Diet for celiac disease - gluten free

Posted by judys01 @judys01, Oct 20, 2011

I'm looking for someone that know how to cook for people with Celiac/Gluten Free.

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Profile picture for airey2 @airey2

Not only do I have possible celiac disease, but I've been told by 2 doctors to eat a low fiber diet (due to endometriosis on my intestines). One doctor even told me to cook my veggies and fruits. I have found people seem to understand about celiac disease and being gluten free, they don't seem to realize that gluten sensitivity (which is me) also must be gluten free. They think being sensitive means limiting gluten, not avoiding it. Sorry, but that is wrong thinking! Gluten sensitive still must avoid gluten. And women especially don't understand why I can't eat salads if the restaurant has nothing gluten free to offer. I guess they think I just don't like salads, when in reality my intestines can't handle the raw veggies or fruits, and the extra fiber.
Does anyone else have this problem?

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@airey2 Having two problems, gluten sensitivity and endometriosis must make eating out very difficult. Not being able to eat salads is due to your osteoporosis, not gluten, correct? I never realized that about endometriosis. I am lactose intolerant and that alone creates plenty of problems when eating in restaurants.
JK

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Profile picture for airey2 @airey2

My GI dr told me interesting news when I went to be tested for celiac. He said that he has noticed the Irish tend to get celiac more often than other people. I am half Irish. My friends with celiac also have Irish in them. It seems to be true.

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@airey2
Hi,

This is so interesting and I did a little research because, although I do not have CD, my mom was born in Ireland and my dad in England. I found that both parents have to have the gene in order for it to occur in the next generation. They have identified it as a mutant gene which may have been around since 900 AD and is prevalent in Ireland, Scotland, Wales, Northern Europe. It was originally called the Celtic Disease. There is research suggesting a relation to another mutant gene causing an iron overload (not anemia) called Hemochromatosis.

You think of Irish food and you think of potatoes and oats. They theorize that the Irish , in the early centuries , had a high gluten diet. But even though the diet has changed dramatically, the gluten intolerant genes persisted ultimately leading to the high rate of CD in these countries. And it’s not only the Celtic countries.

I remember my mom, who had 2 Irish parents and grandparents, having stomach problems when she was about 50. She had 3/4s of her stomach removed after having suffered a duodenal ulcer for a long time. I don’t know if she had CD but she could eat anything after that operation but only small amounts. My dad never had a problem with stomach issues. His ancestors were a mix of Irish and English so I am guessing he did not have this gene and perhaps my mom did.

Anyway, now I know how the name originated. We have one friend who has celiac and I know how hard it is to live with that. She suffers when she doesn’t pay attention to what she eats.

FL Mary

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Profile picture for airey2 @airey2

My GI dr told me interesting news when I went to be tested for celiac. He said that he has noticed the Irish tend to get celiac more often than other people. I am half Irish. My friends with celiac also have Irish in them. It seems to be true.

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@airey2 - Ireland has always been said to have many with celiac disease. I’m Swedish and was used to seeing all gluten free products in the stores- it is very common in Sweden. When I moved to US nobody knew of celiac disease except specialists. I have been tested more than once/ negative. My adult daughters started to have symptoms in their 20s and now can’t have anything with gluten.

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Profile picture for imallears @imallears

@airey2
Hi,

This is so interesting and I did a little research because, although I do not have CD, my mom was born in Ireland and my dad in England. I found that both parents have to have the gene in order for it to occur in the next generation. They have identified it as a mutant gene which may have been around since 900 AD and is prevalent in Ireland, Scotland, Wales, Northern Europe. It was originally called the Celtic Disease. There is research suggesting a relation to another mutant gene causing an iron overload (not anemia) called Hemochromatosis.

You think of Irish food and you think of potatoes and oats. They theorize that the Irish , in the early centuries , had a high gluten diet. But even though the diet has changed dramatically, the gluten intolerant genes persisted ultimately leading to the high rate of CD in these countries. And it’s not only the Celtic countries.

I remember my mom, who had 2 Irish parents and grandparents, having stomach problems when she was about 50. She had 3/4s of her stomach removed after having suffered a duodenal ulcer for a long time. I don’t know if she had CD but she could eat anything after that operation but only small amounts. My dad never had a problem with stomach issues. His ancestors were a mix of Irish and English so I am guessing he did not have this gene and perhaps my mom did.

Anyway, now I know how the name originated. We have one friend who has celiac and I know how hard it is to live with that. She suffers when she doesn’t pay attention to what she eats.

FL Mary

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@imallers Interesting My brother and I had grandparents with Irish heritage he had hemachromatosis I had a Ulcer

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Profile picture for airey2 @airey2

My GI dr told me interesting news when I went to be tested for celiac. He said that he has noticed the Irish tend to get celiac more often than other people. I am half Irish. My friends with celiac also have Irish in them. It seems to be true.

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Yup. 76% Irish here, according to Ancestry DNA. I have read in more than one place that the Irish have a higher percentage of Celiac diagnosis

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Profile picture for JK @contentandwell

@airey2 Having two problems, gluten sensitivity and endometriosis must make eating out very difficult. Not being able to eat salads is due to your osteoporosis, not gluten, correct? I never realized that about endometriosis. I am lactose intolerant and that alone creates plenty of problems when eating in restaurants.
JK

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I feel like I wrote this - I identify with it so much. Jane

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Profile picture for JK @contentandwell

@airey2 Having two problems, gluten sensitivity and endometriosis must make eating out very difficult. Not being able to eat salads is due to your osteoporosis, not gluten, correct? I never realized that about endometriosis. I am lactose intolerant and that alone creates plenty of problems when eating in restaurants.
JK

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"Not being able to eat salads is due to your osteoporosis, not gluten, correct?" Not being able to eat salads is because of the endometriosis being on my intestines. To my knowledge, osteoporosis is not affected by food.
I am fearful of eating out, but have done it. I have my trusted restaurants that I know serve gluten free food or have a good choice of foods (like cafeterias or buffets, where I can pick and choose). A lot of 'mystery foods' that made me sick when I was younger and did not know about gluten has now been solved--gluten, and I did not know or even heard of it back then.
Traveling is difficult, and I've learned to bring my own-especially snacks. I've also have learned to research restaurants, although one sandwich shop advertised as selling gluten free (I thought they had their own Gluten free bread), but when I got there, they did not have anything that was gluten free. needless to say, I was upset and went elsewhere.

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Profile picture for airey2 @airey2

"Not being able to eat salads is due to your osteoporosis, not gluten, correct?" Not being able to eat salads is because of the endometriosis being on my intestines. To my knowledge, osteoporosis is not affected by food.
I am fearful of eating out, but have done it. I have my trusted restaurants that I know serve gluten free food or have a good choice of foods (like cafeterias or buffets, where I can pick and choose). A lot of 'mystery foods' that made me sick when I was younger and did not know about gluten has now been solved--gluten, and I did not know or even heard of it back then.
Traveling is difficult, and I've learned to bring my own-especially snacks. I've also have learned to research restaurants, although one sandwich shop advertised as selling gluten free (I thought they had their own Gluten free bread), but when I got there, they did not have anything that was gluten free. needless to say, I was upset and went elsewhere.

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@airey2 Thanks for the explanation. I didn't think that endometriosis would cause problems with any foods. I also had not realized it could be on your intestines. I thought it was just within the uterus.
Eating out can be a problem for so many of us for so many different reasons. I have to keep my sodium low, am now lactose intolerant and cannot eat at buffets.
That's totally weird that a restaurant advertised gluten-free and had nothing that was. Crazy!
JK

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Profile picture for guthealth @guthealth

Would anyone have an interest in starting/joining a discussion about following a gluten free diet. What has worked or not worked and how it has helped or not helped. We can learn from one another.

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Cracker Barrel and Applebees have same problem. Claim foods people can eat only to find out that they are wrong. Jane Brown

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Profile picture for Jane S. Brown @macjane

Cracker Barrel and Applebees have same problem. Claim foods people can eat only to find out that they are wrong. Jane Brown

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I learned about Cracker Barrel long before I knew about gluten. I just knew I got sick everytime I went. I've boycotted Cracker Barrel.

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