What's recovery after distal pancreatectomy and splenectomy like?

Posted by blw77 @blw77, Jun 6, 2022

Can anyone give me information on how their recovery was after distal pancreatectomy and splenectomy? After 2 years of MRIs every 6 months and watching an MNC slowly but steadily grow, my doctor said that I should have this procedure. I'm 45 and typically a fairly healthy and active female. I'm trying to figure out how much time I'll need to be off of work or if I can manage to squeeze in in during the summer yet while I'm off.

Thank you for any information you have!

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

@frygirl777

I think their reasoning was that they needed a larger opening to have a better view & it made it easier to pull the pancreas with the tumor through as well as the spleen. I had robotic surgery so 4-5 small incisions & one 4 inch incision down lower.

Jump to this post

Thank you fly girl. Where did you have yours done ? I didn't know it could be done robotically . Yours then was less invasive than a laparotomy ?

I hope you are well and sincerely thank you x

REPLY
@frygirl777

You will honestly be fine. It likely was best to do chemo first so they get it all during surgery. In my case they did not & I had to do 5 back to back radiation treatments. Radiation made me so nauseous for 2 weeks after. The radiation was way worse than the surgery. I wonder some days if I will ever feel normal again. Chemo was supposed to start this week but I am still too sick plus now they think I might have a blood clot around my port leading into my port. If it’s not one thing, it’s another, it seems.

Did they advise to do more chemo after your surgery?

Jump to this post

I picked up my Chemo Meds yesterday and have to wait for the Oncology Navigator to check my blood levels or white cells to see if I'm strong enough to start the treatment

REPLY
@martinisaacs23

I am facing the same operation imminently. Do you know why it can't be done by laparoscopy ?

Jump to this post

I think their reasoning was that they needed a larger opening to have a better view & it made it easier to pull the pancreas with the tumor through as well as the spleen. I had robotic surgery so 4-5 small incisions & one 4 inch incision down lower.

REPLY
@humble57

Hi Frygirl777,
I'm glad you are a 100% after your Surgery. I was recently diagnosed, and surgery is recommended as part of my forthcoming treatment, but Chemo is recommended first for shrinkage. I'm having anxiety.

Jump to this post

…don’t discount your anxiety. It’s impossible not to have anxiety. This for sure is a terrifying diagnosis! I too have major anxiety. Didn’t know what the tightness in my chest was but as it turns out, it is likely anxiety.

REPLY
@humble57

Hi Frygirl777,
I'm glad you are a 100% after your Surgery. I was recently diagnosed, and surgery is recommended as part of my forthcoming treatment, but Chemo is recommended first for shrinkage. I'm having anxiety.

Jump to this post

You will honestly be fine. It likely was best to do chemo first so they get it all during surgery. In my case they did not & I had to do 5 back to back radiation treatments. Radiation made me so nauseous for 2 weeks after. The radiation was way worse than the surgery. I wonder some days if I will ever feel normal again. Chemo was supposed to start this week but I am still too sick plus now they think I might have a blood clot around my port leading into my port. If it’s not one thing, it’s another, it seems.

Did they advise to do more chemo after your surgery?

REPLY
@frygirl777

I had a distal pancreatectomy with splenectomy on Jan 5, 2023. You have to take it easy the first 6-8 weeks meaning no lifting & eat a low fat with small meals. Drink lots of water. Get lots of rest. Low intensity exercise like walking helps the healing process. I had no complications other than middle back pain that started about a month after. Surgeon said it was likely my nerves and inflammation. I started wearing Lifewave X39 & Aeon stem cell activation patches on the area & pain totally diminished within about a week. I have been wearing them ever since & there has been no recurrence of the pain at all. They speed wound healing also. I’m 100% now. No blood sugar issues however I eat no sugar due to cancer growing & thriving from sugar.

Jump to this post

Hi Frygirl777,
I'm glad you are a 100% after your Surgery. I was recently diagnosed, and surgery is recommended as part of my forthcoming treatment, but Chemo is recommended first for shrinkage. I'm having anxiety.

REPLY
@frygirl777

I had a distal pancreatectomy with splenectomy on Jan 5, 2023. You have to take it easy the first 6-8 weeks meaning no lifting & eat a low fat with small meals. Drink lots of water. Get lots of rest. Low intensity exercise like walking helps the healing process. I had no complications other than middle back pain that started about a month after. Surgeon said it was likely my nerves and inflammation. I started wearing Lifewave X39 & Aeon stem cell activation patches on the area & pain totally diminished within about a week. I have been wearing them ever since & there has been no recurrence of the pain at all. They speed wound healing also. I’m 100% now. No blood sugar issues however I eat no sugar due to cancer growing & thriving from sugar.

Jump to this post

I am facing the same operation imminently. Do you know why it can't be done by laparoscopy ?

REPLY

What is MNC? I am monitoring every 6 months for IPMN.
Thanks

REPLY

I had spleen, adrenal gland and pancreas tail removed via lap in December. Surgeon’s dietician was a lifesaver! First, she prepared me in advance on foods difficult to process-fruits and vegetables with skins, fiber, etc. 6 small meals each day. PROTEIN so important from a variety of sources. Also she recommended a medical food called EXPEDITE. I drank a few ounces each day about two weeks before surgery and again before my liver surgery on 2/28.
I am sure it expedited healing. Full of collagen and other good things.
I was up and about in two weeks after both surgeries with some remaining pain in surgical area especially when I laughed. DO NOT go to any comedy clubs for awhile!!!!😊

REPLY
@gardenlady1116

I will keep your experience in mind if I wind up being told that my tumor shrunk enough to have surgery. Better to hear about the possible complications than be blind sighted by them. Thanks for sharing your story.

Jump to this post

Glad could be of help. As of today day 13 post op pain very minimal. Learned if I eat small bites and don’t drink between bites I don’t get pain. Have lost 10 pounds already. Not trying too but it must be cause of eating very smaller meals.
Looking for advise on burping excessively. Am I able to take gas pills for that? Any input appreciated.

REPLY
Please sign in or register to post a reply.