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RSCLin Reliable with Oncotype Score - Use and experiences?
I was diagnosed with grade 1, stage 1a, 9mm invasive duct cancer. I'm strong ER, but moderate to low PR. I asked for an Oncoype score and despite my case not meeting the standards (too small tumor, low grade, etc.) the Dr. obliged. I scored a 27 putting me just over the line for 'high' meaning chemotherapy. Risk for reoccurance at 9 years was 16%. I didn't think the 7-8% benefit of chemo, reducing the risk to 9-10 % was worth it for me.
I was aware of the RSClin and inquired about it. She again obliged and using my personal info added to the Oncotype, reduced the recurrance % to 5% and with chemo, down to 2%. While I'm so glad I declined chemo (before the RSClin) I'm perplexed by why this was done automatically and I had to ask for it. Another example of the patient needing to advocate for themselves....assuming RSClin is reliable. Anyone with similar situation?
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Yes, sunshine5213.
My situation was primary rectal cancer. Scripps offered me somatic testing and I accepted. There was a delay on the results because they forgot to send the biopsy material. I had trouble finding a proton center that would treat me without chemotherapy. So I traveled around the country. I finally found a doctor. Dr Giap. After my treatment ended I received the somatic chart with a grid indicating that for each of my tumor's mutations there were no chemotherapeutic medications that would be successful against them. I was to have a port, iv infusions and an oral medication, all of which would have had unnecessary consequences.
Aftercare is another important self-advocacy test. I could never understand why people with cancer would die of brain metastasis many years after the "five year cure." No aftercare. I have to beg for testing.
Good wishes, sunshine,