Sensory axonal polyneuropathy Results

Your symptoms sound very painful. Can you say what the doctor said about the EMG results? Were you prescribed medication?

I feel for you. I have been diagnosed with small fiber neuropathy and severe senorimotor polyneuropathy. There’s another word in there. I have just started falling in January 2024. My feet have lost all muscle on them they feel like I am walking on rocks. I am allergic to gabapentin and I can’t take elevail due to my cardiac autonomic neuropathy. (can) The electrophsiologist worried about it dropping my blood pressure further causing falls. The upper part of my legs are starting to fell numb and I have lost my reflexes in my arms and legs. This disease is not fun. I am wait for my appointment on Feb 8. I want to try IViG therapy. I was on it as a child until I turned 18 and fell off my parts insurance. My understanding is it helps reverse the small fiber neuropathy and helps some of the peripheral neuropathy.

Well it sounds like we are same sames in many ways. I have been taking 9mg/ day of Gabapentin for about 14 years. Because of advanced pain i asked the doctor if I could try 12mg/day. I took the 12mg/day but didn’t feel any improvement only brain fog. Don’t need the fog only the brain. I’m back to the 9mg. I asked the doctor if it’s okay to try CBD oil. I have terrific neck pain. So I tried it. In about an hour 90% of the pain is gone. So happy but I try not to take it unless my pain is bad. The end of this month I’m seeing a pain mgmt doctor. I’m going to try steroid injections in my spine. Not happy about injections in the back but if it works that’s fine. You may want to get yourself a cane it should help or a walker. I have 3 canes scattered around my home. That makes me laugh because each evening and night my legs give in leaving me to look for a cane instead of grabbing walls etc. This neuropathy is quite a challenge for us all. Take care
Karen

Hi,
I had a hard time reading the results on individual nerves so the other day I asked for results that were understandable to a non-doctor person. The results are:
Sensory Axonal Polyneuropathy in legs. Also, evidence of a median neuropathy at the wrist.

Has anyone had any experience with axonal sensory Polyneuropathy? I have been to two neurologist with no real explanations as to what to expect or no real information. Jan 30 the Dr told me that with PT I should be able to walk with my walker within 2/3 months. Ain't gonna happen...I now can't even stand.

Hi! I was never promised I could walk after a few months, but I tried. I too was given no medical explanation for the PN that hit suddenly. But I was in a wheelchair, had a lot of physical therapy to make me stronger. After 6 months I was out of the wheelchair. Today I use the walker when out, but walk unassisted inside the house and in short walks (albeit not the most gracefully). I keep a cane nearby. I drive!

So yes, some of us can get back on our feet with physical therapy. We need to keep our muscles strong! Wishing you the best success in living with this unfortunate condition, while trying to remain positive.

Hi @joeys62, I combined your discussion with an existing discussion titled, "Sensory axonal polyneuropathy Results" - https://connect.mayoclinic.org/discussion/sensory-axonal-polyneuropathy-results/.

I did this so you could meet @irisjolie who recently posted their experience with getting diagnosed with axonal polyneuropathy as well.