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Undifferentiated Pleomorphic Sarcoma

Sarcoma | Last Active: Mar 10 6:52pm | Replies (55)
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@gemmalt

Hi
My dad has undifferentiated pleomorphic sarcoma of unknown primary - they found lung metastases and he is having 3-weekly Trabectadin which is doing the job so far so good 🤞

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Replies to "Hi My dad has undifferentiated pleomorphic sarcoma of unknown primary - they found lung metastases and..."
dbla | @dbla | Sep 25, 2023

Hi:

Have you considered having a proton treatment to rid of cancer cells in the lung?
I had a discussion with Fred & Hutch in Seattle to do proton treatment instead of Chemo if we find lung metastases. You may want to speak with them.

How is Trabectadin going so far? Did it shrink the size of the tumor? If so, how much?

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dbla | @dbla | Oct 31, 2023

Hello Gemmalt:

I had six weeks of radiation after the surgery. I will be doing a CT scan next week to find out lung metastases. I will know more about the next treatment after CT.
I am wondering if Trabectadin was effective for UPS. Traditional chemo may not be effective against UPS.

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