Say you are in a Hospice Program w Pacemaker to assist your heart

@gravity3

I think Palliative care working w your Insurance company should get all the medications that a person in Hospice care. That way things will be satisfactory to certain extent.

Right now, if you are in Hospice, you cannot be in anything else. That, in my opinion is wrong.
VJ

@colleenyoung
I was in Hospice for ten days and they revoked it, after my brief hospital stay due to a fall. While in hospital, they gave blood transfusion to me, that was not related to my accidental fall at home.
Because of the fall, one of my Neprostomy tubes got busted and it could not be replaced at home. It has to be done by a qualified surgeon in hospital.
So, Medicare considered that replacement as a interventional curative procedure.
The agency that enrolled me never told me about it beforehand. They knew that I have these tubes to assist my failing kidney to remove toxins from my body. W/o it, I could die due to extreme pain, infections, poor hygiene and lack of young caregivers.
My husband is 81, who cares for me now.
It is very difficult.
Sorry to bother you all w my problems.
Thank you all.
VJ

@gravity3
Could you write your response please?
VJ

@vijay26

I don't understand.

@gravity3
Could you please post, whatever you wrote in the first place?
I must have tried to get a clarification or explanation on it!

What do you not understand here?
Please reply. Your posts were removed?!
VJ

@vijay26, the only reason Mayo Connect exists is to listen to and/or try and help with patient problems.
It is especially difficult, when we are ill, to negotiate all of the insurance twists and terms. You can challenge Medicare's interpretation of your care as "curative" care.
https://aging.ca.gov/Programs_and_Services/Medicare_Counseling/.
https://www.nia.nih.gov/health/hospice-and-palliative-care/what-are-palliative-care-and-hospice-care
If you are back on hospice, your hospice team should arrange for the pacemaker surgery.
If you are off hospice, home hospice or palliative care might be a better option.
I hope you keep writing to us.

@colleenyoung

Also can be in skilled nursing facilities.

@vijay26

The only thing I posted earlier had to do with enrolling in a palliative care program if someone in hospice care wanted to leave hospice care to get what would be called curative care. The same person can be admitted to hospice care again when they are no longer seeking curative care. Hospice is for people who have 6 months or less to live and have stopped any curative care.

@gently
It takes the whole.energy out of you.They go in circles w three types of care and as a patient, I have already fallen thru the crack.
Like you mentioned above, its.very difficult to negotiate w them, when you are ill and lack needed support.
Medicare would rather pay for "curative care" under my Medicare
Advantage plan, than save healthcare cost by allowing Chronically ill to join Hospice voluntarily.
CA state enrolled thousands of people and found out only 2% out of those thousands of patients have died while in Hospice! That's great! Those who were alive, didn't get pushed out, as it saved tons of money for the State and tax payers.
Thank you for your kind words and support.
Have a wonderful.day.
VJ

@gravity3
My Palliative care nurse told me that if I was in Palliative care, I couldn't be in Home healthcare or Hospice!
Guess what?!
I have received services from Palliative care nurse (home visit) and Home healthcare (again w their nurse, O.T., P.T. and Woundcare services plus Massage Therapy for my Lymphadema) at the same time period simultaneously.
Home healthcare benefited me a lot in symptom reduction to certain extent. But, Palliative care did not.
I am sick of people repeatedly taking and checking my vitals. They spend so much time on it.

Palliative care nurse comes over, takes vitals, checks my med box and may write prescription only for some medications, not for all that I am running out by chance.
What is the point? I still have to see those Drs and providers, who wrote those prescriptions in the first place! Its ridiculous.Politics in Healthcare.
Now, to complicate the entire Healthcare system they will use A.I.
in the near future.
Go figure it.
VJ