Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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Profile picture for heathert @heathert

Hi, I have the same issues, hoping all is well with you. How are your bowels doing with the intermittent fasting, and how long and how often do you fast for

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Not doing IF anymore. Things are going pretty well, just have to get enough fiber and keep moving!!

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Hi I am new to this site, Sorry you are all also going through this. I have a redundant colon also, and get a pressing, swollen feeling in my left groin area often. Like others on here I feel I have slow digestion. I also have had small balls, not normal s shape, for many many years. I have been loading up on all fibre and drinking lots too but have had no change.I have been reading lately that insoluble fibre is not good for redundant bowel(as it bulks you up and therefore is more difficult to go), but soluble fibre is great, Is anyone on here doing this diet and is it working for you?

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Profile picture for becky12 @becky12

I'm in the same boat. Lifelong constipation (I'm 55) and bloating. I was diagnosed after getting yelled by the nurse for not being sufficiently empty for my colonoscopy. I drank every drop, but it had a long way to go to reach the exit LOL. My GI doc said next time we'll start a week ahead of time rather than 2 days.

Intermittent fasting has improved my bowels considerably, and I really hope, respectfully, to never be in your shoes! No fun! Hang in there:)

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Hi, I have the same issues, hoping all is well with you. How are your bowels doing with the intermittent fasting, and how long and how often do you fast for

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Profile picture for researchmaven @researchmaven

With my extremely sensitive gut, I eat easy-to-digest foods, stay hydrated, use a magnesium supp at night (I use Gentle Bowel Support by Hilma), use slippery elm powder - inner bark with every meal, which is key (I use Frontier's brand); the powder can be incorporated into food or added to a hot liquid or cold smoothie - the powder adds slip which moves the stool; I think it also protects and soothes the colon. There are capsules available, but that dose is too large for me. My gut does not tolerate OTC fiber/prescription laxative products.

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Thank you!

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Profile picture for annbk @annbk

I recently had my first colonoscopy. When I read the notes, I was surprised to read that I have a "loopy" colon. My lifelong chronic constipation suddenly made sense. For the past 20 years, I have successfully treated the problem (without knowing the cause) by eating at least 1/4 cup of amaranth per day. It works amazingly well. If anyone wants to try it and would like recipes, let me know.

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Hi Annbk
Best of luck. Stick with it and you can find just the fit for you! I am so glad I didn't even consider surgery after finding out about my longer than usual colon! You can form fit the changes you need for just you. Be sure to be active too.
Disclaimer: Only my experience going natural for chronic constipation and come to find out redundant colon. I have used organic, integrative, functional, holistic Naturopathic doctor's advice along with my MD’s since the early 1980's. There is science in alternatives too.
I work closely with my ND, he told me to study the Migrating Motor Complex and Osmotic Gradient and he bet that I would find something that worked for me. Goal: how to keep a longer than normal pipe consistently moist…. My ND also said because my condition was physical, attention would be needed from now on.
I tried laxatives and they are not consistent and have side effects like bloating, etc. All say for occasional use. They disrupt the system if taken continuously. I liked a response from a co-redundant colon person: “It’s physical” so regular constipation suggestions may not work. Don’t give up because it took me 4 months to feel I could depend on being regular. It is worth going natural.
Dec 2023 the doc had me do non sedated colonoscopy. He went through my colon as I watched on TV. I had had a baby years ago (natural and could stand pain) so figured I could stand it – it was no big deal. Most people in world don't get put out. Very interesting and it helped allow the scope to get through because I relaxed. No wonder I had been constipation on and off starting in my teens. I’m now in my early 70’s.
OptiMag and K2+ Potassium are great supps. I take them when I go to bed and once in the night. I include prunes/prune juice, winter squash, sweet potatoes, rhubarb etc in my diet. I eat cups of steamed vegetables each day. I grind 2T chia, 1 T sesame seeds and 2 T flax seeds, then soak in prune juice overnight. I add a T or two of carob now since it can help regularity. Take half in the morning and half at night or all in the morning. Throw sugar out along with processed and refined foods. Look up foods and drinks that constipate and give them up, at least as a test. Drink lot of water starting with a quart of hot water in the morning - boy scouts. I use warmed up diluted chicken broth at times too. It is soothing to my stomach. Coffee and Smooth Move are my back ups. I don't like coffee and never have drunk it much but it usually works for me in a pinch. Thankfully I only need coffee a few times a month.
Check out helpful research of biological processes that take place in our gut:
- Migrating Motor complex which is the electroactivity in the GI tract during meals and fasting
- Osmotic gradient. If too much water is pulled into the colon, diarrhea results. If not enough water is pulled into the colon constipation results. Balance of minerals is important. Magnesium, potassium and sodium brings water into the colon. I have found balancing these help prevent constipation. I have to watch my calcium supplement intake because it tends to encourage constipation. Calcium carbonate seems to be the most constipating. I depend on blood work from time to time to make sure my minerals are balanced. Oh and letting stress go is important too - I know how scary it can be. Golly it seems there is no hope for relief but it is worth looking at diet and trying lifestyle changes that can help. Good luck, @farmersmith

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Profile picture for annbk @annbk

I recently had my first colonoscopy. When I read the notes, I was surprised to read that I have a "loopy" colon. My lifelong chronic constipation suddenly made sense. For the past 20 years, I have successfully treated the problem (without knowing the cause) by eating at least 1/4 cup of amaranth per day. It works amazingly well. If anyone wants to try it and would like recipes, let me know.

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In reply to @lonestarinitaly "Me too. Thanks." + (show)
Profile picture for lonestarinitaly @lonestarinitaly

Me too. Thanks.

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I find nicotine gum to be very helpful.

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Profile picture for annbk @annbk

I recently had my first colonoscopy. When I read the notes, I was surprised to read that I have a "loopy" colon. My lifelong chronic constipation suddenly made sense. For the past 20 years, I have successfully treated the problem (without knowing the cause) by eating at least 1/4 cup of amaranth per day. It works amazingly well. If anyone wants to try it and would like recipes, let me know.

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Yes, I would like recipes. Bzzyladyinfl416@hotmail.com
Thank you.

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Profile picture for bxavier1 @bxavier1

Hello. I have terrible constipation as well. Does amaranth have stimulant effect or bulk forming?
Thanks

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Never heard of it. How/where does one find it?

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