Anyone else have a Redundant/Tortuous Colon?

I was just diagnosed with a redundant or torturous colon. I also have a hiatal hernia, esophagus motility issues, and acid reflux. What I have discovered is that there is no medications, supplements, or diet that will totally correct these issues. I quit taking PPI inhibitors because of the recently released study that they can cause a 30% chance of early onset dementia and I have a family history of that. So, I have been left with trying to figure all this out on my own. My Gastroenterologist prescribed heavy doses of Miralax to clean me out and said to take 1 capful, three times a day for maintenance. Well, that was awful! I was having accidents (if you know what I mean) so I had to stop it. Then I read on this blog that someone said a supplement called Cleanse More helped them (magnesium supplement) so I asked my doctor about it and he said it was safe to take and told me to take 2 capsules every other day. That was touch and go. Two capsules seemed to be too much and one wasn't enough so right now I just started back on 1 capful of Miralax once a day and two Cleanse More capsules every other day. We'll see what happens. Regarding the high-fiber diet, I have read conflicting reports and my doctor told me that a low-fiber diet is better for this condition. High-fiber foods will cause too much bulk and will be harder to pass through. I have also seen a surgeon regarding the colon issue and he said surgery is a last resort but to come back to see him if I cannot get a handle on this. It is so confusing trying to figure all this out!

would love the recipe for amaranth to help with chronic constipation. Nothing I eat or drink helps-my doctor said I was beyond diet. But would like to try your recipe rather than take trulance or linzess.

I recently had my first colonoscopy. When I read the notes, I was surprised to read that I have a "loopy" colon. My lifelong chronic constipation suddenly made sense. For the past 20 years, I have successfully treated the problem (without knowing the cause) by eating at least 1/4 cup of amaranth per day. It works amazingly well. If anyone wants to try it and would like recipes, let me know.

Try one of the Mayo clinics. Good luck!!

I am not better, I am worse. I now have 2 inguinal and 1 incisional hernias. This is all left over issues from my appendix rupture in 2015 while at sea on the Atlantic Ocean. My first of many surgeries took place in the Azores.
I cannot get surgery because no one wants to get involved in my messed up abdominal region. I also think my advantage insurance plan will not pay enough for a specialist to do the surgery. A PPO won’t take me due to preexisting conditions.

This post is old, but I hope you're doing better. You mentioned having mobile cecum. I posted several times for the first time today because I'm trying to find out how other people were treated for that and if it worked. Some people apparently have surgery, but i'm hoping for more details.

I also have a redundant colon along with adhesions and mobile cecum. I have intermittent intestinal obstructions as well. You can drive yourself crazy doing the right thing but it won’t help. Sometime I think doctors give you stuff to eat and do to keep you busy and off their back.

I have been at this too long however and done it all. A tortuous colon is a mechanical thing and no amount of microbiom blah…blah….blah crap will work. It is more the texture that goes through loops. Think of your intestines more like the kitchen sink and what can go down the garbage disposal. If you get stopped up eat only liquids. I take a stool softener daily. Since i am prone to obstructions, i don’t take stimulants. My surgeon told me that you can’t open a locked door and stimulants will make things worse.

Trying different things the doctor tells you to take or do makes him feel that he is proactive to make everyone feel better. Don’t bother as none of it helps. Don’t eat raw veggies. The fiber just stops up the works.

I had surgery in June 2022 for a mobile cecum. The right colon had moved to the left quadrant of my abdomen and created an obstruction. Surgeon just moved the right colon back in place. I just had a CT scan (July 2024) with contrast that showed the ileocecal valve is in the left quadrant, not the right. The radiologist didn’t even mention it as an incidental finding. But I constantly have bloating, constipation, etc. Anyone else have this happen? I had never heard of the ileocecal valve. Does Mayo perform cecoplexy? My surgeon told me in 2022 they don’t work and was thinking of removing the right colon before he moved it back in place. . Looking for viable options if there are any - hoping cecoplexy is a possibility.