Severe Insomnia with Fibromyalgia - How to Cope

I totally understand because I experience the same thing. I can fall asleep easily then wake up with pain and that is the end of it. I have found that specific exercises I was given through physical therapy have helped me. When I wake up in the middle of the night I do these stretching exercises and movements and they actually do help me with pain accompanied by sleepiness and I can many times return to bed and sleep the rest of the night. I would suggest going to the web and entering exercises for fibromyalgia pain or something like that and see what you can find. These exercises and stretches help me more than any pain med. I hope you can get help to feel better.

So how does your day go. I fall asleep with no problem then the pain gets to a point that I toss and turn trying to get comfortable. Once I get up I just feel exhausted all day.

Hi. I still feel tired because it doesn't always work for me, that is every night. But at the times that the stretches in the middle of the night do enable me to return to sleep, of course I do have a better day; ;however, the pain follows me into the day, especially when the weather is changing. I also found that chiropractic help is valuable for me. I also find that if I work out the stretches and exercises at least once during the day, it continues to help with the pain. We all know there are no easy answers. This is just a simple thing that helps me. And all this stuff takes time. It is easy to get discouraged and tell myself I don't want to do this stuff anymore, and I think that is part of the disorder. We must try to stay focused on self-care. And I know from experience that the phrase "staying positive" does tend to get irritating when one is dealing with these things every night and every day. I hoe this will help you some.

I've had FM for 40 years. I take a clonazepam to go to sleep and like you wake up 3 or 4 hours later. I then take a half clonazepam which is my limit. I do go back to sleep usually but then it's waking up every hour and a trip to the bathroom. I also rub on A535 at night and also when I get up. I am 75 and am so tired of struggling with this pain. I don't know what is meant by flare because I've always got pain which just moves around. Yesterday mostly in my gluts, shoulders and neck, this morning in my shins (bad). The weather is so triggering. I hope you find an answer.

What is A535?

Yes! When I’m having flares I take 15 grams of melatonin and sometimes a CBD gummy (no THC-what makes you feel high) and still wake up 4 hours later in pain and needing to get up.

@jmenassaka I’m sorry to hear that you’re having so much pain, especially at night. What has your doctor said for you to do? Have you checked the other fibromyalgia support group pages?

Hi. They say to take melatonin and switched my seroquel from morning to night to help keep me asleep. I went off my flexeril this week and added methocarbamol in hopes it would keep the pain away long enough to sleep later.

I'm sorry, it's A535 rub. I find that has helped me more than anything else. When I wake in the night (3-7 times) I rub more of it on especially my legs and gluts now, FM changes where it will attack but it is constant pain for me. Drugs do not help except a low dose antibiotic. Try to use the rub, I've tried others but they don't work or have side effects.

I found A535 on Amazon but there is no mention of the ingredients. Can you find them on your product and share them? I want to see if this cream is similar to another one that I've used. thanks.