1. < Breast Cancer

Recurring breast cancer and rash that is spreading

Posted by pavo5 @pavo5, Apr 18, 2023

Has anyone had a rash on skin come back months after chemo, mastectomy and radiation after triple negative diagnosis? Went back for more chemo but rash isn’t getting better and spreading.
Should surgery be the next step or should a trial drug be considered?

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Zebra | @californiazebra | Apr 25, 2023

@pavo5, my heart goes out to you. Prayers for you that the surgery, drug trials, new medical team will all go as well as it possibly can. I wish I could make this easier for you. ❤

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resort | @resort | Apr 27, 2023
In reply to @pavo5 "The rash was biopsiesd and diagnosed as locally recurring breast cancer. We’re told normally immuno therapy..." + (show)
@pavo5

The rash was biopsiesd and diagnosed as locally recurring breast cancer.
We’re told normally immuno therapy helps and it did lol the weaker cancer cells ay first but the stronger triple negative cells duplicated and made more. We’re told the surgery will be intense as the torso is covered and a lot of skin would be removed. We have been referred to another medical oncologist that will let us know if a trial drug is an option.

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So sorry for all the suffering you are going through. Lots of love and hugs. Have you thought to try integrative medicine like vitamin infusion in addition to conventional treatments?

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 30, 2023

@pavo5, any update on the rash? How are you doing?

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mjwhearts22 | @mjwhearts22 | May 1, 2023

Thank you so much for asking! The rash is finally subsiding, though my skin now all looks mottled. I’ve no idea if it will change more for the better or not. It doesn’t itch anymore so that’s a blessing. Now that I’m done with chemo (starting radiation the 1st of June), maybe I’ll see faster improvement. It’s my prayer, anyway.😊

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pavo5 | @pavo5 | May 3, 2023

Surgery is out because it’s too complex and rash has spread. Doctor has confirmed not inflammatory. Just recurring breast cancer in the skin that is currently localized.
Anyone else have this same diagnosis? Any other options for treatment?

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1 reply
Mentor
Chris, Volunteer Mentor | @auntieoakley | May 3, 2023
In reply to @pavo5 "Surgery is out because it’s too complex and rash has spread. Doctor has confirmed not inflammatory...." + (show)
@pavo5

Surgery is out because it’s too complex and rash has spread. Doctor has confirmed not inflammatory. Just recurring breast cancer in the skin that is currently localized.
Anyone else have this same diagnosis? Any other options for treatment?

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What treatment are they recommending?

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1 reply
pavo5 | @pavo5 | May 5, 2023
In reply to @resort "So sorry for all the suffering you are going through. Lots of love and hugs. Have..." + (show)
@resort

So sorry for all the suffering you are going through. Lots of love and hugs. Have you thought to try integrative medicine like vitamin infusion in addition to conventional treatments?

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No.. tell me more

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2 replies
pavo5 | @pavo5 | May 5, 2023
In reply to @auntieoakley "What treatment are they recommending?" + (show)
@auntieoakley

What treatment are they recommending?

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Nher2 right now is it. Low her2 rating in fish test.. so not sure it will work. We are just trying to contain it at this point.

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resort | @resort | May 5, 2023
In reply to @pavo5 "No.. tell me more" + (show)
@pavo5

No.. tell me more

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From what I read, some institutions give patients vitamin infusion to: a. Control cancer; b. Reduce side effects from chemo. You will need to search “integrative doctor” since conventional doctors won’t give you those.

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Moderator
Colleen Young, Connect Director | @colleenyoung | May 16, 2023
In reply to @pavo5 "No.. tell me more" + (show)
@pavo5

No.. tell me more

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@pavo5,
Here's a link to more information about Mayo Clinic's Integrative Medicine programs
– Integrative Medicine and Health https://www.mayoclinic.org/departments-centers/integrative-medicine-health/sections/overview/ovc-20464567

One of my all time favorite websites is the National Center for Complementary and Integrative Health (NCCIH) https://www.nccih.nih.gov/
In the health info A-Z section you can look up any treatment, therapy, supplement, etc and find out more about how it is used, it's safety and what the evidence says about how it can help or be harmful.

For anyone not sure about the terms integrative, complementary or alternative medicine, start with this article:
– Complementary, Alternative, or Integrative Health: What’s In a Name? https://www.nccih.nih.gov/health/complementary-alternative-or-integrative-health-whats-in-a-name

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