1. < Bones, Joints & Muscles

Severe knee joint paint after Reclast infuaion?

Posted by louiemeyers @louiemeyers, Jul 7 10:47am

I had my first Reclast infusion last Tuesday. Starting yestersay (5 days later), every time I stand up my knee joints hurt extremely and I cant walk for 3-5 minutes, then I can walk but bottom half of legs feel heavy for another 2-3
Minutes. Then fine. Also some wrist
Pain that comes and goes. I have called my rheumatologist’s place
And a nurse will
Call back later today, but I am wondering if anyone else experienced this?

Interested in more discussions like this? Go to the Bones, Joints & Muscles Support Group.

2121 | @leslie2121 | Jul 7 7:12pm

I did! I had a Reclast infusion after Evenity injections to maintain the gains.
One knee swelled up significantly for several days, eventually returning to normal. I couldn’t put weight on it for almost a week.
My joints ached for many months.
That was almost 3 years ago.

REPLY
1 reply
louiemeyers | @louiemeyers | Jul 10 2:10pm
In reply to @leslie2121 "I did! I had a Reclast infusion after Evenity injections to maintain the gains. One knee..." + (show)
@leslie2121

I did! I had a Reclast infusion after Evenity injections to maintain the gains.
One knee swelled up significantly for several days, eventually returning to normal. I couldn’t put weight on it for almost a week.
My joints ached for many months.
That was almost 3 years ago.

Jump to this post

Thank you! I went to rheumatologist yestersay and he said I am in this 3 percent that gets this adverse reaction. He did further labs to check for a couple things

REPLY
dannyandebbie | @dannyandebbie | Jul 13 9:07am

If all the pain from the Reclast infusion goes away I would say that you are lucky; I have been 13 months and the pain in my shoulders can and does wake me up in the middle of the night!

REPLY
louiemeyers | @louiemeyers | Jul 14 10:12pm

I am so sorry! It’s weird; as sudden as all the pain came on it went away! Went to gym last night and all is good. Cant explain it. Hoping something doesnt come back but am aware it can for
Up to two months the nurse said

I am so sorr

REPLY
louiemeyers | @louiemeyers | Jul 14 10:13pm

I am so sorry you are experiencing pain in your shoulders. I had slight pain in one shoulder.

REPLY
choosejoy | @choosejoy | Jul 15 7:44am

Hello. I hope your post-Reclast side effects go away soon. My first infusion was on Feb 1 this year. I had the flu like symptoms for a few days as my doc had warned me of. But I also had extreme knee pain in both so I had to pull myself up the stairs using my arms on the railing. That continued, as well as other joints such as neck, hips, elbows and hands, for 2-3 weeks. Prior to my infusion, I’d been going to the gym 4 or 5 times a week. After 3 weeks I called my rheumatologist and she said to see another doc for imaging of my knees. I feel like the Reclast infusion really ramped up my areas of osteoarthritis. I will not repeat it yearly as was the original plan. Joints affected are about 50% better than those early days, but now I’m going to PT and wearing braces on knees. Exercising in the pool since it is a gentler way to try and keep up strength. I look forward to these side effects going away in time.
Best of health to you and 🙏 that you will not have lingering side effects.

REPLY
1 reply
fjeldbar | @fjeldbar | Jul 16 9:09am
In reply to @choosejoy "Hello. I hope your post-Reclast side effects go away soon. My first infusion was on Feb..." + (show)
@choosejoy

Hello. I hope your post-Reclast side effects go away soon. My first infusion was on Feb 1 this year. I had the flu like symptoms for a few days as my doc had warned me of. But I also had extreme knee pain in both so I had to pull myself up the stairs using my arms on the railing. That continued, as well as other joints such as neck, hips, elbows and hands, for 2-3 weeks. Prior to my infusion, I’d been going to the gym 4 or 5 times a week. After 3 weeks I called my rheumatologist and she said to see another doc for imaging of my knees. I feel like the Reclast infusion really ramped up my areas of osteoarthritis. I will not repeat it yearly as was the original plan. Joints affected are about 50% better than those early days, but now I’m going to PT and wearing braces on knees. Exercising in the pool since it is a gentler way to try and keep up strength. I look forward to these side effects going away in time.
Best of health to you and 🙏 that you will not have lingering side effects.

Jump to this post

I agree with your assessment! Pretty much the same
Experience after Reclast in November….But hopefully in a few months will have Dexa and see if my osteoporosis is any better or not worse!

REPLY
Please sign in or register to post a reply.