Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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Profile picture for farmersmith @farmersmith

It would be great to get your recipe for using Amaranth for natural regularity.
If you or anyone has ideas about the following that would be great. Sorry for how many words I sent. I am exasperated!

Racked with constipation most of my life especially following a near fatal '72 auto accident; pain pills caused such bad constipation manually cleaned. Have been and still am active on an organic farm, did work helping to build seven park hiking trails etc. But also farm surrounded by a big timber company possibly affected by roundup and other herbicides Working on natural regularity and glad colonoscopy OK. Have lived doing organic eating most of my adult life - over 70 yrs

Last colonoscopy I did with no sedative and it was a wondrous trip to see myself from outside in. It turns out, I have a REDUNDANT COLON which makes sense why I'm constipated. There is very little advice + what there is online is contradictory. It appears IBS and redundant colon don't usually happen to the same person. I have some SIBO symptoms along with stress + worry about doing the right things for my health. A person I know with a redundant colon says they eat to keep it moving. She needs more carbs to get the bulk.

Current actions:
- Walk 1 -2 miles on farm trail but have done for years
- Eat organically permaculture veggies and fruit but have done for years
- Eat predominately organic bought food, not processed
- Gastroenterologist who did my last, second colonoscopy without sedation, has me on antibiotic from US and one from India to do SIBO cleaning on my small intestine
- He also has me doing PT to learn not to push and to breathe right for BM. As a gymnast in HS and Jr college I learned to pull in my gut and breathe backwards
- Had hemorrhoids removed a few times over the years by an ND - OK but not complete cure for constipation
- My three ND's feel a redundant colon needs an assist for regularity so trying to find it. Lots of inconsistent advice online
- I WANT NATURAL BUT HAVE NOT FOUND MY REGULARITY CONSISTENT
- Every laxative, softener, etc even natural say things like, DON'T USE MORE THAN A WEEK, ONLY FOR OCCASIONAL IRREGULARITY, etc.
- I use a stool stool my husband made but if I lean too far forward I feel pg and cut off

Thank you for ideas on how to be regular!
Trying:
- Smooth move tea with Senna kind of works but may cause problems if taken continuously
- A quart of warm water am + 3 cups coffee may work but then doesn't
- Lemon juice night and morning seems to help but not always
- Last lesser BM, I threw up my hands and took Citracel (not suppose to take more than a week) + prune juice (not recommended on SIBO cleanse) + winter squash (not recommended for redundant because FODMAP) + rhubarb I froze from the garden. I may try it tomorrow again but will it work two days in a row?
A thought I had: Am I expecting my BM to be in too short a time schedule because of the low motility? If so, how will I manage feeling heavy and pg (I am about right weight) and because my urge is next to non-existence how do I know when to have a BM?
OH BOTHER

@farmer

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I also have a redundant colon along with adhesions and mobile cecum. I have intermittent intestinal obstructions as well. You can drive yourself crazy doing the right thing but it won’t help. Sometime I think doctors give you stuff to eat and do to keep you busy and off their back.

I have been at this too long however and done it all. A tortuous colon is a mechanical thing and no amount of microbiom blah…blah….blah crap will work. It is more the texture that goes through loops. Think of your intestines more like the kitchen sink and what can go down the garbage disposal. If you get stopped up eat only liquids. I take a stool softener daily. Since i am prone to obstructions, i don’t take stimulants. My surgeon told me that you can’t open a locked door and stimulants will make things worse.

Trying different things the doctor tells you to take or do makes him feel that he is proactive to make everyone feel better. Don’t bother as none of it helps. Don’t eat raw veggies. The fiber just stops up the works.

REPLY
Profile picture for annbk @annbk

I recently had my first colonoscopy. When I read the notes, I was surprised to read that I have a "loopy" colon. My lifelong chronic constipation suddenly made sense. For the past 20 years, I have successfully treated the problem (without knowing the cause) by eating at least 1/4 cup of amaranth per day. It works amazingly well. If anyone wants to try it and would like recipes, let me know.

Jump to this post

It would be great to get your recipe for using Amaranth for natural regularity.
If you or anyone has ideas about the following that would be great. Sorry for how many words I sent. I am exasperated!

Racked with constipation most of my life especially following a near fatal '72 auto accident; pain pills caused such bad constipation manually cleaned. Have been and still am active on an organic farm, did work helping to build seven park hiking trails etc. But also farm surrounded by a big timber company possibly affected by roundup and other herbicides Working on natural regularity and glad colonoscopy OK. Have lived doing organic eating most of my adult life - over 70 yrs

Last colonoscopy I did with no sedative and it was a wondrous trip to see myself from outside in. It turns out, I have a REDUNDANT COLON which makes sense why I'm constipated. There is very little advice + what there is online is contradictory. It appears IBS and redundant colon don't usually happen to the same person. I have some SIBO symptoms along with stress + worry about doing the right things for my health. A person I know with a redundant colon says they eat to keep it moving. She needs more carbs to get the bulk.

Current actions:
- Walk 1 -2 miles on farm trail but have done for years
- Eat organically permaculture veggies and fruit but have done for years
- Eat predominately organic bought food, not processed
- Gastroenterologist who did my last, second colonoscopy without sedation, has me on antibiotic from US and one from India to do SIBO cleaning on my small intestine
- He also has me doing PT to learn not to push and to breathe right for BM. As a gymnast in HS and Jr college I learned to pull in my gut and breathe backwards
- Had hemorrhoids removed a few times over the years by an ND - OK but not complete cure for constipation
- My three ND's feel a redundant colon needs an assist for regularity so trying to find it. Lots of inconsistent advice online
- I WANT NATURAL BUT HAVE NOT FOUND MY REGULARITY CONSISTENT
- Every laxative, softener, etc even natural say things like, DON'T USE MORE THAN A WEEK, ONLY FOR OCCASIONAL IRREGULARITY, etc.
- I use a stool stool my husband made but if I lean too far forward I feel pg and cut off

Thank you for ideas on how to be regular!
Trying:
- Smooth move tea with Senna kind of works but may cause problems if taken continuously
- A quart of warm water am + 3 cups coffee may work but then doesn't
- Lemon juice night and morning seems to help but not always
- Last lesser BM, I threw up my hands and took Citracel (not suppose to take more than a week) + prune juice (not recommended on SIBO cleanse) + winter squash (not recommended for redundant because FODMAP) + rhubarb I froze from the garden. I may try it tomorrow again but will it work two days in a row?
A thought I had: Am I expecting my BM to be in too short a time schedule because of the low motility? If so, how will I manage feeling heavy and pg (I am about right weight) and because my urge is next to non-existence how do I know when to have a BM?
OH BOTHER

@farmer

REPLY

I am waiting to get into the Mayo now and have a tortuous/redundant colon and dysergenic defecation as well. I am using the Linzess too but it takes anywhere from 3-6 hours to get away from a toilet and I don’t sleep at night with the pressure I my body. Using the tea are you able to sleep??

REPLY
Profile picture for golladiane @golladiane

Ahhh!!!
I have been trying to get into see a surgeon. Or I’ll have to go on a liquid diet. Everything I eat gets stuck in that bend, and food traffic gets blocked for days and days.
Thanks for the heads up

Jump to this post

I have been experiencing slow motility transit for more than 18 months. I underwent two colonoscopies to rule out any obstruction, but the results showed that the problem is caused by a redundant function. Although I tried using Linzess, it did not work for me. Currently, I am taking Motegrity (1.5mg), which is okay, but what really helps me is a tea called Smooth Moves, which is made from Senna Leaf. I take it every night, and if I miss a night or overeat, I use two tea bags, and after about 12 hours, I get the desired results. You can purchase this tea from any health store. Best wishes!

REPLY
Profile picture for onaquest @onaquest

No it is not. Redundant and tortured colon means you have extra colon (redundant) and twisted (tortured). I do have some diverticulosis, but I haven’t had diverticulitis.

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I agree with you.

REPLY
Profile picture for golladiane @golladiane

I’ve been on Linzess for a couple of years. It’s not working… but two a day does and my gastroenterologist said it’s fine and prescribed me. However insurance won’t cover it.
It’s probably worth the $1200 per month.
But doesn’t seem safe for extended periods.

Jump to this post

I take the highest dose once a day and it was working great at 1st 4 months ago now nothing. I sometimes feel like I’m close to having a blockage. It’s miserable. And scary too. Like.. what’s next?

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Profile picture for patriciaannmelt1 @patriciaannmelt1

I’ve got this problem too with IBS-C and miserable. I’m on Linzess at the moment but it’s not working very good. I’m at a loss now.

Jump to this post

I’ve been on Linzess for a couple of years. It’s not working… but two a day does and my gastroenterologist said it’s fine and prescribed me. However insurance won’t cover it.
It’s probably worth the $1200 per month.
But doesn’t seem safe for extended periods.

REPLY
Profile picture for judithclark @judithclark

For those that seek surgery, surgeons don’t want to do a colon resection as it can make thing worse with additional adhesions. I have two meshes so surgeons really don’t want to attempt surgery. I can’t find a surgeon with the expertise to perform the needed surgery. The Mayo Clinic won’t take me as my insurance is not in my program.

Jump to this post

Ahhh!!!
I have been trying to get into see a surgeon. Or I’ll have to go on a liquid diet. Everything I eat gets stuck in that bend, and food traffic gets blocked for days and days.
Thanks for the heads up

REPLY

I’ve got this problem too with IBS-C and miserable. I’m on Linzess at the moment but it’s not working very good. I’m at a loss now.

REPLY

For those that seek surgery, surgeons don’t want to do a colon resection as it can make thing worse with additional adhesions. I have two meshes so surgeons really don’t want to attempt surgery. I can’t find a surgeon with the expertise to perform the needed surgery. The Mayo Clinic won’t take me as my insurance is not in my program.

REPLY
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