RFA made my pain worse?

Posted by mads20 @mads20, Jan 22, 2024

I had an RFA (radio frequency ablation) done in my lower back at L3 and L4 on my right side. My local Dr told me that I have degenerative joints. The RAF made everything worse! When I told my local Dr that he gave up on me and said that there is nothing else that can be done. Anyone ever experienced this before?

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I had an RFA in November 2023 and it didn’t seem to really help; and then a week later I woke up with significant pain in my legs. Mostly after I’ve been laying down or sitting for a while and when standing up, it felt like standing on live wires. Later my legs would just ache and I couldn’t stand or walk much longer than 10 minutes without having to sit down because of the pain. I assume that’s from my PN but the Mayo doctors I’ve talked to only want to talk about my back.

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@mads20 Hello and welcome to Connect. I am a spine surgery patient, but I don't have experience with ablations. It sounds like your doctor doesn't know what else to do. It may help to seek another opinion elsewhere.

Jennifer

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Yes I am scheduled to come to Mayo February eighth. I am ready to get some answers.

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I've know cases where they miss the medial branch nerve or just damage it. Unlikely, at two separate locations. "Nothing else that can be done" is a terrible comment. So glad you are going to, Mayo wish it were sooner.

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Profile picture for Jennifer, Volunteer Mentor @jenniferhunter

@mads20 Hello and welcome to Connect. I am a spine surgery patient, but I don't have experience with ablations. It sounds like your doctor doesn't know what else to do. It may help to seek another opinion elsewhere.

Jennifer

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How has your surgery helped?

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Profile picture for gsgnfl @gsgnfl

How has your surgery helped?

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@gsgnfl My pain was caused by spinal cord compression. My surgery resolved all the pain. I did rehab and got my strength back. I regained the coordination in my arms.

I see you are going to Mayo. I hope you will get some answers.

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I've had a similar experience. After a lumbar RFA my belly swelled up for almost three weeks, I experienced fevers for two weeks that I iced constantly to keep in check. Now two months later, the swelling is gone but my belly is extremely sensitive to the touch. The slightest pressure hurts, even just from my bra straps being around my ribcage. I regret having this procedure and have only bad side effects, with zero benefit. Was supposed to have the other side done, but defiantly will not be doing this to myself again. Wanted to share my experience so that anyone else considering this procedure would be warned. Wish I had done more research and used better keywords in google and bing search, as my pre-procedure research keywords had obviously failed me. It's only after when typing in my symptoms that all the warning posts and videos come up.

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