Connect
Saying Hello! Just had surgery for a pituitary tumor
I was just told about this group today. I was diagnosed with a pituitary tumor on June 10th after sudden symptoms, somewhat rushed to Mayo, and had surgery June 12th. I was totally healthy before this.....had never been sick, other than cold or sinus. In two months my entire life has changed. I am so very thankful that the tumor was benign, but still struggling. I feel like no one around me understands, and would so much like to connect with others who have had this experience (yet, I so wish no one else had to experience this). I also want to say, so thankful for Dr. Tawk and the whole team at Mayo. So appreciate any thoughts or feedback:)
Like
Helpful
HugInterested in more discussions like this? Go to the Brain Tumor Support Group.
Connect
It is so nice to meet you Teresa.......thank you for your response. I am so new to this. I guess I should go to the discussion group? Is that a different group than "Brain Tumor?" It appears that my tumor bled, causing neurological symptoms within a very short time. It affected the third and sixth nerve (related to my vision). After the surgery, my right eye lid that had dropped came up, but I still had double vision, and my right eye was pulled inward and would not move to the right. Within the last week, my right eye can now track all the way to the right, but it is still pulling inward. I am also having some sinus issues, but I do not know if that is because of the surgery or just normal. That is my struggle......I do not feel normal anymore:( Every time I have an ache in my head, I fear the tumor is coming back at warp speed. I will go for my follow up MRI in September. They are not sure if they got all of the tumor as was near the carotid artery. My tumor is non-functioning, so I am also thankful for that. I am a mental health therapist, and I went back to work a month after the surgery, but due to COVID, I am able to work from home via Telehealth. Therefore, I am looking at a computer screen all day, everyday, with my double vision. I will then get headaches, that induce fear that the tumor is returning. I have always been a laid back person, but now I am never fully relaxed. I am trying to have faith, say my prayers, and stay positive, but I feel like an alien and have so many questions that no one seems to be able to answer:(
-
Like -
Helpful -
Hug
2 ReactionsHello @daphne2020 and welcome to Mayo Connect. I'm also glad that you found this patient support community. I am glad to hear that your tumor was benign and that your medical team at Mayo was so great! We do have a current discussion group for members with pituitary tumors. Here is the link,https://connect.mayoclinic.org/discussion/pituitary-tumor-symptoms/
How do you feel now? Any problems that you would like to post?