Renal tubular defects/adverse reaction
Hello I was wondering if anyone has experience and/or knowledge on SIDAH and renal tubular disorders? Ive been very sick for a long time and I myself made the discovery about 8 months ago Ive been having a severe adverse reaction that was confirmed by the Dress Foundation over the course of a ten year span to two diueretics that were continuing to be prescribed to me. It wasn't until about 5 years ago when I stopped all meds for a short time and then reintroduced them that the reaction became severe. Ive had a well documented sulpha drug allergy since childhood and in my early 30's started having mild edema and put on lasix zaroxlyn that are sulphamides which caused a life threatening reaction with heart failure related symptoms and my hospital discharge was continued to be prescribed. This was never recognized and misdiagnosed and misattributed to something else by a stigmatizating label placed on my chart and it red flagged which then followed me to another state and allowed all other treating physicians to not take me or my deteriorating health seriously. As of 6/2025 it is now documented on my medical records having a lasix and hydrochlorothiazide allergy . But from this and being misdiagnosed it was never found what was the cause of the edema which I believe to be SIDAH and/or a renal tubular defect either acquired or inherited. I had a 24 hour urine collection done in 2024 when not taking the diueretics and have extremely high urinary sodium and calcium loss coupled with low urine citrate and suggestive of distal renal tubular acidosis. I recently found my heart condition has advanced to bilateral atrial enlargement and kidney function is declining once again. I was just started on ethacrynic acid but I'm not having the urge to urinate as with other diueretics and believe I have gut edema. I'm still uninsured and not sure where I can find and get the needed help that I desperately need at this time.
Interested in more discussions like this? Go to the Kidney Conditions Support Group.
Connect
