Research on ET treatments

Posted by nohrt4me @nohrt4me, Jun 19 9:13am

I get periodic bulletins via email from Patient Power that track what Big Pharma is researching for MPN patients. Looks like a vaccine approach may be tried for ET-CALR patients in a few years.

I don't get too geeked up about this stuff because most treatments will be prohibitively expensive for many of us, at least initially. But the treatment research is predicated on what scientists are learning about how different forms of ET work. So info here might be especially interesting to other CALRs like me.

https://www.patientpower.info/myeloproliferative-neoplasms/are-new-treatments-coming-for-et

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Oh, me interesa mucho, también soy mutación CALR, pero no entiendo mucho el video porque hablo español.

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@vivoconte

Oh, me interesa mucho, también soy mutación CALR, pero no entiendo mucho el video porque hablo español.

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Here is a page with a transcript of the video. I hope that you might be able to use Google to translate the text.

I have written to Patient Power to suggest they provide Spanish language access to their material.

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