Redundant / Tortuous Colon

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

Liked by gibssy174

Besides the resections, they took out ileocecal valve. That causes SIBO and explosive diarea 😱😱

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@nova1976

Besides the resections, they took out ileocecal valve. That causes SIBO and explosive diarea 😱😱

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Oh so I don’t know what would be worse not going are going all the time thanks for the input

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Lol ok think that is what mine is ugh thanks for the info

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Sorry too here that good luck

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@amyvb

I have had IBS-C issues for as long as I can remember, but about 7 years ago they became chronic to the point where I can go a week (or more) without any bowel movement if I'm not taking laxatives. I have had dozens of tests, and the only useful information I have received so far was from a visit to the Mayo clinic in Rochester a little over a year ago, where they discovered I have a "highly tortuous colon" and could barely complete a colonoscopy. The recommendations at that time included increasing my fiber, which doesn't help at all. Other tests have also revealed that I have a partially prolapsed lower colon, but not to the point where surgery would be a good idea. Taking fiber supplements makes me extremely bloated and becomes unbelievably painful, and Miralax makes me sick to my stomach and doesn't do too much to move things along. I've tried different things with my diet, and right now, I mostly eat white rice (brown is too hard to digest), vegetables, and small amounts of protein. I feel like i'm going a little crazy trying different things like eliminating dairy or other food restrictions, but I don't know what else to do. I completely avoid gluten. I've been very active my whole life…have run marathons and done lots of strength training and different types of endurance races, but recently I don't have the energy for the types of training that these events require. @karena65 Do you have a resource that you can share on the whole plant diet? Is there any other advice anyone can share?

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Hi-I was recently diagnosed with torturous colon as well. It makes sense since Menopause I’ve experienced worse IBS symptoms. My doctor told me to add ground flaxseed to my diet and I can say this works really well! I sprinkle it ontop of food -you really don’t taste it- and it keeps me regular and stools are easy to pass. I had two polyps so I’m waiting for my results but not worried. Anyway ground flaxseed is definitely the trick for me -very high in fiber.

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@jennb

Hi-I was recently diagnosed with torturous colon as well. It makes sense since Menopause I’ve experienced worse IBS symptoms. My doctor told me to add ground flaxseed to my diet and I can say this works really well! I sprinkle it ontop of food -you really don’t taste it- and it keeps me regular and stools are easy to pass. I had two polyps so I’m waiting for my results but not worried. Anyway ground flaxseed is definitely the trick for me -very high in fiber.

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Welcome to Connect, @jennb, and thanks for sharing your insight about flaxseed. The therapeutic and beneficial properties of flaxseed are well known, and there is growing research to support its use. You might be interested in reading this journal article about "Dietary Flaxseed as a Strategy for Improving Human Health” https://www.mdpi.com/2072-6643/11/5/1171/htm

May I ask if you would share more details about the polyps you mentioned? Did you have a biopsy to determine their status?

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@kanaazpereira

Welcome to Connect, @jennb, and thanks for sharing your insight about flaxseed. The therapeutic and beneficial properties of flaxseed are well known, and there is growing research to support its use. You might be interested in reading this journal article about "Dietary Flaxseed as a Strategy for Improving Human Health” https://www.mdpi.com/2072-6643/11/5/1171/htm

May I ask if you would share more details about the polyps you mentioned? Did you have a biopsy to determine their status?

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I don’t have the results yet for the polyps – my doctor looked briefly at them and said she wasn’t concerned so I am hoping she knew what she was talking about. I use ground flaxseed and sprinkle it on top of my food. I’m also making a much better effort to drink more water -the objective is to keep things moving in my digestive track.

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I just found this group and finally have found others who understand the horror the I have endured all my life. I am 75. I was diagnosed with redundant ,tortuous colon several years ago after two unsuccessful colonoscopies. no bmproduced from preps!). I have found mag-07 effective also have recently been inserting each morning a ducolax medicated suppository. The suppository works in just a few minutes. I am wondering if the suppository will create a dependence. Does anyone else use this on a daily basis?

Liked by jethomas82

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@onaquest

No it is not. Redundant and tortured colon means you have extra colon (redundant) and twisted (tortured). I do have some diverticulosis, but I haven’t had diverticulitis.

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Oops, I meant to post this reply to the explanation of the torturous vs redundant colon above. I don’t know how to move it, please forgive me for any confusion this caused.

Hello,

Most of what you said is right but I have one little correction to clarify things (based on what my GI doctor told me).

I have a torturous colon and was told that it means that my colon has many more bends/turns in it than a “normal” colon. A redundant colon has many more loops. Both of these are the result of the body packing a longer tube than normal into the space a “normal” colon would fit.

Twisting of the colon in either condition is a medical emergency, whereas I can live with a torturous colon everyday (although I wish I didn’t have to because mine is symptomatic).

Also in reply to the op, I have not had surgery yet, although I eagerly would if my finances were better. I have tried so many things to relieve pain, discomfort, and distention; including starting from an extremely simple diet recommended by my GI and slowly adding different foods to find my triggers. We’ve added fiber, removed fiber. Greatly increased my water intake, when it started off better than normal. Plus a laundry list of medicines. The only progress we’ve made is to give me horrible diarrhea when the pressure in my abdomen becomes too great (I’ve suffered from chronic constipation my whole life). My GI worries I may have a rupture too but until my circumstance change, we do what we can. I don’t know if that helps but if I were you, I would get a second opinion from another surgeon (although if you’ve never had abdominal surgery, just be aware that hernias may become another problem you may have to deal with after).

Well wish & good luck.

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@jethomas82

Oops, I meant to post this reply to the explanation of the torturous vs redundant colon above. I don’t know how to move it, please forgive me for any confusion this caused.

Hello,

Most of what you said is right but I have one little correction to clarify things (based on what my GI doctor told me).

I have a torturous colon and was told that it means that my colon has many more bends/turns in it than a “normal” colon. A redundant colon has many more loops. Both of these are the result of the body packing a longer tube than normal into the space a “normal” colon would fit.

Twisting of the colon in either condition is a medical emergency, whereas I can live with a torturous colon everyday (although I wish I didn’t have to because mine is symptomatic).

Also in reply to the op, I have not had surgery yet, although I eagerly would if my finances were better. I have tried so many things to relieve pain, discomfort, and distention; including starting from an extremely simple diet recommended by my GI and slowly adding different foods to find my triggers. We’ve added fiber, removed fiber. Greatly increased my water intake, when it started off better than normal. Plus a laundry list of medicines. The only progress we’ve made is to give me horrible diarrhea when the pressure in my abdomen becomes too great (I’ve suffered from chronic constipation my whole life). My GI worries I may have a rupture too but until my circumstance change, we do what we can. I don’t know if that helps but if I were you, I would get a second opinion from another surgeon (although if you’ve never had abdominal surgery, just be aware that hernias may become another problem you may have to deal with after).

Well wish & good luck.

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I have this as well as several other conditions with the colon and they have gone from saying I would only need meds to needing a pain clinic to a complete removal of the colon and wearing a colostomy bag so not very happy with my care from there this time a round good luck too you

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@lanette23

Hello all I am new to this group I too was just told that I have tontuous colon a long with 1.) chronic ldiopathic constipation 2.) dysfunction constipation outlet 3.)rectocele 4.) diverticulosis 5.) some more polyps and 6.) adhesions from many abdominal surgeries.. Most days the pain is unbearable but I work through it, but I feel that I am short with family, friends, and people in general and that isn't who I am I am at a loss
I have no idea what would be the best way too deal with all this. I have tried all the meds out there different diets and now I just don't know what the best treatment would be. Help, ideas, any advise would be welcome. Thanks LaNette

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.

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@jethomas82

Oops, I meant to post this reply to the explanation of the torturous vs redundant colon above. I don’t know how to move it, please forgive me for any confusion this caused.

Hello,

Most of what you said is right but I have one little correction to clarify things (based on what my GI doctor told me).

I have a torturous colon and was told that it means that my colon has many more bends/turns in it than a “normal” colon. A redundant colon has many more loops. Both of these are the result of the body packing a longer tube than normal into the space a “normal” colon would fit.

Twisting of the colon in either condition is a medical emergency, whereas I can live with a torturous colon everyday (although I wish I didn’t have to because mine is symptomatic).

Also in reply to the op, I have not had surgery yet, although I eagerly would if my finances were better. I have tried so many things to relieve pain, discomfort, and distention; including starting from an extremely simple diet recommended by my GI and slowly adding different foods to find my triggers. We’ve added fiber, removed fiber. Greatly increased my water intake, when it started off better than normal. Plus a laundry list of medicines. The only progress we’ve made is to give me horrible diarrhea when the pressure in my abdomen becomes too great (I’ve suffered from chronic constipation my whole life). My GI worries I may have a rupture too but until my circumstance change, we do what we can. I don’t know if that helps but if I were you, I would get a second opinion from another surgeon (although if you’ve never had abdominal surgery, just be aware that hernias may become another problem you may have to deal with after).

Well wish & good luck.

Jump to this post

Hello , I am 27 years old male, very athletic build and does regular physical activity, but i have always had this problem of bloating and sense of incomplete evacuation and constipation since i was 18 yrs old, many of the consultation ended up describing it as irritable bowel syndrome and prescription of laxatives and fibres which didnt help at all. But I recently underwent colonoscopy and was diagnosed with redundant sigmoid colon and they say I have to have a surgery to improve my symptoms. Being young and the sole bread winner for my family, I am devastated. I am ready to undergo the procedure but I am being informed that the result is not guaranteed and there may be worsening of symptoms. I am lost, if anyone out there with similar problems post or pre surgery please do share ur views to help me out…thankyou

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@gibssy174

Hello , I am 27 years old male, very athletic build and does regular physical activity, but i have always had this problem of bloating and sense of incomplete evacuation and constipation since i was 18 yrs old, many of the consultation ended up describing it as irritable bowel syndrome and prescription of laxatives and fibres which didnt help at all. But I recently underwent colonoscopy and was diagnosed with redundant sigmoid colon and they say I have to have a surgery to improve my symptoms. Being young and the sole bread winner for my family, I am devastated. I am ready to undergo the procedure but I am being informed that the result is not guaranteed and there may be worsening of symptoms. I am lost, if anyone out there with similar problems post or pre surgery please do share ur views to help me out…thankyou

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Dear @gibssy174: i am faced with your exact situation but I am 74 years old: to have to go through this at your age should never happen you have all my sympathy. Because of the risks involved with the procedure & the lack of guaranty that my symptoms will disappear I have decided to first try & work with a nutritionniste it is a lot of work to keep track of everything you eat every day to find out what you react to but it is better than surgery which would mean you would end up with a new anatomy which is the unknown & not necessary better.. could be worst! You must remember that stress plays a big role with IBS for sufferers such as ourselves. So stress reduction must be part of the solution (meditation exercise etc. etc.). After you have given a good try to these things if they do not work (I bet they will..) then you may consider surgery after knowing PRECISELY what you are getting into. The best of luck & keep us posted I will do the same

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@oceanone

Dear @gibssy174: i am faced with your exact situation but I am 74 years old: to have to go through this at your age should never happen you have all my sympathy. Because of the risks involved with the procedure & the lack of guaranty that my symptoms will disappear I have decided to first try & work with a nutritionniste it is a lot of work to keep track of everything you eat every day to find out what you react to but it is better than surgery which would mean you would end up with a new anatomy which is the unknown & not necessary better.. could be worst! You must remember that stress plays a big role with IBS for sufferers such as ourselves. So stress reduction must be part of the solution (meditation exercise etc. etc.). After you have given a good try to these things if they do not work (I bet they will..) then you may consider surgery after knowing PRECISELY what you are getting into. The best of luck & keep us posted I will do the same

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Sure sir , thankyou.

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Gibssy, I would be very cautious about taking that advice until you have researched the condition very carefully. They recommend surgery, but you can accept or decline that recommendation. Some people on this blog have had the surgery and it did not help. Other took different options for addressing the problem and have gained some stability.

Personally, I started following the Plant Paradox diet and I am about 75% better, and improving every day. The Plant Paradox diet, the Paleo Diet and the surgery are all controversial…strong opinions pro and con on all of these.

Take some time, sort out a few things for your own physiology.

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