Undifferentiated Pleomorphic Sarcoma: Anyone else want to share?

On Oct. 11, 2016 we came back from a 3 week vacation that consisted of a lot of hiking in the National parks. I noticed my right leg swollen, red and with a rash. I went to all sorts of doctors and tests to find out why. (vein mapping, blood clot, ecocardiogram, blood work, pap smear, stool testing, CT scan (this is when a mass was discovered in the deep part of my pelvic). this caused more testing to the abdomen, pelvic, legs, etc. I even had an incision by a surgeon to look at the mass. This was a waste of time since he did not see the mass from the incision he had made. He did take a biopsy of my lymph node in the right leg area and came back benign. All results were negative, benign, etc. Blood work perfect, Ovarian cancer and hep negative. Finally, I went to an oncologist suggested by my primary doctor. He did a NEEDLE biopsy and that is when we found out that I had pleomorphic sarcoma. I was signed up for radiation treatments until I saw a special surgeon (only 3 like them in the valley). He stopped the radiation and is facilitating getting me to Mayo Clinic. I am anxious to go to get this tumor out before it grows in size. It is 3.7 at the largest place. I have not had any treatments as of this date. I am anxious to get started, though. Does it take Mayo Clinic a long time to set up the doctors that will be assigned to you? Does anyone know about this?

Welcome to Connect, @me67.
Thank you for starting this conversation about undifferentiated pleomorphic sarcoma. Hopefully by starting this discussion, we will attract other people to join in and share with. While we wait for that to happen, I would like to connect you with other members who have rare sarcomas, albeit of different types. Please meet @udderplace who has liposarcoma, @brinys who has angiosarcoma and @deborahe who has cricoid chondrosarcoma.

Me67, can you tell us a bit more about yourself. When were you diagnosed and what treatment(s) have you had?