"Severe" cervical spine stenosis

Posted by hastobekatt @hastobekatt, 21 hours ago

I lost much of the use of my left hand about 16 months ago (the ability to 'adduct' my thumb to my fingers). MRIs showed multiple level stenosis and root compression- the worst being C7-T1 where the AP diameter was 5mm. I have hypermobile Ehlers Danlos Syndrome (EDS) - which probably caused my spinal issues as my spine has always been very hypermobile and I have multilevel lumbar stenosis too. But probably the EDS is more relevant because the incidence of ASD with EDS is very high. I also have two severe thrombophilia's (clotting disorders) which have nearly killed me. My surgeon wants to do a 3 possibly 4 level ACDF. I am VERY reluctant due to the above. (Better wonky than dead scenario). How bad is an AP of 5mm? Is watch and wait a realistic option? As an aside the 14/12 debate is due to personal circumstances - lost my sister and mum, dad diagnosed with end stage cancer and husband with cancer in the last 12 months....

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Sorry - that should be delay not debate! Autocorrect should be banned haha

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If you are in pain this procedure will help. Have you gotten a second opinion? Spine surgery is tough...and even tougher the older you are.

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No pain just loss of function.

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