Nerve Conduction Study: Risk vs. Reward

Posted by robtlhughes @robtlhughes, May 25, 2020

I’ve been diagnosed with polyneuropathy for a year and a half and started noticing symptoms a year before that. I’m 78 and in generally good health except for some (so-far) minor lung issues.

My most noticeable symptoms are odd/sensitivity/numbness/freezing/burning sensations occurring mostly at night that began on the soles of both feet and, over a year, have crept up to both knees. In the most recent months, my legs have gotten much weaker, despite strengthening exercises and walking. I take gabapentin which does nothing for these symptoms, but seems to help with arthritis and sleeping.

I have a follow-up appointment in July a highly respected teaching hospital about eight hours from my home. The neurologist thinks another nerve conduction etc. study is in order.

I’ll have to spend at least one night on the road, probably two. One hand, I’m concerned about the virus, particularly since my wife has serious lung issues. Also, from what I read here, on Dr. Google and elsewhere, there’s really not much can be done about my condition. I’m already exercising and trying to maintain my balance with tai chi and other therapist-recommended practices (toe-heel etc.)

On the other hand, maybe the doctor has a trick up his sleeve.

Should I make the trip? Thanks.

What were your side effects?

REPLY

@cceberk1942

That morning we drove to the city (50 miles from home) for an appointment with our financial advisor, and I asked what seemed to me was a reasonable question. He and my wife said that this wasn't the best time to discuss that. I don't remember what my question was. Then we went to lunch and I couldn't eat or drink. I felt drained. My wife did the driving on the way home, and I would start a sentence, but couldn't complete it. I was becoming more and more incoherent, so we went to the ER. I couldn't walk or answer any questions. When my wife told them that I might have had a stroke, things moved along much more quickly. They wired me to a heart monitor. And then I found out how quickly people responded when my heart rate doubled. They were all set up to shock me when my pulse jumped back down to normal. I was admitted for a couple of nights, and after some detective work, the staff thought that I was having a bad reaction to Lyrica. As soon as I stopped taking it I started getting back to myself.

End of Lyrica.

Jim

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@cceberk1942

I feel two things to try. One is Lyrica which will definitely help the pain and maybe the numbness and secondly a stem cell treatment

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Tell me more about a stem cell treatment. I have a balance problem caused by no nerve transmission from the big toe of my right foot which I suspect is blocked off in my lower back

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@jimhd

@cceberk1942

That morning we drove to the city (50 miles from home) for an appointment with our financial advisor, and I asked what seemed to me was a reasonable question. He and my wife said that this wasn't the best time to discuss that. I don't remember what my question was. Then we went to lunch and I couldn't eat or drink. I felt drained. My wife did the driving on the way home, and I would start a sentence, but couldn't complete it. I was becoming more and more incoherent, so we went to the ER. I couldn't walk or answer any questions. When my wife told them that I might have had a stroke, things moved along much more quickly. They wired me to a heart monitor. And then I found out how quickly people responded when my heart rate doubled. They were all set up to shock me when my pulse jumped back down to normal. I was admitted for a couple of nights, and after some detective work, the staff thought that I was having a bad reaction to Lyrica. As soon as I stopped taking it I started getting back to myself.

End of Lyrica.

Jim

Jump to this post

I once had a reaction to Lyrica similar to yours. I was taking the maximum dose and accidentally took a double dose. I participated in the original research studies for many years and it is a great drug. I am not at all afraid to take it again and after taking it for about seven years went off it and my symptoms did not return. I think it may help some nerves to heal

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