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Severe Hypnic headaches Relief?

Posted by taterjoy @taterjoy, Sep 1, 2016

I am trying to connect with others diagnosed with severe hypnic headaches (like cluster headaches, inflammatory types; occur at night during each state of REM sleep). Have been searching for others via two other internet-based sites for recalcitrant headaches of all types and have not yet found anyone. I would like to share experiences and find out what has helped others. My treatments help, but not always.

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Kay | @irvkay312 | Sep 1, 2016

Relative to experiences with that form of headache and even seizure--after<br>pressing for a sleep apnea test which proved negative; I pursued the matter<br>further. First, the peak of headache was always at the deepest part of my<br>sleep, also when I was most likely lightheaded on awakening.<br><br>I insisted the doctors involved place a programable Oximeter on my wrist at<br>bedtime. Consequently, results indicated "a Lower Oxygen content in my<br>blood, during the REM stage of sleep."<br><br>Prescribed by using Oxygen for sleep, as well as puchasing an Oximeter or<br>two and using Oxygen when necessary. The matter resolved itself after over<br>a years use of Oxygen during sleep and has not needed to be used at that<br>point since. I also feel that part of the matters resolution was in age<br>and body change since entering Hospice for Pancreatic Cancer. "I get a<br>full nights sleep and am rested in the morning, except for the fatigue<br>initiated by the cancer.<br><br>irvkay312 Mentor<br>

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2 replies
taterjoy | @taterjoy | Oct 20, 2016
In reply to @irvkay312 "Relative to experiences with that form of headache and even seizure--afterpressing for a sleep apnea test..." + (show)
@irvkay312

Relative to experiences with that form of headache and even seizure--after<br>pressing for a sleep apnea test which proved negative; I pursued the matter<br>further. First, the peak of headache was always at the deepest part of my<br>sleep, also when I was most likely lightheaded on awakening.<br><br>I insisted the doctors involved place a programable Oximeter on my wrist at<br>bedtime. Consequently, results indicated "a Lower Oxygen content in my<br>blood, during the REM stage of sleep."<br><br>Prescribed by using Oxygen for sleep, as well as puchasing an Oximeter or<br>two and using Oxygen when necessary. The matter resolved itself after over<br>a years use of Oxygen during sleep and has not needed to be used at that<br>point since. I also feel that part of the matters resolution was in age<br>and body change since entering Hospice for Pancreatic Cancer. "I get a<br>full nights sleep and am rested in the morning, except for the fatigue<br>initiated by the cancer.<br><br>irvkay312 Mentor<br>

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THank you for your reply irkkay312. I am so sorry you have pancreatic cancer, advanced stages. I did not see your post until tonight--I am so sorry. I will try using an oximeter at night to see if my O2 levels are aberrant during REM sleep! What a great idea! I'm glad it helped you and I Pray your cancer can and will go into remission. Thank you again for sharing your "test" and treatment!

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Barb | @amberpep | Oct 20, 2016
In reply to @irvkay312 "Relative to experiences with that form of headache and even seizure--afterpressing for a sleep apnea test..." + (show)
@irvkay312

Relative to experiences with that form of headache and even seizure--after<br>pressing for a sleep apnea test which proved negative; I pursued the matter<br>further. First, the peak of headache was always at the deepest part of my<br>sleep, also when I was most likely lightheaded on awakening.<br><br>I insisted the doctors involved place a programable Oximeter on my wrist at<br>bedtime. Consequently, results indicated "a Lower Oxygen content in my<br>blood, during the REM stage of sleep."<br><br>Prescribed by using Oxygen for sleep, as well as puchasing an Oximeter or<br>two and using Oxygen when necessary. The matter resolved itself after over<br>a years use of Oxygen during sleep and has not needed to be used at that<br>point since. I also feel that part of the matters resolution was in age<br>and body change since entering Hospice for Pancreatic Cancer. "I get a<br>full nights sleep and am rested in the morning, except for the fatigue<br>initiated by the cancer.<br><br>irvkay312 Mentor<br>

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Hi Kay ... I'm pretty new here, but I'm glad I saw your note in the Digest. Headaches can be debilitating, for sure. I get what they call "Ice pick headaches" which no one seems to understand.
My heart ached when I heard you were entering Hospice for Pancreatic Cancer. You sound like a very positive and brave soul and I admire your spunk.
My prayers will be with you, daily. I don't even know you, but God does and I've written your name down for AM and PM prayer and anytime I think of you. Please write when you can, and stay close, both to us and to those who love you.
abby

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