Reconstruction implants or DIEP flap: How did you choose?

Posted by zeerj @zeerj, Nov 24, 2022

I had mastectomy on 9/27/2022 with nipple sparring and expanders. I’m currently going thru radiation and will do reconstruction after skin is healed. I don’t care much about implants and more inclined for flap.
After mastectomy, I had anxiety on whether I should have opted for no nipple and skin sparring and how much that would impact recurrence. I was assured it wouldn’t make a difference but learned there are some breast tissues left as they can’t remove everything. Since I’m yet to do reconstruction, part of me wants to remove the nipple/skin and do diep flap.
I would appreciate to hear from those that have done implants or diep flap. Also thoughts on removing the original nipple and skin? Not sure if I’m being too paranoid about the nipple sparring.
I had her2 positive stage 2, did 6 treatments of herceptin and perjeta. Mastectomy, had 7 positive lymphnodes, currently doing 15 sessions of radiation and going thru 14 treatments of kadcyla.

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Profile picture for rhongirl @rhongirl

Such a big decision. Women make their choice for all sorts of reasons. My DIEP flap was almost 3 1/2 years ago now. While it was the only decision for me (for a number of reasons), I am still working through shoulder issues from the procedure. I had more pain in my shoulder than the surgical area (after the procedure), and still do today. My procedure was done at Mayo in Rochester, and I had a wonderful surgical team. It has been my experience (and my PT's) that Mayo is not, however, well as known for their rehab. This has been my experience in multiple (multiple) surgeries. Having said that, I asked if I could begin therapy at 8 weeks, and was told I could not - leaving my arms down for the duration of 12 weeks. Being a rule follower, I did not see my physical therapist until after 3 months. Fast forward to today - I am still having PT even 3+ years later. It's been a challenge, one that I continue to work though and manage. I have an Endless pool, so water therapy is grand for rehab, yet I have periods where I can't even swim a stroke due to the one shoulder. I'd like to say I simply adjust, but sometimes I get discouraged. Mostly, I am able to realize it is one thing out of many things that can happen, and I move on with life.

All of our choices are a trade-off. There are always going to be things we have to give up, adjust to, be happy about, or be disappointed with. And in some cases, we feel like we don't have much of a choice at all. In terms of a DIEP flap, I am glad that I can go to bed every night not wondering if my ducts are hiding new cancer cells (because those ducts left with the double mastectomy). And I'm glad that I don't have to think about my body reacting to implants (because I did not have any, except for the original expanders that were removed during the DIEP flap). And I'm glad that my rebuild was done with my own flesh. Though my breasts will never be what my original set was, I honestly forget they are not my original, for they have become my new normal. I'm thankful that time has caused me to feel this way . . . even with the scar tissue, even with the loss of sensation. It's really all ok. My hunch is, whatever you choose, in time you will be ok, too. It's more about how we look at things than what the physical result is. I'm just glad to be here, and having an opportunity to live life. My DIEP procedure gave me an opportunity to live that life with the appearance of my old normal, which helped me move on. 🙂

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Thank you for taking the time to reply to my post. You are right in saying that it is how we look at things that makes the difference. What makes me nervous about the DIEP is the rough recovery. I am hopeful that after my consult, there will be more clarity. I appreciate what you shared about your shoulder, this will be something I will ask about. Like you said, I will make the right decision for me, it is getting there that is somewhat stressful.

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Profile picture for chiara58 @chiara58

I'd like to add my weird experience. I had double mastectomy in 2018, I had chosen DIEP procedure. Before starting that, I had to recover completely from radiation and chemotherapy treatments. Almost a year later I was ready for the procedure, but unfortunately a second cancer, unrelated to breast cancer, showed up. I had to restart treatments, and I'm still on chemo. No DIEP surgery anymore. If I had considered the possibility that something else could have happened before the DIEP surgery, I would have certainly chosen implants.

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Oh my goodness....You have been through it...Thank you for sharing your experience, you have been persevering for sure. I wish you safe healing.

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Profile picture for mkefighter @mkefighter

Hello,
I will be having a mastectomy on the left in early Jan and have not yet decided which type reconstruction yet. I am on a wait list to consult on the DIEP and have some time to decide. Would anyone like to share their experiences with the implant and DIEP procedures? Pros/cons, questions to ask, as well as what recovery was like.

Thank you.

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