Connect
Seariously at the end of my rope with ENT issues
Such a long story but, in a nutshell, I am miserable daily and can barely function. Some years ago, began having chronic dry mouth and throat which has worsened. I had to have $12,000 worth of dental work done. I gave a continuous feeling of a lump in mytNow great. I deal with thick mucus. I keep telling the doctors the "tissue" of JystJust tongue, palate and throat don't feel right. I have a very hoarse voice. I generally feel unwell. Have seen a few ENT doctors, been scoped, told vocal cords are swollen. All this started about 10 years ago when I got very sick after an oooherectomy, lost 40 lbs, slew of GI tests. Referred myself to Stanford and was put on Gabapentin, and various other drugs that did not agree with me. I then developed small fiber neuropathy in my feet (confirmed by punch biopsy), idiopathic. I was already on Gabapentin and did not want to try Lyrica. Blood test showed possibke MGUS (?) so was referred to hematology where I now have to go every 6 months for bloodwork and yearly, full body X-rays checking for Myeloma. I do have 5 thyroid nodules and a cyst, been biopsies but was told my throat issues and feeling unwell are unrelated. My PCP and local ENT doctors say there is nothing else they can do. I only take Gabapentin, Ranitidine and a small dose of Alprazolam daily plus Vit D, B-12 and Eye Promise and a baby Aspirin daily. I just feel horrible and uncomfortable 24/7. So much for enjoying retirement. Any suggestions?
Like
Helpful
HugInterested in more discussions like this? Go to the Ear, Nose & Throat (ENT) Support Group.
Connect
@margot69, Hello and Welcome to Mayo Clinic Connect. Thank you for posting. I'm sorry you are suffering.
I wonder if you have looked into or considered coming to Mayo? The ENT department in Rochester has access to specialists within the building (voice specialist, swallowing therapist, ENT, pathologists) that work together to create individualized care. It may be worth looking into. Here is a link for information on obtaining an appointment- http://mayocl.in/1mtmR63
Thank you but that is not a possibility. I am in Ca and I could not make that trip and no way would my husband take me. There must be something on the West Coast. I have been to Stanford and they are of no help. I am also sick to my stomach again this morning. I don't even want to get up and struggle through a day.
My partner has dementia but constantly complains about echo in his left ear
what about people that don't live in the mayo areas how do we get help?
Part of it is the dental work they pulled all my teeth started with one,then two and then all of them as the ones next to the ones they were pulling had nothing to keep them solid in place. same thing with me the lump in throat mucus. The Dentist will do nothing and ENT all the test but nothing and then I will all of a sudden I will kick out blood and mucus and they just blow it away. I have no faith in doctors or Dentist they just take your money and ship you to someone else. Any I'm sure there are other thing also.
has he had a hearing test to see if his hearing is normal? or if there is something that can be done to help him?
@fcleaner1 Hi I just read your post . It is upsetting when Dr.s cant find answers or blow you off. Have you tried the holistic approach? Holistic Dr,s have a different approach and maybe able to help you just a suggestion.