What's recovery after distal pancreatectomy and splenectomy like?

Thank you for sharing your experience……I am hopeful that this nightmare is nearing a resolution…..I too have lost over 40 lbs and am pretty weak. Will be getting Drain check today……have had goood flow for past week and no fever……a big improvement……..and I seem to be able to eat more frequently and consume more at each meal.

Infection was about 2-2.5 weeks after surgery. It took over a month to clear up and the drains remained for almost three months. Very long process and going in to IR every other week for drain repositioning wasn’t fun either. And then after they removed one of my drains the hole closed and became a huge abscess on the outside of my body that then needed to be lanced, drained, and left me with a hole to pack. Yuck. I also lost 40 pounds and had to force myself to drink shakes, smoothies, anything I could handle. Then my drain was collecting stomach contents and they finally removed it. Nightmare! Oh and after all that starts chemo! This is a beast. But I recovered from all the surgical stuff at a little over the three month mark. after the last drain was removed I felt much better and healing went well from then on. You will get through this but it sucks. Sorry you’re part of the PC club. 🙁

When did you experience the infection and are you fully recovered, no more drain etc.? I have fought pockets/ abcess infection since 1 week out of hospital post OP……fevers, no appetite, drains that did not drain because of thick puerile accumulation in the pockets……it has been 2 months and I am still draining pancreatic fluid……how does this end and how long?

About 2.5 weeks after surgery I went home and could not control the pain at all so badly the next morning we called an ambulance I was readmitted for IV antibiotics and stayed another ten days. I’m glad his is manageable at home. It’s a long healing process! He’s lucky to have you!

My husband had a distalpanc/splenectomy too. He also developed fluid pockets and an abscess. Can you tell me how long after the surgery you got the infection? My husbands was three weeks later. He did not have to be hospitalized again luckily but I am still [acking his wound. Best of luck to you!

I had the distal panc/splenectomy. Dr Kendrick did an amazing job laparoscopically and had veins to reconstruct. Unfortunately, I had pancreatic leak with the small remaining piece of pancreas and developed fluid pockets and an abscess. I was in the hospital for a month and out of work for three months recovering and dealing with drains, infections etc. a friend of mine just had the same only with open surgery and her recovery has been very difficult as well. Much more so with an open wound from chest to belly button. If you can get it done laparoscopically, it’s an easier recovery from a wound healing perspective. Keep in mind that you may also have diabetes after surgery depending on how much pancreas is taken. That’s a challenge to manage at the beginning as well.

Good luck ti you and your partner. My husband just had 50% of his pancreas removed and his spleen removed; plan on 6-8 weeks recovery but so far he is doing well! No heavy lifting but lots of walking helps.

Gall bladder too ?? wow
why was that ?? all during same op ? and how long ago ?

Theres very few dieticians in regional cities like mine and ive found Naturopaths suggestions are not really suitable for the double banger of diabetes and a poorly functioning pancreas. Op was Oct and in june i developed a fungal rash in 6 places. Weird !! Before that in march I got a Staph infection --giant multi headed boil from the "post splenectomy" Meningaccocal injection and in April had the last compulsory vaccine for Pneumonia-- which caused my remaining bit if pancreas to start throwing clots !!
My pancreas had centre removed & head & tail stapled together but tail is dying so it weeped a fluid that caused severe infection. Hence 3 overnighters in hospital. January, March & April
Now feeling pretty normal --except finding correct diet is tricky--conflicting advice
All the best to you too--we are lucky to not have had the dreaded sorry we cant help talk

My hubby had CT for hernia repair and the specialist at the Gold Coast private found lesion in his pancreas, hernia has to wait. He's had ERCP and gastroscopy and confirmed pNET but encapsulated. PET Scan didn't appear to have spread. Eversince, lots of frustrations, stress, tears, fears and the outcome be like. He is having distal pancreactomy + spleen removed on the 6/9/23 at the GCUH, Australia. I'm his partner n a carer so taking time off from the hospital. As I read through peoples experiences, I am hoping that hell recover quicker,