Second Reclast infusion

dannyanddebbie, I've been spending this morning reading all the negative posts regarding Reclast, and getting more and more depressed. You said your endocrinologist said that the Reclast did not cause the side effects you're experiencing and you should consult a rheumatologist. I've had three or four doctors tell me it's not the Reclast. These are endocrinologists, rheumatologists, gastroenterologists and my family doctor. And I guarantee you the denosumab doctor will tell you the same thing. They are all reading from the same playbook. If they weren't, they would suggest I come to their office so they could run some tests and figure out what is causing all these side effects that popped up the day after I had the Reclast infusion.
I've been dealing with these side effects since February 21, 2023. I'm going to see another rheumatologist this coming Friday. She works out of an orthopedic hospital. That's all they do is orthopedic surgeries. Maybe she has more experience with Reclast side effects. I hope she has some answers for me. If she greets me with "It's not the Reclast," I'll know I'm wasting my time.

One more point I wanted to make...What good does it do to have strong bones when all of your bones and joints and muscles hurt to the point you don't even want to walk.

One thing I feel is my Endocrinologist is specialized in Bone density and do what they have to in order to increase one’s density, not pain management. I connected with my Rheumatologist and she shared that she did not feel there was anything that she could do for me and my aches and pains! I am at my worst upon waking in the morning. Sometimes I can not move my right arm without help and I Always find this arm above my head upon waking; thought about duck tapping my arm to my side at night but Physical therapist say not to do that; need to exercise it more. Some days I just feel totally exhausted from the pain and lack of quality sleep; sometimes I wake 5-6 times a night because my arm slipped off my hip or fell from being over my head and wakes me up instantly.
Do remember, Anything we put into our bodies has its side effects! I honestly don’t know what I am going to do; I keep hoping this pain will simmer down and let me get a good nights sleep. Good luck at your appointment, perhaps you might be willing to share your finding? Prayers for pain relief and feeling better!

Yes, dannyandebbie, I,ll let you know next week after my appointment. She came highly recommended by an allergist/immunologist that I had an appointment with. We shall see.

Dannyandebbie, First of all, I cracked up when I read that you wanted to duck tape your arm to your side at night. Ha!! It's sad that we want to resort to McGiver techniques to get relief from the pain.
As I mentioned, I went to another Rheumatologist this past Friday. I was afraid she was going to say "It's not the Reclast." She stopped short of that, probably because I mentioned that that was what I had been hearing for a year and a half. Instead she said basically that we should forget about the Reclast and zero in on fixing the side effects. And she did listen carefully to my complaints of severe dizziness and sometimes excruciating pain in my right foot. She kind of ignored my other side effects, but if she can fix those two it will be a step in the right direction.
But I don't want to just fix the side effects, I want a doctor to tell me it was the Reclast. I'm convinced it was because I didn't have these problems before the Reclast. And since then I've read more about the side effects in these connect pages and outside sources. Took me awhile to accept that it was the Reclast causing the problems, especially since several doctors said, "It's not the Reclast." How dare they.
So I have a follow up visit with her, but not for three months. Hard to get doctors appointments these days. I'm going to push her for a definitive answer to the question,"Is it the Reclast?" If I can't get it from her I'm going to continue on my quest to find a doctor who recognizes the horrible side effects of this drug. I feel like there are a whole lot of people out there who are trying to protect it, either for the drug company's sake or the doctor's sake.