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Recurrent Vaginal Cancer
Hi everyone, I had stage 3 vaginal/lymphnode cancer in 2022. I had chemo, radiation and brachytherapy. I was in remission until May 2025. The vaginal
cancer came back. My Oncologist told me I cannot have more radiation or chemo. He also told me I may not be able to have surgery. Anyone else been through this?
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@jonut Welcome to Mayo Clinic Connect and to our Support Group. You've really been through so much in the past few years. It's good that your cancer care team is monitoring you so carefully. That's a lot of surgery in a short period of time.
This is a very active Support Group and Discussion and so I expect you will get helpful responses to your queries.
How are you feeling?
I’m feeling ok. No pain, just fatigued most of the time. I don’t know if this is from the chemo.
@jonut Thank goodness for no pain. The fatigue? I did not have chemotherapy so I cannot provide you with feedback on that. I did have radiation therapy. I had fatigue with the radiation which I think also came from the whole process.
What does your cancer care team say about the fatigue you are experiencing?
Yes but a different type of cancer ( endometrial )
it came back and I am now on immunotherapy because I can’t have radiation, doing very well on it
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2 ReactionsI will be starting Lenvima 20mg August 5. I read its pretty tough diarrhea naseau muscle n bone pain.
There's a discussion group on fb about keytruda/Lenvima. Look into it very informative.
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1 ReactionMy endometrial cancer returned after 3 years and now in my lungs. Surgery to remove all the nodules was not an option, although they removed two during biopsy surgery. I just finished chemotherapy/keytruda and am now on an every six week keytruda routine. My first two ct scan have shown positive results.
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1 Reaction@qsprite That must have been a huge shock to find out that the endometrial cancer recurred in your lungs. It’s good news that you have finished the chemotherapy and now are on the keytruda routine, with good results. How often do you return for the cancer surveillance checks and CT scans?
I was totally shocked that it was in my lungs. They found it accidentally when I had a precautionary CT scan for some abdominal pain (that turned out to be nothing). I am on an every three month CT scan schedule and see the oncologist every six weeks when I have the Keytruda infusion.
@qsprite In the end, despite the shock, you might be relieved that the lung cancer was detected when you did not have any symptoms. Every three months for a CT scan going forward means to me that your oncologist is being very cautious. And then you see your oncologist when you get the Keytruda infusion. You are being monitored very carefully and I'm so glad to know that.
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3 ReactionsDid you not receive side effects information from your oncology team?
I suppose that you will have to defer to Dr. Google. Or maybe by now you already know, as your post is from June.
I wish you the best.