Redundant/Tortuous Colon & Severe Constipation

Posted by kjn72 @kjn72, Nov 8, 2022

JN: I am a 72y/o woman with severe constipation & a redundant colon. 7 years ago I had 14" of colon removed and 3 additional surgeries for a rectocele, entrocele and another bowel prolapse. I have been severely constipated before and after surgeries. I have tried evert kind of otc med, laxatives, fibers and many prescribed meds, drink 1/2 gallon of water, swim 4-5 times weekly, do zumba nothing works. I have thrown up after 6 days of not going. I have pains in right upper and left lower abdominal areas. I am enema dependent to empty my bowels, it is a painful process and can last for 3 hours every time I do it. 2 surgeons recommended colectomy, 1 did not. 1 GI recommended surgery, 2 did not. I am a young 72 and want to continue living actively with less difficulty. Anyone have surgery that worked, and what kind to eliminate this problem? I have been told that colectomy can also produce bloating, gas, things I am already dealing with. Thank you for your help
JN

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@jcarndt

I agree totally about the doctors. I have two, one in the city where I live and one at a teaching hospital two hours away. We have video visits every three months. If I have a question for him, I have to go through his "gatekeepers" using the patient portal. THEY decide which messages are important enough to pass along. I often think they don't even take the time to read the entire message, because they only give me half an answer. Or an answer that does not pertain to me at all. Beyond frustrating. Getting them to answer a phone message is rare.
I'm at the point where I'm basically treating myself, except I cannot write a prescription. Our Medical system is beyond broken.

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I wish they would use the portal. My neurologist/headache specialist at Cleveland Clinic uses My Chart. My messages do initially go through her clinical team but then are passed through to her. “She” answers them herself. And if you reply with another question, it goes directly to her. I love her and that system works great! I wish I could find a gi that would do the same. It would change my life.

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I am curious to learn if anyone has lower abdominal pain, right , ascending colon area, and left sided pain, descending colon area when FINALLY having a BM following days of constipation? I do. I get the same pain when using an enema every other day. I am trying to understand the reason for this pain. I do have a tortuous colon could with severe constipation.
Thank you for your help.
KJN

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@kjn72

Thank you for responding.
I haven't tried Motegrity, $200 better than 600.00, not great though, it is a good idea to ration it.
I am researching gastric pacemaker for motility issues, found it only for gastroparesis.
Had to use enema last night, barely any response, 1st time that happened and it concerns me.
How can I learn if MAYO has tried gastric pacemaker for motility issues?
Thank you

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@kjn72 - I can’t find any information about use of gastric pacemaker at Mayo for motility- except for gastroparesis.

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@astaingegerdm

@kjn72 - I can’t find any information about use of gastric pacemaker at Mayo for motility- except for gastroparesis.

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Thank you so very much for investigating! I discovered the same looking at other websites

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Have y’all been tested for SIBO
Small intestinal bacteria overgrowth?

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@carndt - How familiar the inappropriate or 1/2 answer is to my emailed questions to my physician! I try to constrain myself to one simple question per email and space them out. Or I just repeat the email . And repeat. I shut my windows when I scream with frustration so I don't annoy my neighbors. It helps.
Gastroenterologist Dr. Robynne Chutkan has occasional live Zoom presentations I get some helpful ideas from. Below is the most recent interview of her I found on the web. It focuses on the sale of her most recent book but she covers constipation and bloating in some of her older books.
https://www.youtube.com/watch?v=Z9slzS5QjN4

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@notmoff

@carndt - How familiar the inappropriate or 1/2 answer is to my emailed questions to my physician! I try to constrain myself to one simple question per email and space them out. Or I just repeat the email . And repeat. I shut my windows when I scream with frustration so I don't annoy my neighbors. It helps.
Gastroenterologist Dr. Robynne Chutkan has occasional live Zoom presentations I get some helpful ideas from. Below is the most recent interview of her I found on the web. It focuses on the sale of her most recent book but she covers constipation and bloating in some of her older books.
https://www.youtube.com/watch?v=Z9slzS5QjN4

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I wish my new gi would use his portal. He wants me to just call his nurse. He does have a site to message, I may just try that the next time anyway. Maybe if she “reads” it she’ll get it right!
I hear you about the screaming! My poor husband is bearing the brunt of my frustration. Unfortunately, between the pain and dealing with health professionals, my patience is down to practically nothing.

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@4846

Have y’all been tested for SIBO
Small intestinal bacteria overgrowth?

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Yes. I have SIBO-C. Hard to treat and hard to cure.

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@carolmaeray

Yes. I have SIBO-C. Hard to treat and hard to cure.

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Yes me too 😞

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@4846

Yes me too 😞

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What have you trying to help the best thing so far? I’ve done is use the low fermentation diet.

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