Sensory Ganglionopathy help!!

I have had Sensory Ganglionopathy for a year now. It effects me walking and am bedridden a lot. I have no nerves left in my lower arms and legs. I have daily troubles of balance. I feel like I had a stroke with all of this. I have steady neuropathy in my hands and feet 24/7. Do not get a lot of sleep from this. Walker and wheelchair bound is all I know now. Had to learn how to walk all over again. The meds I take are Gabapentin and Savella. They mask the pain. I am in deep down depression. Need a support group to know I am not alone. And somebody who has this and can answer questions. There is barely any research on this. It is so rare it is comparable to pherpial neuropathy but my nerves will never come back. Thank you for reading. And would love some feedback on how you handle neuropathy.