What's recovery after distal pancreatectomy and splenectomy like?

Hi,

Could I ask what your wife's condition was at week 3? I am scheduled to have a Whipple surgery on 6.8. I just got invited to do a dream? assignment from July 1-9. It is an on-call interpreter job for a big golf event. Last year I did the same job. Mostly I sat all day waiting to be called. It was a very easy job. However, I do not have any idea what kind of conditions I will be. I know the reaction varies greatly for each person, but generally, will I be in so much pain, nausea, fatigue, etc., around week 3-4? I would like to know your honest opinion.

Is she taking insulin? Use of a DEXCOM or Libre monitor for continuous monitoring of glucoses is helpful. If she is taking insulin, the timing of insulin and matching insulin doses to carbohydrates are key to more stable glucoses.

My wife was told 6 weeks before possibly returning to work. She should be able to make it as we are on week 5 and generally doing better each day. Our biggest challenge is keeping her sugars level as she has had wild swings from 45 to 380. It’s getting better with smaller changes, but constantly monitoring it.

Hi Sherry
Did you get my last message. ?
Hui

I' would like to send healing and strength to you for the next step in your journey. Very encouraging and thank you Fry girl

hi
please ask the surgeon or your gp why you are burping --new symptom is not to be ignored
Had same as you Oct 27 & i was 71. Endone caused tremors so they stopped it but was on 4 types of painkillers daily during
8 days in hospital.
Then in mid jan pain at base of wound--GP gave Emexlon for indigestion but got worse & 2 days in local hospital & 5 days on Staphylex. Had pneumovax vaccination Feb 3rd & 5 days later had 38.5 temp -a week of pain & coughing so went 200km to capital city by train to The Alfred hospital --admitted immediately as pain was post op seepage from pancreas it had formed a ball of fluids that burst and infected colon etc and had clots causing weakness in left leg.
Out in 2 days but 2 weeks on 2000mg Augmentin
Tomorrow is 5 months since op & in 2 weeks another CT/ MRI to check no fluid build up again. Lost 7+ kilograms--20lb ?
Now pain free & feeling ok
Please get ANY pain or anything different checked i could have died because I waited a week taking panadol instead of going to Dr

Yep it's really horrible but you're through the worst of it.
I'm waiting to see whether they will do the surgery because there were suspicions on the PET scan on the chest. If it's spread there then there's nothing they can usefully do.😟

Can I ask why they did radiation first? Where in the pancreas was your tumour and how large was it please

Bless you and hope you will be fully recovered soon x

I wish you well also! We all need a miracle!

You’re welcome! I’m in Southern California & had my surgery at Loma Linda University Hospital. I am about to start chemo on 4/10. Still recovering from a 5 day radiation regimen. That was brutal! Extreme fatigue & nausea. I couldn’t eat for a week.

I wish you nothing but the best! Healing energy coming your way!