Scared, Frustrated with not being able to make dr appt. need advice

Posted by dgulovsen @dgulovsen, 6 hours ago

I was diagnosed by accident with two ground glass lung nodules both size 5mm. I just had a lung CT scan and in 8 weeks one nodule is now 7mm and has a semisolid center of 2mm. I am really scared. I haven't heard anything from my Pulmonologist. I don't have an appt until Oct. Dr. Kyle Hogarth of Chicago and renown Pulmonologist says that an increase in nodule size plus it becoming solid is a reason to get in immediately for a discussion on how to proceed. I know he does bronchoscopies and I would like to get one. I live in CT so Yale is nearby. I tried calling to make an appointment with their lung nodule center, but I only get voicemail. It takes days for them to return the call and then they are just an answering service that tries to get ahold of the center. So far I have heard nothing back. Does my pulmonologist have to call? I'm at a loss and feel like I am totally on my own. Does anyone know how this all works with scheduling?

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mamajite | @mamajite | 4 hours ago

hi @dgulovsen - sorry to hear you're dealing with lung nodules. A general rule of thumb is when nodules are smaller than 1cm, they can be difficult to biopsy, so often doctors will watch and wait. That said, I would also want an increasing nodule checked asap.

Is this the place you're trying to reach?
https://www.ynhh.org/smilow/services/thoracic-oncology/lung-cancer-screening-program
I recommend calling the main appointment line for the cancer center directly - and telling them you would like to see a pulmonologist or thoracic oncologist. And see if you can get an appointment faster that way.

Let us know how it goes - hang in there!

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