Sciatica nightmare

Posted by joy75 @joy75, 1 day ago

Hello everyone,

First of all, I wanted to let you all know that each and every one of you have all my empathy for what you are facing everyday...

I actually registered here quite awhile ago, but the irony is I have been in too much pain most days, while also being plagued by some kind of nebulous equally debilitating chronic fatigue to even compose a post...

But I am on this board seeking support for what I have been enduring now for over a year.

I was diagnosed with an L5 herniated disc with spinal stenosis resulting in bilateral sciatica after an urgent MRI which ruled out cauda equine syndrome.

(6 months before being correctly diagnosed a doctor told me it was "just" somatic pain, and did no investigation.)

Anyway, most days the pain radiating from my lower back into my legs and right down to the soles of my feet has been debilitating, to the point I will have to hire a homemaker to come and sweep and mop, do my laundry, and clean my bathtub as it is so painful to bend from the waist.

I was initailly taking pregablin,with no relief, and horrible side effects.
Could not walk properly, had a few falls, double vision.

Now i am on 400 mgs of gabapentin which seems not to touch my pain either.

I am also prescribed 1000 mgs of acetominophin up to 3 times a day, but since it is like a sugar pill, I rarely take it.

I have been to the ER twice when the pain was too intense to bear.

The first time, I had the MRI and was sent home with a script for naproxen, which I have found can even hurt my stomach when I take it with food, and as well it too does really nothing to alleviate my pain.

My doctor referred me to a pain clinic months ago, but the waiting list is insanely long.

The second time I went to the ER, the doctor was very empathetic and validating, and gave me a short script for oxycodone, of course with no refills, but for a few days I was blissfully pain free.

I was referred to a neurosurgeon who said there was nothing he could do...

In the meantime I have spent hundreds of dollars on osteopaths, massage, acupuncture, and all manner of useless topical stuff to no avail.

I know I need to excersice more, and I stretch several times a day, have started walking which supposedly ought to help, but my heels hurt when I walk.

I am going to be 51 this year, but already use a cane.

I also have a myriad of mental health conditions which my pain is exacerbating.

I cant really afford it, but tomorrow first thing I am going to make an appointment to start physio.

(I am leery of chiropractic, but if all else fails I suppose I might try that too.)

I never learned how to swim, but I have read to even walk frontwards and backwards etc in a pool can be helpful.

As I write this, my back, glutes, legs and feet are absolutely throbbing.

Forgive me for whining, I know so many of you are trying to cope with far worse, but I feel so isolated and needed to reach out here...

I am Canadian by the way, so hope ok to be here, I respect The Mayo Clinic a great deal...

Thank you for reading if you have, and sending you all much compassion.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@joy75 I can't imagine why ANYONE would not be welcome on this website. I am angered, frustrated, and just generally perplexed by all these stories of people being in severe, chronic pain not being able to get appropriate scripts for their pain. The story of the 96.5 year old gentleman who could not get any narcotic pain pils so he could live out his few remaining days in somewhat of a comfortable state really sent me over the edge.
It's a shame that the ER doc could not give you larger, refillable scripts for oxycodone. I know that everyone so scared these days of narcotic pain pills. Stories of people turning into addicts from overuse filled the airways a few years ago. These people were the exception, not the rule. I took oxycodone for a month or so after my back surgery back in 2017. It was very effective at limiting my pain. But, gee, golly whiz! I didn't become an addict. I am now also experiencing severe chronic pain and cannot convince my pain management doc to put me back on it. I truly hope you can find an empatheic doc who can help you find an answer to your pain.

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I am so sorry you are dealing with this. You are so young. Is there a chance of surgery. I had L4/5 decompression age 65 and had several years pain free.

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@joy75 , I'm so sorry for all you're going through. I hope you will get on that long waiting list to see the pain management doctor. As quickly as time passes it will be your turn before you know it.

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joy75, I am so sorry. I have had 'bouts of sciatica in my life and it is so painful. I can't imagine how much
pain you have been in.

Years ago when I worked in the medical field, Flexeril (prescription muscle relaxant) & Tylenol were given and moist heat was put on the backside and rest. I still do this if I get a flare up and it has worked for me every time.

Praying for you and I am so sorry you have battled this for so long. Blessings & Prayers...

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