Senior Assistance PN

Posted by kristin24 @kristin24, Aug 4, 2020

Hello. This might be a long shot since people like to be online more. My mom is 80 and she suffers from non diabetic pn. She does not know anything about the internet or even computers. With Covid, she doesn't really want to go anywhere afraid of getting sick. I can't offer her anything other than an ear because I do not have this. So I didn't know if there was anyone that would want to chat with her, over the phone, and share ideas and things that might or might not have helped. If no I understand. Thank you

G'day from sunny Australia. I have been requested by a couple of you to outline my habit change programme. The cause of my Peripheral-neuropathy is by courtesy of my Irish ancestors. Through intense research I now believe it can be reversed by the practice of Neuroplasticity. You must have this belief, then act on doing the hard work. Money can't buy the result we all desire. It is just us and our habit comfortable brain , to win or lose is our decision. We must change every possible rusted on habits. The brain has to triggered into new neurons. We can have fun as we attempt some changes.
Here is my current llist and am still increasing.
1.
I rearranged my bedroom (I live alone) Including bed being different position causing me get in and out from a different side, also change position of lamps, clothing etc.
2.
I am right handed, but now changed everything possible to left handed: Eating, teeth, cleaning, bum wiping, hair combing, writing, typing etc.
3.
Driving my car for my normal coffee break or any destination, I deliberately choose a new route.
4.
Due to isolation requirements, I can't leave my home, so I have decided to go barefoot, no socks or shoes.
5.
I have changed my eating times.To bed and getting up times.
6.
I have set my tv to sound oñly. This really jogs the brain, as you have to intensify your listening skills to understand the plot. News services are easy. I also do not use my remote to change channels.
7.
I am studying and practicing the great art of meditation, not mindfulness, but real fair dinkum meditating.

BENEFITS as yet. I fully understand that recovery will take time, but I am not getting any worse. Encouraging New signs have occured. I had a terrible itch in my back, making sleep at night a mini torture, NOW GONE TOTALLY. I still get the occasional itch, but refuse to scratch it. My brain now understands. I had a problem with the number of times, during the night, I need a pee.NOW REDUCED by 50%. I also had a problèm, during the day of urgency to pee. When I had to go, it was urgent and I mean urgent. NOW REAL URGENCY REDUCED. I am also feeling good mentally, as I fight this bloody thing.
Best wishes to all , and if you have any other habits I can change would be great.

REPLY
@user_che214927

G'day from sunny Australia. I have been requested by a couple of you to outline my habit change programme. The cause of my Peripheral-neuropathy is by courtesy of my Irish ancestors. Through intense research I now believe it can be reversed by the practice of Neuroplasticity. You must have this belief, then act on doing the hard work. Money can't buy the result we all desire. It is just us and our habit comfortable brain , to win or lose is our decision. We must change every possible rusted on habits. The brain has to triggered into new neurons. We can have fun as we attempt some changes.
Here is my current llist and am still increasing.
1.
I rearranged my bedroom (I live alone) Including bed being different position causing me get in and out from a different side, also change position of lamps, clothing etc.
2.
I am right handed, but now changed everything possible to left handed: Eating, teeth, cleaning, bum wiping, hair combing, writing, typing etc.
3.
Driving my car for my normal coffee break or any destination, I deliberately choose a new route.
4.
Due to isolation requirements, I can't leave my home, so I have decided to go barefoot, no socks or shoes.
5.
I have changed my eating times.To bed and getting up times.
6.
I have set my tv to sound oñly. This really jogs the brain, as you have to intensify your listening skills to understand the plot. News services are easy. I also do not use my remote to change channels.
7.
I am studying and practicing the great art of meditation, not mindfulness, but real fair dinkum meditating.

BENEFITS as yet. I fully understand that recovery will take time, but I am not getting any worse. Encouraging New signs have occured. I had a terrible itch in my back, making sleep at night a mini torture, NOW GONE TOTALLY. I still get the occasional itch, but refuse to scratch it. My brain now understands. I had a problem with the number of times, during the night, I need a pee.NOW REDUCED by 50%. I also had a problèm, during the day of urgency to pee. When I had to go, it was urgent and I mean urgent. NOW REAL URGENCY REDUCED. I am also feeling good mentally, as I fight this bloody thing.
Best wishes to all , and if you have any other habits I can change would be great.

Jump to this post

Hi Barry, thx so much for giving some great examples of your neuroplasticity endeavors! Can you please tell me if you have started one thing at a time and if so, for approximately how long before adding another exercise /change and then so on? Also, is or has any of this worked or been working for you? If so, to what degree of improvement have you had? Sorry for so many questions. Please just answer within your convenience and comfort level. Take good care and thank you for sharing! Many blessings, Sunnyflower

REPLY
@user_che214927

G'day from sunny Australia. I have been requested by a couple of you to outline my habit change programme. The cause of my Peripheral-neuropathy is by courtesy of my Irish ancestors. Through intense research I now believe it can be reversed by the practice of Neuroplasticity. You must have this belief, then act on doing the hard work. Money can't buy the result we all desire. It is just us and our habit comfortable brain , to win or lose is our decision. We must change every possible rusted on habits. The brain has to triggered into new neurons. We can have fun as we attempt some changes.
Here is my current llist and am still increasing.
1.
I rearranged my bedroom (I live alone) Including bed being different position causing me get in and out from a different side, also change position of lamps, clothing etc.
2.
I am right handed, but now changed everything possible to left handed: Eating, teeth, cleaning, bum wiping, hair combing, writing, typing etc.
3.
Driving my car for my normal coffee break or any destination, I deliberately choose a new route.
4.
Due to isolation requirements, I can't leave my home, so I have decided to go barefoot, no socks or shoes.
5.
I have changed my eating times.To bed and getting up times.
6.
I have set my tv to sound oñly. This really jogs the brain, as you have to intensify your listening skills to understand the plot. News services are easy. I also do not use my remote to change channels.
7.
I am studying and practicing the great art of meditation, not mindfulness, but real fair dinkum meditating.

BENEFITS as yet. I fully understand that recovery will take time, but I am not getting any worse. Encouraging New signs have occured. I had a terrible itch in my back, making sleep at night a mini torture, NOW GONE TOTALLY. I still get the occasional itch, but refuse to scratch it. My brain now understands. I had a problem with the number of times, during the night, I need a pee.NOW REDUCED by 50%. I also had a problèm, during the day of urgency to pee. When I had to go, it was urgent and I mean urgent. NOW REAL URGENCY REDUCED. I am also feeling good mentally, as I fight this bloody thing.
Best wishes to all , and if you have any other habits I can change would be great.

Jump to this post

Hi @user_che214927 Barry, I have gotten Dodge"s first book and will start it as soon as I finish the one I am on. Since reading your post a few minutes ago I have tried to change a few things. I am currently typing this with my left (opposite) hand as well as using the mouse that way as well. Boy, this is WORK! Not to mention it takes about ten times as long. I do see how my brain (and left arm) have to work harder. Simply trying to do everything with the opposite limb is a challenge. Thanks. Not sure how long I can keep this up. It's very interesting though. (OK, heading over to the reply button now, hope I make it there.) 😉 Best, Hank

REPLY

Congratulations Hank! A great start, Now Hank there are no ifs and or buts, you HAVE TO stck with this change permanently, wherby its your choice. If you wear a wrist watch,
put on the other wrist, or if you use your mobil to check the time, put a watch baçk on your not normal wrist, anvd leave your mob in your not normal pocket. You are in in charge, just push your brain to do what you expect want it to do: creating new neurons, beating your problem. Get the whip out Hank, just go for it. I'm on your side.

REPLY
@user_che214927

G'day from sunny Australia. I have been requested by a couple of you to outline my habit change programme. The cause of my Peripheral-neuropathy is by courtesy of my Irish ancestors. Through intense research I now believe it can be reversed by the practice of Neuroplasticity. You must have this belief, then act on doing the hard work. Money can't buy the result we all desire. It is just us and our habit comfortable brain , to win or lose is our decision. We must change every possible rusted on habits. The brain has to triggered into new neurons. We can have fun as we attempt some changes.
Here is my current llist and am still increasing.
1.
I rearranged my bedroom (I live alone) Including bed being different position causing me get in and out from a different side, also change position of lamps, clothing etc.
2.
I am right handed, but now changed everything possible to left handed: Eating, teeth, cleaning, bum wiping, hair combing, writing, typing etc.
3.
Driving my car for my normal coffee break or any destination, I deliberately choose a new route.
4.
Due to isolation requirements, I can't leave my home, so I have decided to go barefoot, no socks or shoes.
5.
I have changed my eating times.To bed and getting up times.
6.
I have set my tv to sound oñly. This really jogs the brain, as you have to intensify your listening skills to understand the plot. News services are easy. I also do not use my remote to change channels.
7.
I am studying and practicing the great art of meditation, not mindfulness, but real fair dinkum meditating.

BENEFITS as yet. I fully understand that recovery will take time, but I am not getting any worse. Encouraging New signs have occured. I had a terrible itch in my back, making sleep at night a mini torture, NOW GONE TOTALLY. I still get the occasional itch, but refuse to scratch it. My brain now understands. I had a problem with the number of times, during the night, I need a pee.NOW REDUCED by 50%. I also had a problèm, during the day of urgency to pee. When I had to go, it was urgent and I mean urgent. NOW REAL URGENCY REDUCED. I am also feeling good mentally, as I fight this bloody thing.
Best wishes to all , and if you have any other habits I can change would be great.

Jump to this post

@user_che214927 Congratulations Barry on being progressive with your overall health!! 🎉🎉🎉🎉🎉🎉

Not only do your changes challenge your brain to create new healthy neurons and help neuropathy but, also for memory, aging and your overall health. Good for you for not sitting around complaining or feeling sorry for yourself! You definitely are a part of my many inspirations from Connect. 😊

I've implemented challenges, some by default, when one limb is paining I use the other, for example, if I want to drive, I must drive with my left leg or switch legs during the trip, but I get it done in short distances with a little more as I can. I could not drive for months and I dont care if it takes me another year or two, I will keep pushing for progress. Also, I eat with my left when need be because my shoulders/arms/hands burn with pain, pins/needles, weakness and numbness. I've been pushing my legs to walk more and more as tolerated. Some days I walk in more pain than others. Instead of not doing it, I do it with provisions. That means I walk very slow, stop to stand and give my legs a chance to "re-juice", as I call it. I rest or sit, or pull my legs up and down or rub them, then keep walking. Last sping my legs began to fail. Coming out of winter I could not walk around my yard without pain and weakness that sent me to the ground. I thought my legs would never carry me to enjoy my flowers and landscape but, with A LOT of hard work, weekly myofascial release treatments and a crap load of supplements, I talk myself through it and keep pushing. I've made great progress since last year when I could barely walk across my living room. I've recently been able to walk through Target again after needing the electric scooter prior. It is not easy and my legs feel abnormal but I manage as best I can. I've pulled myself out of a depressive state filled with fear and realized I've got what I got and I refuse to let it define me. Taking new routes, learning new music or a language, traveling to see new sights, restructuring your day or routine. There are so many possibilities for each person's unique case.

Barry – keep up the good work. 💪🏼👍🏻
Others – please challenge yourselves, as tolerated, and push for progress in some way, shape or form. We CAN'T be defined by our pain and diagnosis(s) unless we allow ourselves to succumb, which is not acceptable. It takes hard work and dedication but..
YOU ARE WORTH IT…WE ARE WORTH IT.

Be well,
Rachel

REPLY
@rwinney

@user_che214927 Congratulations Barry on being progressive with your overall health!! 🎉🎉🎉🎉🎉🎉

Not only do your changes challenge your brain to create new healthy neurons and help neuropathy but, also for memory, aging and your overall health. Good for you for not sitting around complaining or feeling sorry for yourself! You definitely are a part of my many inspirations from Connect. 😊

I've implemented challenges, some by default, when one limb is paining I use the other, for example, if I want to drive, I must drive with my left leg or switch legs during the trip, but I get it done in short distances with a little more as I can. I could not drive for months and I dont care if it takes me another year or two, I will keep pushing for progress. Also, I eat with my left when need be because my shoulders/arms/hands burn with pain, pins/needles, weakness and numbness. I've been pushing my legs to walk more and more as tolerated. Some days I walk in more pain than others. Instead of not doing it, I do it with provisions. That means I walk very slow, stop to stand and give my legs a chance to "re-juice", as I call it. I rest or sit, or pull my legs up and down or rub them, then keep walking. Last sping my legs began to fail. Coming out of winter I could not walk around my yard without pain and weakness that sent me to the ground. I thought my legs would never carry me to enjoy my flowers and landscape but, with A LOT of hard work, weekly myofascial release treatments and a crap load of supplements, I talk myself through it and keep pushing. I've made great progress since last year when I could barely walk across my living room. I've recently been able to walk through Target again after needing the electric scooter prior. It is not easy and my legs feel abnormal but I manage as best I can. I've pulled myself out of a depressive state filled with fear and realized I've got what I got and I refuse to let it define me. Taking new routes, learning new music or a language, traveling to see new sights, restructuring your day or routine. There are so many possibilities for each person's unique case.

Barry – keep up the good work. 💪🏼👍🏻
Others – please challenge yourselves, as tolerated, and push for progress in some way, shape or form. We CAN'T be defined by our pain and diagnosis(s) unless we allow ourselves to succumb, which is not acceptable. It takes hard work and dedication but..
YOU ARE WORTH IT…WE ARE WORTH IT.

Be well,
Rachel

Jump to this post

@rwinney I agree, Barry is quite inspiring, I am learning some new things thanks to you @user_che214927 Barry! But you, Rachel, are a marvel! My mind is boggled by your descriptions of your exploits, getting around and just doing normal stuff. What a great spirit you possess! (You two are making me wear out my ! button.)

Boy, this typing/mousing with the opposite hand is crazy but SO interesting. I guess if I start getting too good at this with my non dominant hand the next thing will be starting to use my feet. I remember a person at a carnival I went to as a kid who had no arms and he did everything with his feet and mouth. He just trained himself to do it, so really there is almost no limit what a person can achieve merely by trying and applying him or her self. Have a great day! Hank

REPLY
@rwinney

@user_che214927 Congratulations Barry on being progressive with your overall health!! 🎉🎉🎉🎉🎉🎉

Not only do your changes challenge your brain to create new healthy neurons and help neuropathy but, also for memory, aging and your overall health. Good for you for not sitting around complaining or feeling sorry for yourself! You definitely are a part of my many inspirations from Connect. 😊

I've implemented challenges, some by default, when one limb is paining I use the other, for example, if I want to drive, I must drive with my left leg or switch legs during the trip, but I get it done in short distances with a little more as I can. I could not drive for months and I dont care if it takes me another year or two, I will keep pushing for progress. Also, I eat with my left when need be because my shoulders/arms/hands burn with pain, pins/needles, weakness and numbness. I've been pushing my legs to walk more and more as tolerated. Some days I walk in more pain than others. Instead of not doing it, I do it with provisions. That means I walk very slow, stop to stand and give my legs a chance to "re-juice", as I call it. I rest or sit, or pull my legs up and down or rub them, then keep walking. Last sping my legs began to fail. Coming out of winter I could not walk around my yard without pain and weakness that sent me to the ground. I thought my legs would never carry me to enjoy my flowers and landscape but, with A LOT of hard work, weekly myofascial release treatments and a crap load of supplements, I talk myself through it and keep pushing. I've made great progress since last year when I could barely walk across my living room. I've recently been able to walk through Target again after needing the electric scooter prior. It is not easy and my legs feel abnormal but I manage as best I can. I've pulled myself out of a depressive state filled with fear and realized I've got what I got and I refuse to let it define me. Taking new routes, learning new music or a language, traveling to see new sights, restructuring your day or routine. There are so many possibilities for each person's unique case.

Barry – keep up the good work. 💪🏼👍🏻
Others – please challenge yourselves, as tolerated, and push for progress in some way, shape or form. We CAN'T be defined by our pain and diagnosis(s) unless we allow ourselves to succumb, which is not acceptable. It takes hard work and dedication but..
YOU ARE WORTH IT…WE ARE WORTH IT.

Be well,
Rachel

Jump to this post

@user_che214927 @rwinney @jesfactsmon And of course to all my Neuropathy Friends, Man, the posts are so inspirational today! How I needed to read them! I am going to try some neuro plasticity techniques, starting with typing with the opposite hand. I may do this when I am in terrible pain, and hopefully, it will utterly confuse my brain. Sometimes I try to concentrate on a body part close to my feet, and how wonderful that body part is. But that does not do much. I don 't know, because I am not consistent. Rachel, I can't tell you how happy how hard you try. I would have a terrible time not hugging you in person. With covid, we would have to bump butts or something, and I would surely knock you over with my big one. God, Rachel, I am just so proud of you. And Hank, typing with your other hand? What a hoot. Now, Barry, I am the one who asked for you to post the things that help you. Little did I know how far you are going with neuro plastic techniques, and feeling better. You are just a joy, and an inspiration!!! You have created excitement here!!! Thanks so much. I am going to go reread everything you do, and try practicing everything. Of course, I will go to my library and pick up Norman Doidge's books. Just thank you so much, Barry. You are adorable. Love to all, Lori Renee

REPLY
@jesfactsmon

@rwinney I agree, Barry is quite inspiring, I am learning some new things thanks to you @user_che214927 Barry! But you, Rachel, are a marvel! My mind is boggled by your descriptions of your exploits, getting around and just doing normal stuff. What a great spirit you possess! (You two are making me wear out my ! button.)

Boy, this typing/mousing with the opposite hand is crazy but SO interesting. I guess if I start getting too good at this with my non dominant hand the next thing will be starting to use my feet. I remember a person at a carnival I went to as a kid who had no arms and he did everything with his feet and mouth. He just trained himself to do it, so really there is almost no limit what a person can achieve merely by trying and applying him or her self. Have a great day! Hank

Jump to this post

@jesfactsmon Thank you Hank! You've been an inspiration to me too. The way you care, research, help, respond. It's definitely a journey and not always easy. So true about the carnival person. That is what I call, a fighting spirit!
Best wishes to you and Linda. Here are some flowers for her (in case you never got them 😉).
Be well,
Rachel

REPLY
@lorirenee1

@user_che214927 @rwinney @jesfactsmon And of course to all my Neuropathy Friends, Man, the posts are so inspirational today! How I needed to read them! I am going to try some neuro plasticity techniques, starting with typing with the opposite hand. I may do this when I am in terrible pain, and hopefully, it will utterly confuse my brain. Sometimes I try to concentrate on a body part close to my feet, and how wonderful that body part is. But that does not do much. I don 't know, because I am not consistent. Rachel, I can't tell you how happy how hard you try. I would have a terrible time not hugging you in person. With covid, we would have to bump butts or something, and I would surely knock you over with my big one. God, Rachel, I am just so proud of you. And Hank, typing with your other hand? What a hoot. Now, Barry, I am the one who asked for you to post the things that help you. Little did I know how far you are going with neuro plastic techniques, and feeling better. You are just a joy, and an inspiration!!! You have created excitement here!!! Thanks so much. I am going to go reread everything you do, and try practicing everything. Of course, I will go to my library and pick up Norman Doidge's books. Just thank you so much, Barry. You are adorable. Love to all, Lori Renee

Jump to this post

@lorirenee1 Lol! My, my how you make me laugh! Oh, I would totally hug you in person too. We all need a boost some days and I know you especially do. If I can ever help you or anyone, Im glad to do it. Wishing you good distraction today, and flowers for you too my friend. XOXOXO
Best wishes,
Rachel

REPLY
@rwinney

@jesfactsmon Thank you Hank! You've been an inspiration to me too. The way you care, research, help, respond. It's definitely a journey and not always easy. So true about the carnival person. That is what I call, a fighting spirit!
Best wishes to you and Linda. Here are some flowers for her (in case you never got them 😉).
Be well,
Rachel

Jump to this post

@rwinney I was GOING to get her those flowers, I WAS. But at the store I figured she'll just worry they are infected with Covid so I didn't. And that is the God's honest truth. I am going to show these photos to her. Boy, it's so dramatic the way these shots come in so huge on Connect! Thanks Rachel ol' pal, Hank

REPLY
@lorirenee1

@user_che214927 @rwinney @jesfactsmon And of course to all my Neuropathy Friends, Man, the posts are so inspirational today! How I needed to read them! I am going to try some neuro plasticity techniques, starting with typing with the opposite hand. I may do this when I am in terrible pain, and hopefully, it will utterly confuse my brain. Sometimes I try to concentrate on a body part close to my feet, and how wonderful that body part is. But that does not do much. I don 't know, because I am not consistent. Rachel, I can't tell you how happy how hard you try. I would have a terrible time not hugging you in person. With covid, we would have to bump butts or something, and I would surely knock you over with my big one. God, Rachel, I am just so proud of you. And Hank, typing with your other hand? What a hoot. Now, Barry, I am the one who asked for you to post the things that help you. Little did I know how far you are going with neuro plastic techniques, and feeling better. You are just a joy, and an inspiration!!! You have created excitement here!!! Thanks so much. I am going to go reread everything you do, and try practicing everything. Of course, I will go to my library and pick up Norman Doidge's books. Just thank you so much, Barry. You are adorable. Love to all, Lori Renee

Jump to this post

Hey @lorirenee1 Lori, if anybody will go out of their way to try something new to help those rascally feet, it's you. (I am switching to my dominant hand this second as writing the other way is frustratingly slow.) You got a LOT of heart, and SPUNK, kid. And unlike Lou Grant, I LOVE spunk (Mary Tyler Moore Show reference) . And guess what? I'd hug you no problem. I personally am getting pretty sick and tired of all these ridiculous restrictions. I know, not ridiculous for everyone. Mostly just us oldies. But I would take that risk. Always lifts my day whenever you chime in here my good friend. Best to you, Hank

PS: In another post I asked whether you have ever tried cayenne pepper on your feet? I am not sure I have heard anyone here say that they have. I figured you might have though.

REPLY
@user_che214927

G'day from sunny Australia. I have been requested by a couple of you to outline my habit change programme. The cause of my Peripheral-neuropathy is by courtesy of my Irish ancestors. Through intense research I now believe it can be reversed by the practice of Neuroplasticity. You must have this belief, then act on doing the hard work. Money can't buy the result we all desire. It is just us and our habit comfortable brain , to win or lose is our decision. We must change every possible rusted on habits. The brain has to triggered into new neurons. We can have fun as we attempt some changes.
Here is my current llist and am still increasing.
1.
I rearranged my bedroom (I live alone) Including bed being different position causing me get in and out from a different side, also change position of lamps, clothing etc.
2.
I am right handed, but now changed everything possible to left handed: Eating, teeth, cleaning, bum wiping, hair combing, writing, typing etc.
3.
Driving my car for my normal coffee break or any destination, I deliberately choose a new route.
4.
Due to isolation requirements, I can't leave my home, so I have decided to go barefoot, no socks or shoes.
5.
I have changed my eating times.To bed and getting up times.
6.
I have set my tv to sound oñly. This really jogs the brain, as you have to intensify your listening skills to understand the plot. News services are easy. I also do not use my remote to change channels.
7.
I am studying and practicing the great art of meditation, not mindfulness, but real fair dinkum meditating.

BENEFITS as yet. I fully understand that recovery will take time, but I am not getting any worse. Encouraging New signs have occured. I had a terrible itch in my back, making sleep at night a mini torture, NOW GONE TOTALLY. I still get the occasional itch, but refuse to scratch it. My brain now understands. I had a problem with the number of times, during the night, I need a pee.NOW REDUCED by 50%. I also had a problèm, during the day of urgency to pee. When I had to go, it was urgent and I mean urgent. NOW REAL URGENCY REDUCED. I am also feeling good mentally, as I fight this bloody thing.
Best wishes to all , and if you have any other habits I can change would be great.

Jump to this post

@user_che214927 Mind is a builder

REPLY
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