Anyone else have a Redundant / Tortuous Colon?

@jcarndt

Thank you

Hi,
Well right now my main symptoms are constipation, bloating and nausea.
And an almost constant feeling of fatigue. The usual joint pains and some gut pain, but nothing too horrible

Hi!
What are your symptoms?

I have Crohn's disease and a redundant/tortuous colon. I have had two bowel resections, one in 2007 and again in 2015, but constipation was never a problem for me until after the second surgery. I've had the Crohn's disease for many years, but did not even know about the redundant colon until a few years ago. I was reading the report after one of many colonoscopies, and saw those words for the first time. I asked the doctor about it, and he said it was nothing to be concerned about. But I am concerned about it. After about three minutes of research, I realized that there was a direct connection between my redundant colon, and my daily battle with constipation and bloating. I go back and forth between trying to get my bowels moving, and spending the whole next day in the bathroom. Sometimes I feel as though there is a lot of trapped gas in the kinks and loops. The doctors haven't offered much advice on any of this. When I asked if the redundant colon was the cause of the chronic constipation, the answer was "maybe".........
Anyway, I accidentally landed here while once again searching for ways to manage this situation, or at least make it a bit more tolerable. The posts I have read here today have been very helpful. I think I will give the Sennokot a try, because my daily Miralax just isn't doing the job, and I don't even want to think about Milk of Magnesia anymore. It sounds like I need to get more fiber as well. But I'm a little concerned about getting too much because of the Crohns. All I have to do is eat a bowl of oatmeal or a banana, and I'm all jammed up. If any of you have Crohn's and redundant colon, I'm open to any ideas. Or even if you don't have Crohn's. I'm also wondering if there are any exercises that would help.

I would get many more opinions before you have your colon removed. Mine was am emergency so I had 18" removed. It's been a very hard recovery and I am 2 1/2 years out.

I'm sitting at the 4 week after colonoscopy diagnosed with severe tortuous colon and sent home. In constant discomfort but I've got the screaming and fainting pain under control since they did a major clean out when they found stool stuck in the walls of my ascending and in the cecum having to force it out. I got home and was still pooping. I saw the top surgeon in the area and was told there was nothing they can do but remove the colon completely because they can't take out just the twisted almost closed section. I'm down to eating mushed up food as I found solid food is the enemy. But I am miserable. And scared. I am scheduled for rectocele surgery April 4.. That was a terrifying moment when I did that, I made the mistake of pushing. I usually can only get any out if i push it out with my thumb but even that wasn't working. I was diagnosed years ago with hemorrhagic gastritis and gastroparesis by colonoscopy after I luckily cleared out my impacted colon. I had drunk too much water n not enough food and was severely deficient of potassium. I was ok for years except for a lot of bouts of symptoms here n there. I'm on lifetime potassium replacement therapy. I found that magnesium was to help better than M. O. M. so I picked up a cheap bottle n had decent results so I searched extensively for the best out there n came across Synergetic Magnesium Complex... Extra strength 500mg. It worked perfect till I did one of the bipolar no no's n stopped taking them without realizing or understanding why. I am back on it and now I'm going quite a bit every day but that leaves me with the feeling of a constant period cramp. I'm so glad I found this group cause the GI only recommended a virtual colonoscopy in 3 years and return to previous diet... That's it! Same with the surgeon, he basically refused to help because I'm still so young... 48... n he'd have to take it all and I'd be on a bag. Nothing else. WHY don't they tell you ANYTHING? SOMETHING? With it being rare and not easy to find info on it, ya'd think they'd recommend something... Even if just referring them to a website that can offer info. Well, thanks for existing, nice to know I'm not alone but sorry you have to have it too. I'll be following along n will comment when I have ANY changes or can offer a suggestion.

I have had two diverticulitis attacks within one year and after recovery I recently had my 2nd colonoscopy. Both attacks happened while I was constipated. I rarely get constipated except these two times though which is confusing to me. Because of this I am so afraid of constipation. I have been diagnosed with a torturous colon and diverticulosis in all areas of my colon. Up until these attacks I never had a problem with constipation that I can recall. Each night after dinner and a couple of hours before bed I now take a heaping teaspoon Metamucil mixed in at least 8 ounces of water. I do this twice within the 2 hours before retiring for the night usually between 8-10pm. I get up in the morning and drink an 8 ounce glass of water while brewing my first cup of coffee. I usually have 2 cups of coffee in the morning and sometimes(3 times a week) one cup in the early afternoon. I go like clockwork while drinking that first cup of coffee each morning before work. I work a 7:30-4:30 day and also take a gummy fiber before lunch and a gummy fiber after. It has kept me regular for the last 6 months with no days of constipation. I also am trying to drink more water as I am not too often thirsty. When ever dining out I make sure to order a glass of water even if I have another beverage. I have always thought I have eaten a fairly good fiber diet but am trying to amp it up. I do cheat a little here and there with a dessert and a small steak once in a while and red wine in moderation. I have NOT noticed that coffee constipates me but rather helps me stay regular but perhaps it is because I have in the morning after the Metamucil has had a chance to work. I try not to take ibuprofen as it does tend to constipate me as I took it continual for a week when I had broken my wrist a week before my first attack. Are you on alot of other meds? I have heard that many medications do this.

Miralax does not work for me or maybe I'm not patient enough to wait 4 days for it to work. I take Linzess and Milk of Magnesia when that doesn't work as well.

I have constant constipation. I have found GO EASY tea..or a laxative tea works even better than Miralax