1. < Prostate Cancer

Severe coronary calcifications found incidentally on scan

Posted by round5 @round5, Mar 18 6:50am

Anyone have this show up in their PET/CT scan? It was not addressed during my doctors appointment which only addressed remission of cancer which was good. I found it later when I scrutinized the report. I sent a message to my doctor and their reply back was to see a cardiologist. You do definitely have to be your own advocate. And my scan and appointment was at Mayo Rochester.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

jeffMar | @jeffmarc | Mar 22 10:49am
In reply to @thmssllvn "I learned a valuable tip from watching the videos on You-Tube produced by the prostate cancer..." + (show)
@thmssllvn

I learned a valuable tip from watching the videos on You-Tube produced by the prostate cancer research institute (pcri.org). ''You may know more about your disease than the doctor." That was from a medical oncologist who has limited his practice to the prostate for twenty years! I can personally attest to being more informed than two clinicians. First the radiation oncologist did not know about the PROStox test by MiraDX. It is a genetic mouth swab test to determine whether the External Beam Radiation Therapy [EBERT] called SBRT poses a greater risk for delayed urinary tract symptoms. (RTOG>2). My $500 out of pocket test result showed that I had a LOW risk. Apparently 10-15% may be at HIGH risk.

Example 2 The medical oncologist was unaware of a study that 6 months of ADT was similar in results to 24-30 months [82% vs 88%) with high intensity radiotherapy. He looked it up on his smartphone and said we'll revisit our plans at six months if the ADT is tolerated. No ego involved. What I am emphasizing is to be proactive on the knowledge front. To quote 'Condoleezza RICE who paraphrased RR," Distrust and verify!" Maybe that is too strong but recommendations must be seen in the context of financial incentives of the employer. Well over 80% of providers are corporate.

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I am a little puzzled by this “ PROStox test by MiraDX”.

If you are having SBRT for bone mets, Then the radiation won’t be getting anywhere close to your bladder or other urinary organs to cause urinary problems. Is this test just designed for people who are having radiation on the prostate?

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thmssllvn | @thmssllvn | Mar 23 10:24am

PROStox is a genetic test designed to guide decisions for prostate gland confined disease and choosing the type of external beam radiation therapy. [SBRT vs IMRT.]Spot radiotherapy is not related to this test's purpose.

New information:
[IMRT] moderate fractioned RT of 20 visits is not inferior to standard higher dose RT of 40 visits
[SBRT] although the outcomes are the same as standard dose IMRT, GU symptoms > early after SBRT but return to baseline over time. If proven with further studies the utility of the PROStox may be obviated. SBRT though typically done in 5 session over 1.5 weeks may also be done weekly for 5 weeks.

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Moderator
Colleen Young, Connect Director | @colleenyoung | 5 days ago

Given the topic of this discussion, I thought I'd mention about a specialty called cadio-oncology.

Mayo Clinic offers expertise in addressing heart problems (called cardio-oncology), potential or current issues. The Cardio-Oncology Clinic (https://www.mayoclinic.org/departments-centers/cardio-oncology-clinic/overview/ovc-20442193) evaluates people prior to cancer treatment and patients who have experienced side effects due their treatment.

@round5, sounds like your situation is unrelated to your cancer diagnosis. There are heart related support groups on Mayo Clinic Connect if you wish to ask questions there. I think this one is the most relevant:
- Heart & Blood Health Support Group https://connect.mayoclinic.org/group/heart-blood-vessel-conditions/

Use the group's search to find discussions related to your questions.

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1 reply
round5 | @round5 | 4 days ago
In reply to @colleenyoung "Given the topic of this discussion, I thought I'd mention about a specialty called cadio-oncology. Mayo..." + (show)
@colleenyoung

Given the topic of this discussion, I thought I'd mention about a specialty called cadio-oncology.

Mayo Clinic offers expertise in addressing heart problems (called cardio-oncology), potential or current issues. The Cardio-Oncology Clinic (https://www.mayoclinic.org/departments-centers/cardio-oncology-clinic/overview/ovc-20442193) evaluates people prior to cancer treatment and patients who have experienced side effects due their treatment.

@round5, sounds like your situation is unrelated to your cancer diagnosis. There are heart related support groups on Mayo Clinic Connect if you wish to ask questions there. I think this one is the most relevant:
- Heart & Blood Health Support Group https://connect.mayoclinic.org/group/heart-blood-vessel-conditions/

Use the group's search to find discussions related to your questions.

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Thank you for the link however I would disagree with your statement
“ sounds like your situation is unrelated to your cancer diagnosis”
I say this because of all the multiple treatments I’ve had in the last 10 years and my lifestyle.
Surgery
60 months of Leuprolide
8 months of Zytiga
Bicalutamide
2 months salvage radiation 2019
2 months salvage radiation in 2021
Docetaxel
Carboplatin
Pluvicto
I have maintained my weight(175lbs.), continued to exercise daily(which includes jogging). Don’t smoke, very little alcohol and A moderately Healthy diet.
Would have this happened without the cancer and treatments? Possibly, but I don’t think so.

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1 reply
jeffMar | @jeffmarc | 4 days ago
In reply to @round5 "Thank you for the link however I would disagree with your statement “ sounds like your..." + (show)
@round5

Thank you for the link however I would disagree with your statement
“ sounds like your situation is unrelated to your cancer diagnosis”
I say this because of all the multiple treatments I’ve had in the last 10 years and my lifestyle.
Surgery
60 months of Leuprolide
8 months of Zytiga
Bicalutamide
2 months salvage radiation 2019
2 months salvage radiation in 2021
Docetaxel
Carboplatin
Pluvicto
I have maintained my weight(175lbs.), continued to exercise daily(which includes jogging). Don’t smoke, very little alcohol and A moderately Healthy diet.
Would have this happened without the cancer and treatments? Possibly, but I don’t think so.

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You really have me confused
You had
2 months salvage radiation 2019
2 months salvage radiation in 2021

The thing is salvage radiation to the prostate bed gives you the maximum lifetime radiation to that area. I’ve never heard of a salvage radiation that radiated a different part of the body. Did you mean you had SBRT in 2021 to zap some metastasis?

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1 reply
round5 | @round5 | 3 days ago
In reply to @jeffmarc "You really have me confused You had 2 months salvage radiation 2019 2 months salvage radiation..." + (show)
@jeffmarc

You really have me confused
You had
2 months salvage radiation 2019
2 months salvage radiation in 2021

The thing is salvage radiation to the prostate bed gives you the maximum lifetime radiation to that area. I’ve never heard of a salvage radiation that radiated a different part of the body. Did you mean you had SBRT in 2021 to zap some metastasis?

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Actually I did have a one time zap to a rib that I didn’t include but that was in addition to the other 2.
2019:36 fractions Prostate bed area etc.
Scan in 2021 showed areas higher up and just outside previous perimeter.
2021:25 fractions to upper abdomen area.

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