal EMG because EMGs evaluate only the large fiber nerves. Small fiber nerves are responsible for sensation, temperature, pressure, and they also are involved with autonomic function.

Did you see a neurologist? I was initially misdiagnosed by the first neurologist I saw because for some strange reason she didn't consider small fiber neuropathy. You would want to look for a neuromuscular neurologist, or if you have a good relationship with your primary care provider you could work together to start looking into potential root causes (i.e. vitamin deficiencies) if it could be small fiber neuropathy because the wait for a neurologist could be long.

I have read that some estimate that 30% or more of SFN cases are "idiopathic," meaning of no known cause =/. That's where I ended up for years until I developed an autoimmune condition and a neurologist did an antibody test. She concluded it's likely I have autoimmune mediated small fiber neuropathy, but unfortunately there's not yet a known "cure" for it, just treatment, which is the same as what it would have been before we even knew it was likely autoimmune.

But it's still worth trying and searching for strategies and options to help with your quality of life and help you feel better. Wishing you all the best.

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@nancyc777
You can still have peripheral neuropathy, even though your nerve conduction study and such are normal.
50% of people who have normal EEG's for Epilepsy actually have the condition.
Take care,
Jake

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@jakedduck1

@nancyc777
You can still have peripheral neuropathy, even though your nerve conduction study and such are normal.
50% of people who have normal EEG's for Epilepsy actually have the condition.
Take care,
Jake

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Thank you for caring

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