Responsive neurostimulation (RNS) as an epilepsy treatment?

Posted by caseybach @caseybach, Sep 9, 2020

I am wondering what experiences people have had with RNS. My son has had seizures since he was 7, has tried several different sezure medications and is currently on Brivacta, Onfi, Oxycarbazepine & has a VNS. Still having 4-6 seizures a month. RNS is our next hope, so if anybody has any personal experiences or info. I would greatly appreciate it. Thank you Casey.

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

Kelly Hahn, Connect Moderator | @kellyhahn1 | Sep 16, 2020

Hello Casey (@caseybach). I edited the name of the discussion in hopes of bringing more people in.

Great question about the use of RNS as an epilepsy treatment. I thought I'd also bring into this conversation @mmas @michele0161 @dawn_giacabazi @aroman @mythreeguys, who may have some input.

You mentioned your son has been having seizures since he was 7, can you share how old he is now? Is RNS something your doctor is recommending?