Repeat Kidney biopsy at clinic visit?

Posted by jordyntea @jordyntea, Jun 8, 2023

Hi all,

I’m new to the community and am visiting Mayo Clinic for the first time at the end of the month. Just seeing nephrology to start.

I had a kidney biopsy done at my local hospital in January of this year. Even during the biopsy the pathologist in the room with us was concerned by the samples that were being gotten and they had to take quite a few and got what was determined to be a readable result and did show intense inflammation. However ever since then every time I see my local nephrologist and she talks about potential things that could be going on she always say as that the biopsy results weren’t very good.

I’m curious since I guess my biopsy wasn’t great is that if there is a chance I could expect my nephrologist at Mayo to want another biopsy done. I understand there’s more risk and I think that’s why my current nephrologist doesn’t want to go that route yet but I have heard that Mayo likes their own tests being done

If they would repeat a biopsy is there a chance I can expect that on my initial visit? I was told to expect to travel out for about a week as a new patient but so far I just have blood work and urine labs as well as a kidney ultrasound Monday then my nephrology appointment and a chest scan Tuesday. If a biopsy was wanted is that something that would already be scheduled? Or do other tests tend to get scheduled after that initial appointment?

I’ll be traveling to Rochester from missouri so hoping not to have to make a ton of trips up to the clinic and hoping a lot can be done in this visit

Interested in more discussions like this? Go to the Kidney & Bladder Support Group.

I’ve been a male patient for probably 30+ years. It used to be that you would meet with your “primary “doc and then they would set up your additional appointments over several days. That was a great system that unfortunately they had to change. I wouldn’t be surprised if they added tests but I also wouldn’t be surprised if they wanted you to come back at some point however, it’s a wonderful place. The Rochester facility can be a little daunting initially, because there are so many buildings, but they have pretty good signage You will have the most advanced care available today. It’s worth the trip. I wish you the very best.

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I’m 10 weeks post transplant at Rochester. I’m scheduled for a 4 month follow up in early August. My appts take 2 days. I do blood, urine, biopsy the first day. Talk to nephrologist and others the second day. It’s possible they will do more for a new patient, but they to to pack the days, rather than force you to spend weeks. I suggest you specifically ask them ahead of time about a biopsy. Since the last one had some issues, they may agree that a repeat is wise.

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@renrussie

I’m 10 weeks post transplant at Rochester. I’m scheduled for a 4 month follow up in early August. My appts take 2 days. I do blood, urine, biopsy the first day. Talk to nephrologist and others the second day. It’s possible they will do more for a new patient, but they to to pack the days, rather than force you to spend weeks. I suggest you specifically ask them ahead of time about a biopsy. Since the last one had some issues, they may agree that a repeat is wise.

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Thanks for your comment! Like I said so far I have blood labs schedule the first day then I see my nephrologist the second and have a chest scan. I called last week to nephrology and confirmed they recieved everything and my prior biopsy info. I assumed the doctor must have looked over all that bc I’m assuming the chest scan is because my local nephrologist recently diagnosed me with sarcoidosis (even though other docs disagree and it doesn’t quite seem to fit) so maybe that also means that my Mayo doc looked at the biopsy already?

And also when I called I asked if I could epexct it and they said it just depends. I just wanted to ask here because I didn’t ever know if impromptu procedures like that get added after your doctors visit while there

Plus I know everything is patient to patient basis and varies but no clue if this is something unheard of or not

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@ldrlaw

I’ve been a male patient for probably 30+ years. It used to be that you would meet with your “primary “doc and then they would set up your additional appointments over several days. That was a great system that unfortunately they had to change. I wouldn’t be surprised if they added tests but I also wouldn’t be surprised if they wanted you to come back at some point however, it’s a wonderful place. The Rochester facility can be a little daunting initially, because there are so many buildings, but they have pretty good signage You will have the most advanced care available today. It’s worth the trip. I wish you the very best.

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Thanks! Good to here from someone who has had a good experience at the clinic over such a long period of time. Especially since even the health problems I’ve been dealing with I’ve only had for about 7 months so I’m kind of getting used to frequenting hospitals in general.

I know you mention how things used to be, from things I’ve heard it sounds like they still try to do that? Or is it just less so now?

I don’t mind going back up to Rochester eventually again it’s just that I work a full time job and while they are very accommodating so far all the PTO days I’ve taken this year so far have been for medical reasons. And any short term disability/health leave benefits my job has only gets triggered if it’s more than 2 weeks at a time but all my stuff has been spread out. So I’m hoping Telegraph follow ups will be an option for me

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@jordyntea

Thanks for your comment! Like I said so far I have blood labs schedule the first day then I see my nephrologist the second and have a chest scan. I called last week to nephrology and confirmed they recieved everything and my prior biopsy info. I assumed the doctor must have looked over all that bc I’m assuming the chest scan is because my local nephrologist recently diagnosed me with sarcoidosis (even though other docs disagree and it doesn’t quite seem to fit) so maybe that also means that my Mayo doc looked at the biopsy already?

And also when I called I asked if I could epexct it and they said it just depends. I just wanted to ask here because I didn’t ever know if impromptu procedures like that get added after your doctors visit while there

Plus I know everything is patient to patient basis and varies but no clue if this is something unheard of or not

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Have you signed on to the patient portal? Suggest you do and message the team with concerns. I would not assume anything. I’ve found this is the best way to communicate.

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@renrussie

Have you signed on to the patient portal? Suggest you do and message the team with concerns. I would not assume anything. I’ve found this is the best way to communicate.

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Is messaging through the patient portal different than calling the reception at the nephrology department? At other hospitals I’ve been too those go to the same people

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@renrussie

Have you signed on to the patient portal? Suggest you do and message the team with concerns. I would not assume anything. I’ve found this is the best way to communicate.

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And through the patient portal is how I’ve seen my current scheduled appointments

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@jordyntea

Is messaging through the patient portal different than calling the reception at the nephrology department? At other hospitals I’ve been too those go to the same people

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If you call, you will talk to one person and get their immediate response. Written messages through the portal will go to the “team” you are assigned to. Typically a couple docs/nurses will review and determine a best response. I think you get more complete answers if they are able to discuss and think about it.

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@renrussie

If you call, you will talk to one person and get their immediate response. Written messages through the portal will go to the “team” you are assigned to. Typically a couple docs/nurses will review and determine a best response. I think you get more complete answers if they are able to discuss and think about it.

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Just tried to message through the portal and it won’t let me bc it says I “don’t have any recipients yet” so I guess I don’t have enough of a care team yet to ask bc I don’t have my initial appointment yet

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