What's recovery after distal pancreatectomy and splenectomy like?
Can anyone give me information on how their recovery was after distal pancreatectomy and splenectomy? After 2 years of MRIs every 6 months and watching an MNC slowly but steadily grow, my doctor said that I should have this procedure. I'm 45 and typically a fairly healthy and active female. I'm trying to figure out how much time I'll need to be off of work or if I can manage to squeeze in in during the summer yet while I'm off.
Thank you for any information you have!
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I had a DP w/splenectomy in Jan, 2023. I recovered for 5 days post op in the hospital. Had a drainage tube which was removed within 3 days. No infections. I recovered fine with zero complications however I now have to take Omaprezole twice per day due to burning in my stomach. I cut out all fatty foods other than avocados & healthy fats. I’m vegan so that has not bothered me. I also cut out all alcohol which does bother me a bit. Trying to not eat any sugar. Sometimes that is difficult to avoid since it’s in everything. For the most part I am back to normal except now I’m on chemo.
I hope your surgery goes well.
So glad to hear that you are not experiencing complicated problems from this surgery. It helps to hear how others have done. Appreciate your comments!
I had a distal pancreatectomy and spleenectomy at Mayo in November. Surgery went well, just a little abdominal pain afterwards and some gas pains. The best thing to do is get up and move no matter how painful. It alleviates some of the gas pain. I have not needed any enzymes or insulin but I just watch my fat intake. I am back to doing everything I did prior to chemo and surgery (hiking, bike riding, canoeing). I feel wonderful. Hoping the best for you and anyone that has to go through this for this awful disease.
You are amazing. I have surgery scheduled for tomorrow and I hope I will have the courage you had in dealing with the complications
Thank you! Very helpful
I had a distal pancreatectomy/splenectomy in 2016 (7 years ago). At that time I was in my late 20's. A few things have changed in my life after my pancreatectomy. First I no longer have daily pain now that my tumor is gone, that is the good news. However, I can no longer drink alcohol due to getting pancreatitis from consumption. I also now take digestive enzymes with all my meals to better digest food. I have also had two pregnancies since my pancreatectomy and got bad gestational diabetes with both babies and had to go on insulin. But going back to 2016 for post surgery recovery I was in the hospital for 11 days. My procedure was done at Mayo Clinic laparoscopically. I had some post surgery complications my incision site on my pancreas leaked and I had to get a drain put in. I got to wear this drain for a month. It does take a lot to care and clean the drain daily. Also once my drain was put in I had to get a nose tube put in to suck the leaking pancreatic fluids from my stomach, so I was hooked up to a bed for three days straight. This was the worst part of my recovery since I could not talk or eat with my nose tube in. After I got my nose tube taken out I was so weak from not eating or moving for days that I had to use a walker to walk. I sure did not feel like a 27 year old at this point. My full recovery time till I felt pretty good to eat normally and leave the house was about 12 weeks. Feel free to reach out to me if you need any support or have questions.
Guaranteed quick recovery from everything when you travel for fun. Especially if it includes walking and sunshine!
@gamaryanne Encouraged to read about your recovery and the fact that you have been able to travel to Portugal. Must have felt great. Congratulations. I had a laproscopic/robotic distal panreadectomy and splenectomy at MGH in Boston on May 17. Was discharged 48 hours after surgery and recuperation has been relatively easy. I was up and about every day and increased walking up to 3 miles by the end of week two. I just started the first of 8 cycles of chemo (oxaliplatin, irinotecan and 5Fu) So far no side effects. However I undersatnd that side effects may accumulate over the course of treatment. Although I know that every patient is different, any advise you have to offer would be appreciated. At the conclusion of chemo I'll be doing 28 days of radiation. Looking forward to a time when we can make up that trip to Amstredam planned for early May that was abruptly cancelled due to my diagnosis. Thanks in advance, Steve
I am sorry to hear that. Can I ask why you had to have it done?