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Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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Yes! And it has affected my quality of life!
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2 ReactionsHi. I was just diagnosed as well. I experience severe constipation & stool leakage. It has effected my quality of life for the last 1 1/2 years.
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2 ReactionsRelaxation therapy for my redundant colon, as anxiety is one of the things that cause my guts to "twist" and bloat. Also, massage for constipation for bloat too. Sleeping on my left side (for gravity to move things along), avoiding dense foods (dense bread/meat/etc.). Focusing on liquidy soups and hot cereals. Little to no meat.
I have made a large number of adjustments. If all that stops working I just don't know what else would do the trick.
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3 ReactionsI just posted that I recently learned I have a Tortuous Colon, hoping to visit with others experiencing the same. I hope we can talk….cdeebar
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1 ReactionI asked to get part of colon removed. Said next time I get a blockage to go to er
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2 ReactionsOh yes major constipation!!!!
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1 ReactionNo weight loss due to the fact that I also have Graves’ disease and take medicine to get rid of extra thyroid. Which gets rid of metabolism 😾
Diabetic too. Such a struggle. I get severe bloating with a lot of air. Pain mostly in left upper quadrant. My bowel gets all twisted up there! Reminds me of feeling a baby move in that area!
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2 ReactionsOh my do they put something in to keep track of
Years ago they would do a barium swallow with small bowel follow thru?
https://www.sitzmarks.com/
The Sitzmark ring test is a colonic transit time test.
Have you lost weight without trying? Do you have constipation? What's your symptoms?