Seeking advice

Posted by freespirit60 @freespirit60, 12 hours ago

When one has MGUS and osteoporosis that is causing immense bone pain especially in the joints and large bones, plus tingling and muscle spasms, what do you advise the person to do?
I saw my HemoOnc last June. He did not take my complaints seriously. He only told me that my blood work is stable and he will see me again in one year. The bone pains have worsened. I called his office to request a follow up appointment but his nurse told me that she’s sorry, they can’t see me again till next June even after I explained my symptoms to her. What do you all advise me to do?
Thanks for your help!

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talltxlady | @talltxlady | 4 hours ago

That's insane they won't make an appointment for you. If it were me, I'd seek out another doctor for a second opinion.

dickmm | @dickmm | 1 hour ago

Get a new doctor

wesleym | @wesleym | 1 hour ago

God knows I'm not defending callous or curt physicians - or anyone else, for that matter. But the pain you experience may simply not be due to MGUS, especially joint pain - and ESPECIALLY if you also have osteoporosis. Are you seeing a rheumatologist or endocrinologist for the osteo? Have you asked them about increasing pain?

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