I had SBRT radiation 5 day treatment on a malignant adenocarcinoma in my left lung in July. My first CT scan to show results is Oct. 28th. Has anyone else had this treatment? Can you please share any results? I know everyone is different but I need to know of others experiences. Thank You.
I had SBRT radiation 5 day treatment on a malignant adenocarcinoma in my left lung in July. My first CT scan to show results is Oct. 28th. Has anyone else had this treatment? Can you please share any results? I know everyone is different but I need to know of others experiences. Thank You.
Hi Char09 - I had SBRT at Mayo twice. Nearly nine years ago they treated two nodules and then two years later treated another nodule. All three remained stable until this point when we're now watching another form. The treatment worked well, I did have side effects. A small percentage of cases get pneumonitis, an inflammation of the lungs. Treatment with prednisone over time relieved the inflammation. I have been blessed with nine years because of SBRT.
I had SBRT radiation 5 day treatment on a malignant adenocarcinoma in my left lung in July. My first CT scan to show results is Oct. 28th. Has anyone else had this treatment? Can you please share any results? I know everyone is different but I need to know of others experiences. Thank You.
Follow up appointment in 6 mos which I’m pleased has been extended from the every 3 month check ups. I’ll enjoy the break from all the radiation testing for now
Hiya Lisa - just an update
Had a full body pet scan in sept which shows the right lung SBRT from dec has left nothing but scar tissues! Cancer hasn’t traveled anywhere else. Feeling blessed. They have changed my meds from Xanax to clonazapam and renewed the oxy as I recover from shoulder surgery and fractured ribs due to a recent fall. Anyway I’m doing pretty well.
Hello @dave56pa!, Ouch!, that fall sounds rough. Your goal should be to stay out of waiting rooms. Stay safe!
It's great to share in your good news of clear scans. Will you remain on a scan surveillance schedule? Every three months, or longer? My next round is in a couple of weeks.
The cycle of scans, waiting, scans, waiting can be a difficult one. I'm on a 3 month cycle too. I generally think that I handle it well, but after a scan I do feel the relief. So, I know I'm not entirely honest with myself about how I'm feeling during the lead up to scan day too. The people around us, just want us to be ok so it's not always easy to talk about how we're feeling. It's normal to feel isolated. We're alone with the heaviness of our thoughts. I try to work through the feelings, and don't allow myself to sit in that place for too long. Talking with someone can be helpful.
You may want to reach out to your care team, a social worker or palliative care member, they may be able to help in finding ways for you to work with the waves of depression.
Hiya Lisa - just an update
Had a full body pet scan in sept which shows the right lung SBRT from dec has left nothing but scar tissues! Cancer hasn’t traveled anywhere else. Feeling blessed. They have changed my meds from Xanax to clonazapam and renewed the oxy as I recover from shoulder surgery and fractured ribs due to a recent fall. Anyway I’m doing pretty well.
Besides the cancer scans I see my cardiologist every 3 months as I am in stage IV HF with an ICD and have to have to checked out. And then there’s the pulmonary and neurological appointments So it’s quite a rigorous routine Didn’t expect my golden years to be spending so much time in waiting rooms
This is something that helps me with scanxiety. I stopped calling it a test because that made me think of it like a test from school. Something that was pass or fail. I call it a scan and see it as a picture at a particular time. Just like bloodwork -- there is no pass or fail, just information to know more of what's happening with the body. There is no pass or fail to it. It just is.
This is something that helps me with scanxiety. I stopped calling it a test because that made me think of it like a test from school. Something that was pass or fail. I call it a scan and see it as a picture at a particular time. Just like bloodwork -- there is no pass or fail, just information to know more of what's happening with the body. There is no pass or fail to it. It just is.
The cycle of scans, waiting, scans, waiting can be a difficult one. I'm on a 3 month cycle too. I generally think that I handle it well, but after a scan I do feel the relief. So, I know I'm not entirely honest with myself about how I'm feeling during the lead up to scan day too. The people around us, just want us to be ok so it's not always easy to talk about how we're feeling. It's normal to feel isolated. We're alone with the heaviness of our thoughts. I try to work through the feelings, and don't allow myself to sit in that place for too long. Talking with someone can be helpful.
You may want to reach out to your care team, a social worker or palliative care member, they may be able to help in finding ways for you to work with the waves of depression.
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Thank you for sharing. I have so few people to talk with about my questions. I appreciate your response and pray that you have many more years.
Hi Char09 - I had SBRT at Mayo twice. Nearly nine years ago they treated two nodules and then two years later treated another nodule. All three remained stable until this point when we're now watching another form. The treatment worked well, I did have side effects. A small percentage of cases get pneumonitis, an inflammation of the lungs. Treatment with prednisone over time relieved the inflammation. I have been blessed with nine years because of SBRT.
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2 ReactionsI had SBRT radiation 5 day treatment on a malignant adenocarcinoma in my left lung in July. My first CT scan to show results is Oct. 28th. Has anyone else had this treatment? Can you please share any results? I know everyone is different but I need to know of others experiences. Thank You.
Follow up appointment in 6 mos which I’m pleased has been extended from the every 3 month check ups. I’ll enjoy the break from all the radiation testing for now
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2 ReactionsHello @dave56pa!, Ouch!, that fall sounds rough. Your goal should be to stay out of waiting rooms. Stay safe!
It's great to share in your good news of clear scans. Will you remain on a scan surveillance schedule? Every three months, or longer? My next round is in a couple of weeks.
Hiya Lisa - just an update
Had a full body pet scan in sept which shows the right lung SBRT from dec has left nothing but scar tissues! Cancer hasn’t traveled anywhere else. Feeling blessed. They have changed my meds from Xanax to clonazapam and renewed the oxy as I recover from shoulder surgery and fractured ribs due to a recent fall. Anyway I’m doing pretty well.
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Helpful -
Hug
3 ReactionsBesides the cancer scans I see my cardiologist every 3 months as I am in stage IV HF with an ICD and have to have to checked out. And then there’s the pulmonary and neurological appointments So it’s quite a rigorous routine Didn’t expect my golden years to be spending so much time in waiting rooms
I like your term “scanxiety”.
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1 ReactionHi,
This is something that helps me with scanxiety. I stopped calling it a test because that made me think of it like a test from school. Something that was pass or fail. I call it a scan and see it as a picture at a particular time. Just like bloodwork -- there is no pass or fail, just information to know more of what's happening with the body. There is no pass or fail to it. It just is.
I hope this helps. 🙂
BPB
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5 ReactionsThe cycle of scans, waiting, scans, waiting can be a difficult one. I'm on a 3 month cycle too. I generally think that I handle it well, but after a scan I do feel the relief. So, I know I'm not entirely honest with myself about how I'm feeling during the lead up to scan day too. The people around us, just want us to be ok so it's not always easy to talk about how we're feeling. It's normal to feel isolated. We're alone with the heaviness of our thoughts. I try to work through the feelings, and don't allow myself to sit in that place for too long. Talking with someone can be helpful.
You may want to reach out to your care team, a social worker or palliative care member, they may be able to help in finding ways for you to work with the waves of depression.
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Like -
Helpful -
Hug
2 Reactions