Recurrent urinary tract infections (UTI)

Posted by mpeters @mpeters, Feb 19, 2018

I have had four uti’s in the last eight months. Of those eight, I had three in three months. I’m wondering if I should see a specialist. I like my primary care provider but he is very busy. Also, if you know of anything I can be doing until my next appointment with my primary care provider, which is three months away.

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I would definitely recommend going to a urologist, especially if you are a female. Last summer I had what appeared to be a UTI (blood in urine). I thought it was a UTI and my primary care doctor was leaning in that direction. She did a urinalysis and it didn't really show an infection, but the usual protocol is to try an antibiotic. She did. The blood stopped. It soon came back. She tested again. Same thing: No real infection. This time she referred me to a urologist, but because of COVD backup, I couldn't get an appointment for almost two months, so she ordered an ultrasound. It showed a tumor "suspicious of malignancy."

While I waited to see the urologist I did some research. Bladder cancer is more common in men, especially older men. However, older men are often in touch with a urologist because of prostate problems. so cancer is often diagnosed early. When women have bladder cancer, it is usually not diagnosed right away because everyone — the patient, the primary care doctor, the gynecologist — assumes that it is just a UTI. By the time it is diagnosed, it is advanced.

It could indeed be just a UTI, but if it's not, a urologist would be better able to diagnose it.

My tumor was/is indeed cancer, and was a high grade cancer that infiltrated the muscle and spread to adjacent lymph nodes. I'm undergoing chemo and when that is done, I'll have surgery to remove my bladder and give me an external bad to collect urine.

I'm not trying to scare you. I just think a urologist would be able to determine if it's indeed something to worry about, or just recurrent UTIs.

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@daphne52

Going through a revolving door of "here, take this antibiotic" and no real discussion of possible reasons for the UTIS, I have lost faith in doctors. The fear of one day needing an antibiotic for a life threatening illness and none no longer work is frightening. I am in the process of trying to get an appointment with Mayo Clinic. I can only pray and hope. My life is at a standstill and feel no light at the end of the tunnel. Hearing that you finally got your answers, I am so happy for you. I feel for all the young people who may suffer a lifetime of misery having this chronic illness. Thank you for taking the time to advise. Kathy

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I requested a visit to the Mayo Clinic in Minnesota and Florida and they both turn me down. Evidently the Urology Clinic feels Chronic UTIs are not something they consider important enough to see the patient. Reading up on UTIs, it appears small amount of women get this illness, maybe once or twice in their lifetime. You would think it not being common, these "Specialist" would have an overly interest in finding a cure or long term medical solutions to help me. Instead, they say they don't have enough Urologists to accommodate UTIs. Who better than a Urologist to aid UTI? This illness stifles your life leaving you bedridden at times and over using different antibiotics, you become immune to their healing effects. I am there.. I am extremely disappointed and disillusioned with the supposedly fact that if you can't get medical help from your hometown doctors, Mayo Clinic is the best place to go to get the answers and medical help. My 33 year old granddaughter also has UTIs and my heart breaks she will suffer a lifetime and eventually be immune to antibiotics. Mine didn't start until menopause. What do I do now? Thank you that I can vent. Kathy

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@daphne52

I requested a visit to the Mayo Clinic in Minnesota and Florida and they both turn me down. Evidently the Urology Clinic feels Chronic UTIs are not something they consider important enough to see the patient. Reading up on UTIs, it appears small amount of women get this illness, maybe once or twice in their lifetime. You would think it not being common, these "Specialist" would have an overly interest in finding a cure or long term medical solutions to help me. Instead, they say they don't have enough Urologists to accommodate UTIs. Who better than a Urologist to aid UTI? This illness stifles your life leaving you bedridden at times and over using different antibiotics, you become immune to their healing effects. I am there.. I am extremely disappointed and disillusioned with the supposedly fact that if you can't get medical help from your hometown doctors, Mayo Clinic is the best place to go to get the answers and medical help. My 33 year old granddaughter also has UTIs and my heart breaks she will suffer a lifetime and eventually be immune to antibiotics. Mine didn't start until menopause. What do I do now? Thank you that I can vent. Kathy

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Kathy, I live in Minnesota, I was seen at Mayo Clinic in Rochester last September. My PCP called the Physicians Referral Line at 1-800-533-1564 and referred me. I was contacted by Mayo within a week, set up an account on Mayo Clinic site, I then filled out the forms on their site. My paper work was reviewed, and they approved my case. It took almost three months before I was seen. Praying You can get an appointment. Kathryn

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@daphne52

I requested a visit to the Mayo Clinic in Minnesota and Florida and they both turn me down. Evidently the Urology Clinic feels Chronic UTIs are not something they consider important enough to see the patient. Reading up on UTIs, it appears small amount of women get this illness, maybe once or twice in their lifetime. You would think it not being common, these "Specialist" would have an overly interest in finding a cure or long term medical solutions to help me. Instead, they say they don't have enough Urologists to accommodate UTIs. Who better than a Urologist to aid UTI? This illness stifles your life leaving you bedridden at times and over using different antibiotics, you become immune to their healing effects. I am there.. I am extremely disappointed and disillusioned with the supposedly fact that if you can't get medical help from your hometown doctors, Mayo Clinic is the best place to go to get the answers and medical help. My 33 year old granddaughter also has UTIs and my heart breaks she will suffer a lifetime and eventually be immune to antibiotics. Mine didn't start until menopause. What do I do now? Thank you that I can vent. Kathy

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Kathy, I suggest you see a reputable urogynecologist . I did and my situation is now well under control. Our female anatomy requires the expertise of more than that of a urologist. I speak from experience.
There is no need for you or your granddaughter to suffer.
This is 2022 after all!

All the best!

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Check out D-manoose We like the NOW brand from Amazon. It helps my husband.

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@jakedduck1

@marigrace89
Good evening from California,
First of all I’m not saying that I’m going to tell you it will necessarily work for you especially since you have another problem.
50% of UTI’s can be cured with drinking an excess amount of fluids. I have witnessed the success of doing so numerous times.
Water is the best. I saw someone else mentioned cranberry juice which obviously can’t hurt and will at least give you a change from water all the time. Cranberry juice has a chemical in it which prevents bacteria from adhering to the bladder wall although it still has not been confirmed that cranberry juice itself does in fact prevent UTIs although plenty of women swear by it so who knows.
it’s good that they’ve done cultures depending on your symptoms they may have done urine and blood cultures and if the urine cultures grew out a particular bacteria when they would test which antibiotics will kill it and so at that point they should’ve called you in a prescription. If you weren’t notified I would assume you may have another issue going on other than a UTI. If they did blood cultures they were most likely checking for septicemia to see if your infection went to your bloodstream. Several other medical conditions can mimic a UTI, one being a fungal infection. I’m not sure but I didn’t think a regular urine culture could detect fungus, maybe someone else knows. Quite a few nurses on here who might know.
DRINK UNTIL YOUR URINE IS EXTREMELY PALE OR EVEN BETTER NEARLY CLEAR!!
I assume your cellulitis is being aggressively treated?
How is it doing?
Hope your well soon,
Jake

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My husband had a skin break out all over his body with heavy blood in his urine. He never had a UTI or sepsis before this occurred. This started 4 years ago and since then he has been hospitalized with UTI's and sepsis many times. Since we discovered a product called D-Mannose his episodes are less severe and further apart. None of his urologist mentioned this to us until we studied it and wanted to try it. Then they said yes, it is ok to try. Now I am finding that some medical research is showing that it is a treatment showing promise for treatment of Urinary tract cancer. Do your research and ask your doctor. We use the Now brand powder from Amazon.

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@rndexter
I have a history of kidney stones and my urologist said to eat an orange everyday or drink a glass of lemonade. Lemonade, an orange & lemon water are excellent to help prevent UTIs along with lots of water to flush out the bacteria.
Jake

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