Could my seemingly unrelated symptoms be the sign of something larger?

Posted by tzarrelli95 @tzarrelli95, 2 days ago

Hello all,

I have been struggling with my health for the last 15+ years. I've gone from doctor to doctor, tried medication to medication, tried every type of therapy and nothing has worked. I finally have been accepted at Mayo and will be going to Minnesota this December. I want to share my list of symptoms:
Chronic diarrhea
Chronic nausea
Chronic abdominal pain
Chronic severe gas
Chronic acid reflux
Weight gain
Low libido
Abdominal distension
Metallic taste in mouth
Rash
Tachycardia
Anxiety
Depression
Panic disorder
Agoraphobia
Fibromyalgia
Chronic fatigue
Chronic joint inflammation
Chronic join pain
Brain fog
Confusion
Trouble concentrating
Forgetfullness
Hot flashes
Headache
Tremors
Sleep apnea

All are seemingly unrelated, until, my gastroenterologist(who has tested me for everything) now feels my IBS-D is the side effect of something much larger. The stomach issues are my primary issue and incapacitate me. The thought now is this may be autoimmune or some hereditary illness. Curious if anyone else has similar symptoms and how you manage to stay positive on the darkest of days.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

@tzarrelli95
How old are you? What testing and bloodwork have you had and what results are abnormal?

Did you have an endoscopy and colonoscopy? Did you have an abdominal ultrasound and HIDA scan to check gallbladder function?

Do you have autoimmune issues in your family? Did you have your thyroid fully checked with bloodwork and ultrasound?

Did you have hormone and allergy testing?

Did you have Covid and the mRNA shots?

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Hope you get answers with a diagnosis. Have you been
triaged to a specialist group or the general internist.?
We’re you tested for autonomic neuropathy?

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Profile picture for seniormed @seniormed

Hope you get answers with a diagnosis. Have you been
triaged to a specialist group or the general internist.?
We’re you tested for autonomic neuropathy?

Jump to this post

Thankfully, I'll be seeing one at Mayo in December. Hopefully, they can shed some light on this.

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Profile picture for dlydailyhope @dlydailyhope

@tzarrelli95
How old are you? What testing and bloodwork have you had and what results are abnormal?

Did you have an endoscopy and colonoscopy? Did you have an abdominal ultrasound and HIDA scan to check gallbladder function?

Do you have autoimmune issues in your family? Did you have your thyroid fully checked with bloodwork and ultrasound?

Did you have hormone and allergy testing?

Did you have Covid and the mRNA shots?

Jump to this post

I'm 30. All bloodwork I have had done show no significant abnormalities. Physically, I present with symptoms of an autoimmune disorder, but the bloodwork shows otherwise. I've had several colonoscopies, endoscopies and ultrasounds. I have also had a HIDA scan which at one point showed slight abnormalities and then it returned to normal. I've had a complete hormone and genetic work up. The only thing the hormone showed was low testosterone. I have had the covid vaccines x3.

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Sorry you’re suffering, first of all. I’m wondering if you’ve had a Thyroid Panel on your blood. Have your TSH, T3-free, T4-free, TPO Antibodies and reverse T3 checked. You may have a thyroid condition which causes some of those symptoms. I have Hashimoto’s with Hypothyroidism and take Synthroid to control the Hypothyroidism. I’ve eliminated eating gluten, dairy and soy to control my Hashimoto’s. I would also ask if you’ve had Covid. It could be Long Covid, which I have and it’s hard to diagnose. You should also have a colonoscopy to see if you have polyps. I have had 18” of my colon removed due to severe diverticulitis. The severe diarrhea you’re having could definitely be your colon. Glad you’re seeing someone soon about this. Good luck!

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Hi @tzarrelli95. Welcome to Mayo Clinic Connect! You are in a good, safe space to work through connecting dots of your all-over ickiness. It sounds like your ability to persevere is helping you make progress. Keep it up!

I want to specifically address your questions, “Curious if anyone else has similar symptoms and how you manage to stay positive on the darkest of days.”

- I related to quite a bit you mention, literally. I hit a systemic circulation crisis a few years ago and Mayo Clinic, MN has walked me through improving my daily ability to function. It warms my heart to know you plan to see what their integrative approach may do for you. I was told it would be a marathon, and that has been an understatement.
- Staying positive is a choice, each and every day. This is not always possible but I knew I did not have any other choice. I went in circles for a long, long time. Though what it looks like changes, staying focused on literally the next, best thing has kept me moving forward.
- The dark days? Accept you will have them. Know you are not alone. Reach out here. Decide if you want to stay where you are or if you want to change, then focus on what you decide. Get up every day and look forward.

Before I landed at Mayo Clinic I was going in circles. At some point I began I regularly assessing my “quality of life” using a questionnaire used in health care settings. It helped me know my standards were drastically different than my doctors. Also, I began to see where things were changing and where I needed help. Once I got to Mayo, they took over and I chose to buy into their process. We have been addressing symptoms one at a time, and I continue to make incremental progress.

How is your day-to-day currently impacted? What are things you are doing to stay as healthy, active and joyful as you can?

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Hi,
I'm so sorry that you have such a combination of awful symptoms! And, with all the doctors and tests nothing seems to point to what the problem is! Have you looked up the side effects of all of your medications and any tests or vaccines you've had? That may give you some idea of what is going on with your body. My husband had lung cancer and many times when he had issues, the doctors couldn't figure out what was wrong but when I looked up the side effects they were often causing the problem that the doctor didn't see. Perhaps you may want to look up the side effects before you go to the Mayo Clinic. Any information you obtain from the side effects could help the doctor figure out what is happening with your body. Also, these days doctors are extremely busy and don't always have time to look up side effects of medications, etc.
One of your symptoms is brain fog. My husband had that when they gave him the wrong medication with his CT scan! We found a home remedy online that got rid of his brain fog. It was just drinking Gatorade and lots of water. (Separately.) He did that everyday and eventually his brain fog went away.

Also ask God for help. He made you and he can fix you! I'll say a prayer for you too.
I wish you the best.
PML

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Profile picture for tzarrelli95 @tzarrelli95

I'm 30. All bloodwork I have had done show no significant abnormalities. Physically, I present with symptoms of an autoimmune disorder, but the bloodwork shows otherwise. I've had several colonoscopies, endoscopies and ultrasounds. I have also had a HIDA scan which at one point showed slight abnormalities and then it returned to normal. I've had a complete hormone and genetic work up. The only thing the hormone showed was low testosterone. I have had the covid vaccines x3.

Jump to this post

@tzarrelli95

There are quite a few different blood tests.. starting with CBC..to twenty others...so My advice and experience is you want to get a hematologist.Involved as quickly is possible because they know how to read and interpret things that other general doctors do not!

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