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Second MRI after biopsy Nottingham level 2: Wait time is killing me

Posted by flygirl747 @flygirl747, Feb 10 2:00pm

Diagnosed with breast cancer. The radiologist wants a second MRI but wait time is seven weeks. Waiting and wondering how long this process takes before surgery. The waiting is literally killing me.

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flygirl747 | @flygirl747 | Feb 12 2:10pm
In reply to @jlgc "So stressful not getting responses and not knowing what to do next. Suggest you line up..." + (show)
@jlgc

So stressful not getting responses and not knowing what to do next. Suggest you line up your team, surgeon for biopsy and potential lumpectomy, oncologist for medical follow-up, radiation oncologist for follow -up XRT.
Also check out this link regarding Nottingham grades from Breast Cancer.org written by a physician at Mayo Clinic, Jacksonville, Fl. This should help you understand and be prepared with questions for the team you are gonna put together.
Good luck and please keep us posted on your progress. 🤗 🥰

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Thank you. I have read the Nottingham grades from a few different sources. I have had a biopsy.
Mayo Jacksonville seems to be over committed.
After my biopsy report I was told to call for another MRI when I had just had one two weeks earlier. Finally straightened that out. I have appt for oncology nurse navigator and with surgeon end of March consult. They will give me no time frame as to when the surgeon has time for surgery. All I was told it depends on need.

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jlgc | @jlgc | Feb 12 5:07pm
In reply to @flygirl747 "Thank you. I have read the Nottingham grades from a few different sources. I have had..." + (show)
@flygirl747

Thank you. I have read the Nottingham grades from a few different sources. I have had a biopsy.
Mayo Jacksonville seems to be over committed.
After my biopsy report I was told to call for another MRI when I had just had one two weeks earlier. Finally straightened that out. I have appt for oncology nurse navigator and with surgeon end of March consult. They will give me no time frame as to when the surgeon has time for surgery. All I was told it depends on need.

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Sounds like they are overbooked as you say. Would you have the ability to go to a larger facility with more breast surgeons or even large out of state teaching facility. If it’s lumpectomy then it’s usually day surgery and basically quick physical recovery.
You say they thought you were DCIS Nottingham 2 which from what I quickly discerned is not that fast growing although I agree the many weeks you have to wait seems daunting. There is no indication of DCIS Invasive correct?
They will decide on your urgency based on historical data and the oncology NP shld be able to answer your questions about timing.(when you finally get to see her)

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flygirl747 | @flygirl747 | Feb 12 9:55pm

It's a moving target. It is now invasive and Stage 1.

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flygirl747 | @flygirl747 | Feb 13 11:30am
In reply to @auntieoakley "Hello @flygirl1747 I am so sorry this is happening to you! I actually do know how..." + (show)
@auntieoakley

Hello @flygirl1747 I am so sorry this is happening to you! I actually do know how stressful this can be. That being said, try to just breathe a bit, I like to take in a really deep breath and blow it out forcefully like I am blowing out the stress. Sadly sometime I require multiple breaths to calm a bit.
When you say radiologist, do you mean a radiology oncologist? This is the type of doctor that would coordinate your radiation treatments if that is what is being recommended.
I will say that even though I had a quite aggressive type of cancer, it was still eleven weeks from biopsy to first treatment, and that was when I still had a pretty great insurance and I had multiple doctors willing to see me.
Today there is a shortage of doctors and technicians all leading to longer wait times.
Please keep asking for any cancellation schedules, or referrals to get a sooner appointment, but please don’t panic. In terms of BC, seven weeks isn’t (always) significant, even if it feels like it to us.
Have you tried calling directly to the appointment coordinator to make your plea?

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Thanks,
I have had an MRI two weeks ago and now they agreed that for now I do not need another.
Mayo seems to be very over subscribed.

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