Saliva and dry mouth: Head and neck cancer and treatments

Thanks Loli. I must try the juicing. The corners of the mouth are sometimes as issue for me too. My GP recommended zinc ointment to protect them from my saliva - I had thrush at that point too. The dermatitis went from the corners of the mouth and extended down the wrinkles on the side. Not a good look but it didn't last long.
I have heard that water dries out the mouth and gel certainly helps and last longer than water. However, having water also helps me speak more clearly. It seems to irrigate my stiff tongue so that talking is not such an effort.

My teeth were already problematic and the radiotherapy finished many of them off. Seem stable now though. I have enough to hold a partial metal denture.

We don't use the fluoride trays in NZ as a rule.

I keep meaning to do more research into Xylitol which sounds almost as good as fluoride and better for us, maybe? Best wishes.

Hi Maureen,

Thank you for bringing this RT side effect to the table. I am one of the ones that has not regained saliva production after RT. My treatment was almost five years ago, and when it seems I am forgetting about it, I wake up with my tongue glued to every side of my mouth, like a piece of cardboard. I have a tube of gel by my bed, and promptly squeeze some in my mouth and it seems as if my mouth reconstituted, kind of like dried mushrooms do. In wintertime, when I stay mostly inside, this happens in some part of my mouth during the day. Tea dries my mouth terribly, so I drink iced coffee or hot cocoa. Water tends to dry my mouth too. Go figure!
As far as tooth decay, I have been spared. RT affected my gums, and by retracting, I have lost four molars on my right side, and I know I will loose the fifth. All my other teeth are very healthy, and my gums too. I also did the fluoride trays for about a year, though my daughter was adamant for me not to use fluoride because of bone loss. So I quit doing it; but I go to the dentist every four months for cleaning, and she gives me a fluoride varnish each time. I must say that I am very careful about cleaning my mouth after each meal. You could say I have the stock food to remind me at each meal. So, I use the water peak after each meal. I also use this little brushes between my teeth, and I brush thoroughly every night with an "organic" tooth paste.
There is this chewing gum that was gifted to me by a dentist friend. I have not used it because I do not chew gum, period, so I have a spray little bottle in my purse and in the car. I do not use it a lot, I think because I have learned to live with dry mouth.
I know I have said it many times, but I must mention it again: I juice at least once a day. I include lime or lemon with peel and all and ginger. Just the thought of it, makes my mouth water. I would love to find out if there are other foods that promote saliva production. By the way, the corners of my mouth are getting kind of sensitive. Do you think my saliva is getting acidic? I will ask my dentist tomorrow. I have a cleaning appointment at 11.
Well, I would love to hear about your experiences. Together we will make it easier to get used to our new normal.
Greetings, Loli

I'll look into that. We are always trying new products. We have Oral 7 and Xerostom - Xylimelts sound good. It's hard to be compliant with these things when they cause discomfort. And the dentist! I see a hospital dentist but also a hygienist who is my salvation. So thorough.

My husband had his first round ot RT in the fall of 2015 at Mayo jville. Before treatment began he was sent to a dentist to be fitted for fluoride trays, with directions to use them every day. He has since had two more rounds of RT. He is not compliant with the daily floruide, but probably 2 x week. I make an appt with our family dentist every six months. (Give him 24 hrs notice, so he can't back out)

He tried a new product called SalivaMax rinse which showed promise, but after a couple of weeks it gave a metallic taste and he stopped using it. Maybe it would help someone else. It is prescription: http://www.forwardscience.com/salivamax

@jeffk @lisa_sj99 @jtw96 @mrsjhagen18 @sylviapf @lzzie @loli @karly @trudivo @angelag @ssimons @deborahe @gaybinator @emmur16 @merryinman0811 @udderplace @carebear Hi folks. I still have my training wheels and forgot to tag people who might be interested in this topic.