Reclast infusion today
I just wanted to let people know about my recent Reclast infusion. I hydrated for a couple of days before the infusion with water and coconut water for potassium. I take ionic magnesium daily in water and drink it all day. Before my infusion I took ibuprofen and 4 Zyrtec. 2 in the AM, which I normally take and 2 more an hour before the 2 pm infusion. My specialist told me I can take that for my severe allergic reaction to fragrance. Even though the hospital is fragrance free, I always run into fragrance there. This time is was the warm blanket and pillow.
About 5 pm, I started feeling wishy washy like I had to think hard about doing things. For example, using the microwave I turned on the vent while cooking. When I no longer needed the fan, I couldn't find the correct button to shut the vent fan off. It was un-nerving. Eventually, I figured it out. It reminded me of when I had bad Lyme disease. I was extremely hungry, ate my dinner and then ate a whole sleeve of crackers, which I have never done before. I got very tired and went to bed early. I had strange dreams. For example, I dreamt I grew a second spine. When I woke up my body was achy and I felt nauseous. Today, I am able to putter around, but it is a low energy day. If this is as bad as it gets, and is temporary, I would get the infusion again, if it helps retain the bone that I hopefully built with the 12 months of Evenity. If anything changes, or gets worse, I will let you know.
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Thanks for sharing your experience with Reclast. I too have just completed 2 years of Tymlos with insignificant gains and plan to do Evenity for 1 yr. and then transition to Reclast. Im curius as to the gains you made on Evenity. Would you kindly share this info with me as I'm feeling a bit hesitant about starting Evenity.
I don’t know what my gains are with Evenity. I had a dexa scan before, but none after. It is scheduled. My Dr said it will keep working to build bone for a while yet, it doesn't just stop. When I know, I will tell everyone! I didn’t have side effects. I had a cardiovascular work up.
I did ask for the injections to be given very slowly to reduce injection site irritation and found that my stomach was the best place for injections.
Best wishes
Karen
Also, an update on Reclast symptoms. I had to stop puttering, turned on my electric blanket because I was shivering with cold, and crawled in. Later, about 4 PM, I felt a bit better. The achiness subsided a bit and I was able to go feed my horse and chickens. This morning, I just have some aches and am a bit more tired than usual. Good day to work on my taxes.
I am wondering if the foggy thinking yesterday was from a storm of cytokenes in my body, which affected my brain?
My Fellow Reclastonites,
Don't forget to have your doctor prescribe a "slow infusion" for Reclast and that the tech/nurse who administers it adheres to that request. Prior to my last infusion, I remembered my doc telling me that it should take 45 minutes to an hour for the infusion . . . when I asked my nurse, she said, "Oh, only about 15 minutes." Had I not asked and verified . . . just sayin'!
It is my understanding that the longer infusion time causes fewer side effects.
Wishing everyone sunny skies and strong bones! Cheers!
Great information. Ty
My infusion nurse said it would take 30 mins. My Dr said she was putting in for 45 minutes. I told the nurse and because 'they weren't busy', she would do the 45 minutes, but she 'had never heard of it, and it wouldn't make a difference '. So, speak up!