Saliva and dry mouth: Head and neck cancer and treatments

Posted by Maureen, Alumna Mentor @alpaca, Dec 5, 2017

Many of us have this problem. Three years after RT and lots of talks by oncologists at our meetings and I'm still learning new details about this side effect. Some people have no saliva for life because their glands have been wrecked by the treatment, some recover some function as late as 2 years after (is that right?). Most people though have to manage a more or less dry mouth with constant to frequent sips of water or gels and sprays.

Even worse is what lack of saliva does to your teeth. I've learnt that normal saliva is continually building up the teeth and that without it we are in danger of rampant dental decay without extra fluoride treatment or heroic effects to keep out mouth acid neutral.

How do other manage this problem? What tips do you have?

Interested in more discussions like this? Go to the Head & Neck Cancer Support Group.

I have dry mouth, although it does not sound a severe as yours. I take Cevemeline three times a day which helps quite a bit. At night, I use dental trays with fluoride gel and add a dry mouth gel to the tray. I also use a couple sprays of Aquoral, a prescription product, to help with the dryness.

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@jano

Hi. I have been using Prescription cevimelene 30 mgs. for dry mouth. It is expensive and my insurance doesnt cover it. Go figure. But I pay for it and seems like it helps.

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I still use Biotene. Like t(r flavor too. But take a cevimeline at night. Used to
Take 3/ day but now only one. I’m 8 yrs out. I pay $65 usually with Goodrx but it is worth it. Lasts me for 90 days, since original,script was for 3 / day. 😉Wish you the best.

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@george6530

I have the same problem. Excessive saliva makes it hard to eat.

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Hi @george6530, what type of head and neck cancer did you have? What helps you to eat with dealing with excessive saliva?

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Hi
I have a dry mouth with I think a slightly numb tongue'. If I try and drink water/milk A2 before bed a little better.

Is it the PRADAXA 110 x twice day.

Especially stopping all Bisoprolol I wil now take note.

cheri Joy

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I have the same problem. Excessive saliva makes it hard to eat.

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I have the opposite problem with hypersalivation. I have been up since 4 this morning from choking on it. It's sticky stringy foamy saliva every since I had covid last year. Mouth was cultured, I do not have thrush and it just showed normal mouth bacteria, but, this is anything but normal. I could water the yard for my husband. LOL. I have tried everything. Any suggestions are greatly appreciated. Hugs to all...

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Dry mouth is a regular symptom of certain medications for me. My muscle relaxers tend to do it to me sometimes. C b d at times does it. That's why I don't take cbd before I go to bed.

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@alpaca

Thanks Loli. I must try the juicing. The corners of the mouth are sometimes as issue for me too. My GP recommended zinc ointment to protect them from my saliva - I had thrush at that point too. The dermatitis went from the corners of the mouth and extended down the wrinkles on the side. Not a good look but it didn't last long.
I have heard that water dries out the mouth and gel certainly helps and last longer than water. However, having water also helps me speak more clearly. It seems to irrigate my stiff tongue so that talking is not such an effort.

My teeth were already problematic and the radiotherapy finished many of them off. Seem stable now though. I have enough to hold a partial metal denture.

We don't use the fluoride trays in NZ as a rule.

I keep meaning to do more research into Xylitol which sounds almost as good as fluoride and better for us, maybe? Best wishes.

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The problem I have with Xylitol as well as sprays is they make my mouth more mucky.
I’ve also had prescription but they didn’t work.
For the past 6.5 years I’ve been relying on hot water rinses, water throughout my day and frequent brushing of my teeth with sensitive toothpaste and prescription fluoride toothpaste.

MOJO

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I’m approximately 6.5 years out and still have no saliva. I’m assuming that I never will but I’ve learned to live with it.

I’ve tried the 3M spray, mouth rinses and Xylitol, none of these work for me.

As for dental; I see my dentist every 6 months. I also pay for fluoride treatments each visit and have a prescription fluoride toothpaste.

I brush and treat my teeth first thing in the morning, after each meal and a couple times throughout the day.

Drinking water throughout the day helps all of the above and well as the tremendous amount of water I need to get food down my throat.

Wishing you the best, message me anytime.

MOJO

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@hawkssr

I had burning mouth syndrome and started the “pulling” with coconut oil and was very surprised that after a week or so my mouth felt much better and now I have no symptoms of BMS and I had it severe for several months. I had extensive dental treatment and I’m pretty sure there was nerve damage, in fact I have one crown that is sitting on a nerve but again at least for now I no longer have BMS. It affected one side of the gums, roof of mouth and tongue. Look up Pulling to see how it’s done. Good luck!

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Here’s some insights into how I’ve managed both Dry mouth and Burning mouth… the first, … for the first two years I had to lay and sleep in a semi sitting position so that the little saliva I had moisturized the mouth, slowly I started getting rid of a pillow, then another until I could breathe and sleep in a more relaxed position… of course in order to do this I made sure to apply a moisturizer gel prior to laying down, then wake up some 3-4 hours later and do it again…. It’s not a perfect solution but it helps… don’t get me wrong, dry mouth is still there but not as severe…. As for Burning mouth, this was a problem at the very beginning and lasted for about 3 years, any kind of citrus or gas would burn my throat and mouth, so I stayed away from them… remember, the inner lining of the whole oral cavity went through some pretty nasty trauma, so it’s natural that problems would arise… but the body is a remarkable thing, it learns to cope and in turn with time it adapts to the changes… now I am ver conscious of what I can and cannot have, diluting everything with, say water or milk or yogurt helps a lot, it not only helps in swallowing but keeping the Burning mouth to a minimum if at all… but that’s just my way of dealing with it, you do what you must to keep moving forward, keep an open mind and stay strong and determined…. Hope some of this helps… All my Best to You and Yours….

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