What’s next: Seeking advice on how to navigate diagnosis appointments?
Hi there! I’ve been posting recently and Thank god I asked about the test and raised my concerns. Before Mayo, I’m flying to MD Anderson tomorrow. Ironically the only thing that anyone took seriously was the mircoandenoma but now it does seem like something is a fowl in my small bowel. Anything I can do to lower serotonin now to keep myself safe? Ok to take pancreatitis enzymes? Or supplements not to take? It’s crazy that this all started with one cortisol test that I ordered for myself in November when I had sudden weight loss…
Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
No, I am actually a patient at Mayo Clinic Jacksonville. However, I have followed him for years on various publications, videos and on line seminars. I hope you will be able to join in on Thursday!
Hey Phoebe, how are you doing? When do you head to Mayo Clinic?
Rick, are you and your wife at Mayo Clinic now? What stage of the "journey" are you at? In treatment or pre or post treatment?
Yes. Current patient in Rochester. Active treatment.
I missed the meeting. I'm sorry. Is there any recovery of lost time? I hope
@netpatient Hello Shakirat and to all members. I missed this live presentation as well, so I'm looking forward to viewing it.
Yes the meeting was recorded on the CCF Facebook Page. Here is the link,